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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Protocol for ME/CFS induced by herpes veridai viruses

godlovesatrier
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So I got my blood test results back. I've definitely not felt as "well" since my second covid jab and I've nee wondering all sorts of things about potential root cause. Also I had an ebv reactivation and a throat infection after my second jab which only made things worse. I don't feel like I've...
godlovesatrier
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So this week was interesting. Since I last posted the 6 days of full on flu like symptoms (I thought I had a virus because my gf got a migraine which lasted about 5 days) and she felt sick herself. No idea if it was or not but as it turned out as soon as I added the egcg back into my regime...
godlovesatrier
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Still on aforementioned v3.2 of the protocol. So I've tested this 2 or 3 times now. PEM and fatigue do appear to be blocked. This is directly proportional to the amount of time I have been on a beta glucan dose exceeding 400mg per day. When I increased to 1400mg a day I felt worse for about...
godlovesatrier
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I am following the Joshua Leisk protocol v 3.2 The latest protocol can be found here: (https://www.researchgate.net/publication/351302423_DEPRECATED_v32_Specifications_for_Rapid_Testing_of_HASD_CFSME_Disease_Model Started to feel a bit off this week, thought the protocol was either ramping up...
godlovesatrier
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Managed to do a 35 min walk yesterday in a local country park. Was really nice to get out on a warm evening. PEM was slow onset the following day (all I had was dizziness as my first immediate symptom about 20 minutes into the walk) - felt pretty much symptom free prior to setting off. PEM...
godlovesatrier
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The latest protocol can be found here: (https://www.researchgate.net/publication/351302423_DEPRECATED_v32_Specifications_for_Rapid_Testing_of_HASD_CFSME_Disease_Model But I am still on v3.2. However I've started adding in chinese skullcap root £40 for 500g from Bristol Botanicals. I started...
godlovesatrier
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I didn't know Stephen Buhner had a blog, apparently because all his posts on facebook are immediately taken down by facebook he now posts on his blog instead. I was reading this blog entry https://www.stephenharrodbuhner.com/wp-content/uploads/2021/03/covidupdates.mutations.txt.pdf Came across...
godlovesatrier
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Just wanted to write a quick summary so far. Where I'm at now I've been on the protocol about 80 days now. I am still having an immune response after my post covid jab restart of the protocol, I am about 30 days into my restart I'd say. Immune response was very strong for a long time...
godlovesatrier
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Just a quick update to say that I'm now doing a lot better than I was before, hopefully that will remain over the coming week. I crashed yesterday and with some bcaa's (in two split doses) and some extra glycine (5g)/nac(2g)/choline(100mg)/panthothenic acid(100mg) + 2 litres of water and 3000mg...
godlovesatrier
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These look great, so I am happy this isn't causing me any issues and not a potential root cause of my symptoms:
godlovesatrier
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Well I can tell it's July, pollen fungus and spores have definitely hit me. Very stuffy sinuses, sneezing quite a bit and I would be surprised if that doesn't make my fatigue worse. So after trialing the old type of Lindens egcg yesterday I feel worse today. Fatigue came back. Either this...
godlovesatrier
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So it looks as if brightcandle had a crash by incorporating new items on v3.31 of the protocol. This protocol was recently released to go after entereoviral infections as well as herpes ones. He went from 90% down to 5% in terms of hummingbird function. Which I would not have expected...
godlovesatrier
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Felt really good all day today. Was even able to go out at lunchtime. So back to where I was when I began to feel good previously. EGCG definitely making me overly wired, but I am playing with the doses. 100mg/100mg/25mg today to see how I get on with that. Josh confirmed egcg has a...
godlovesatrier
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Woke up thismorning without much fatigue, I would say the egcg has buffered my fatigue to 80%. I had no sore throat overnight, although I did sweat overnight which for me is practically unheard of. Although it was pretty hot it wasn't boiling. So I am pretty amazed, I feel much brighter today...
godlovesatrier
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Took egcg today with glucans and reishi. Even if the last 4 weeks of experiments don't work I've learnt something at least. 125/125/75mg egcg in 3 doses 980mg reishi 3x a day 440mg lion's mane 3 x a day 250mg r-ala 3 x a day Taking reishi gives a small boost in energy but doesn't heal oral...
godlovesatrier
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Seem to have gotten a lot worse over the last week. Yesterday almost all day I was dizzy and fairly dehydrated. Last night I had a sore throat for hours and woke up with muscle fatigue that wasn't there before I went to bed. It's like a switch has been flipped and I now don't even feel better...
godlovesatrier
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Continuing with no egcg tomorrow, checking symptoms with glucans. So far primarily nerve and muscle aches/pains with the glucans, which is a good sign. Egcg taken out = much calmer not wired/tired all the time. I realised the other day I hadn't actually tried this protocol without removing...
godlovesatrier
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Thought I'd try some Apple cider vinegar capsules yesterday. Can't actually remember why I was trying these to be honest. Anyway outcome was, throat tissue felt much improved, which has now puzzled me a tad, but it could be a total coincidence to be honest that this occured when I took the acv...
godlovesatrier
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So taking out the beta glucans and higher reishi does + egcg has reset me back to where I was the day before. Fatigue is still not great, although I do also feel a bit achy which would be much closer to an immune response than a standard ME symptomatic response. Problem is once the viruses get...
godlovesatrier
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This is my second or third day of waking up with bad fatigue. I'm going to take a rest from egcg and glucans and just take 1 reishi capsule today in hopes my body will reset to a calmer state. My necks also become very stiff but this seemed to happen when I increased the glucans so it would...

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