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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Protocol for ME/CFS induced by herpes veridai viruses

godlovesatrier
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Started taking pretty much everything 2 days ago and feeling better. Everything means 2 solaray probiotic capsules in the AM b12 oil transdermal in the AM liposomal glutathione (I took a dose one day and half a dose the day before) - too much of this gives me shocking back ache, so I take only...
godlovesatrier
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Hi all, Been on josh's protocol about 8 months now I think. I've been going through a bit of a rough patch post christmas with some added life stress and I think my ebv levels have gone up. I just got my blood tests back today which show a raised lymphocyte level. Generally my lymphocytes...
godlovesatrier
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I started taking Lomatium Dissectum glycerite tincture from Planetary herbals about 5 days ago. Having a fairly strong response to it, takes a few days for the cumulative effect of oat bran/reishi/lomatium to kick in. But the herx is fatigue, dizziness and much worsened brain fog. I feel...
godlovesatrier
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I've discussed this before but wanted to recap - I cross posted this on a blog entry of Cort Johnsons. I found thiamine hcl incredibly helpful, going into remission for about 3 days at a dose of 1200mg a day (I titrated up over 7 days). Prior to this it felt like thiamine wasn't quite working...
godlovesatrier
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I'm still amazed that one of the first things I noticed on this protocol (within about 4 weeks) was the slowly receding absence of inflamation in the cranial cervical junction and the head and over longer time the neck. The neck stiffness took about 4 months to subside, but the swelling of the...
godlovesatrier
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Last few days my sore throat from christmas came back, and I felt like I was breathing a little erratically compared to normal. No idea why this is. Still taking my inhaler twice a day which will no doubt help any issues where breathing is concerned. ME symptoms aren't that bad again, but...
godlovesatrier
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Happy new year! I've been feeling rather unwell lately. All my lft tests and PCR tests have been negative but I've seemingly crashed more easily after exertion than in the past. I can't tell if the mRNA booster has caused some issues or whether I'm just at a lower baseline because of colds and...
godlovesatrier
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On pretty much all of the joshua leisk protocol at this point. Glutathione on and off as I can't take it for more than a few days at a time. EGCG once a day 80mg egcg only in the AM to rid myself of brain fog, it also appears to stop inflammation in my neck and head returning, don't ask me...
godlovesatrier
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Quite some time ago, probably 4 months ago. Joshua and some other PR members on discord were recommending Hesperidin as an adjunct to block replication of sars-cov2. It seems to do that by blocking the virus's ability to bind to ACE2 receptors. It also has some other effects which seem to be...
godlovesatrier
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Tried to move to Lumbroniskase today but first dose has made me really dizzy and feeling rather foggy. I got some intacranial swelling and lymph nodes felt swollen for about 30 minutes. So maybe it did something? But my lip also blew up and felt like it had been burnt. What actually happened...
godlovesatrier
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Strangest thing happened last night and thismorning. Decided to start taking Baikal again from scutelleria herb. I took 500mg and became dizzy with virally type aches and stiffness not long after. Went to bed feeling reasonably ok but crashed a bit in the night and woke up rather fatigued. My...
godlovesatrier
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Looks like the dizziness and nausea I experienced after the booster were from re-starting beta glucans and not the booster itself. At any rate it's day 8 now after my booster and the effects if I discount the above two have actually been incredibly mild. I guess it just shows that a half...
godlovesatrier
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So for the last 5 weeks I've not taken any beta glucans (oat bran) because I believed it could be inducing neutropenia. This is because beta glucans directly feed neutrophils and monocytes in the body, so it made sense to me that if they do that they might be being used at an exponential rate...
godlovesatrier
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Had my moderna half dose booster on Thursday. Very different reaction compared to az with mild symptoms but my ME relapse started yesterday and now I'm very dizzy and body feels fatigued. If it continues I reckon I'll go downhill until the end of the 14 days and then I'll start to recover...
godlovesatrier
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Busy week this week and yet I felt much better from Monday onwards than I did the preceding week. What changed? I re started my liposomal glutathione in the AM 5ml's. This no longer knocks me on my ass and I'm able to tolerate it just fine. But the added benefit is I get a huge energy boost...
godlovesatrier
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I've been getting quite irritable and dizzy this week, I think this is due to my consumption of nicotinamide to address my neutropenia. Studys show this stuff will work but it seems to cause a few mental side effects. I think lack of beta glucans is also part of the story but for the time...
godlovesatrier
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I've been off oat bran for about a week or two now and I started to suffer with tiredness this week, which I attributed to a cold but it's not really getting better. Tiredness is the wrong word it feels like mental burnout to be honest. I am fairly convinced it's the lack of oat bran because I...
godlovesatrier
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Increased my FOS and Pysllium husk to 1 teaspoon 3x a day. Tried some goats cheese again last night, tasted amazing on bread (YUM!!) but woke up feeling terrible thismorning, like drugged and snotty/congested and grim. Dizziness hasn't stopped yet but I tried the NMN today from alive by...
godlovesatrier
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Hi all, I'm still waiting for my nmn sublingual to arrive. Taking ages! Hoping this gives me a better time of things. In terms of energy envelope. After the flu jab my energy envelope has reduced by 50 to 75%. But colds are making it much closer to 50. I had one brief energy spurt where I was...
godlovesatrier
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Latest update, NMN should arrive this week. Going to change my diet a bit, adding a smoothie at lunch full of nut butters, hope I am not allergic!! So that I can increase my calorific intake without increasing my carb intake to about 1900 cals per day. It's been 1450 for ages and it has...

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godlovesatrier
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