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  • Surprise! MCAS
    I'm hearing more and more connections with Me/cfs Mast cell activation,lyme and mold. Part of me believes this may be a reason why there may...
  • HRV & activity device kickoff
    Thanks, I will have to try that!!
  • Spring is here but I do not feel springy
    That drunken toxicity feeling really is the best way to describe what it feels like. Flu like doesn't do it justice. It took me two weeks to get...
  • HRV & activity device kickoff
    This HRV breathing exercise does have different tones for the inhale and the exhale, so you can use it with your eyes closed.
  • HRV & activity device kickoff
    I do wish that HRV breathing exercise had a distinctly different tone for the inhale and exhale so I could use it with my eyes closed. There are...

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Blogs
388
Blog entries
2,400
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815,125
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10,015
Short version: I started antihistamines again and feel better DUH! Months of misery provoked by self-inflicted med changes are always the most...
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248
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I'm still really really dragging after Moderna #2. (3+ weeks out). I worked 2 part time days last week after taking the entire week before off...
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1K
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Spurred on by this article https://www.healthrising.org/blog/2021/03/04/hannah-pacing-heart-rate-monitoring-chronic-fatigue-syndrome/ I, like...
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Hey! I just noticed that I posted something on 2 year anniversary so it's a good comparison. Here's the 2 year notes (first) followed by 4 year...
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I had Moderna #1 (offered because of where I work) and spent about 2 days in bed. Then about 7 more days dragging and barely making it through my...
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(Ireland) Webinar: "Key messages for Primary Care on the Diagnosis and Management of  Post-Viral Fatigue Syndrome and ME/CFS"
Educational event for GPs: "Key messages for Primary Care on the Diagnosis and Management of Post-Viral Fatigue Syndrome and ME/CFS" Time & date...
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Cycle 30. 6 months into treatment
Hi guys. Here's the latest foot periostitis photo. Progress is still moving along. Good energy boost today. Left metatarsal head finally...
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I counted the days. Fourteen. Soon, whatever this was had to leave me. I'd had some bad flu-like bugs before. I remembered that once many years...
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Part 2 Spring 2018. My car isn't fixed yet. Something mysterious is happening to the battery, and it won't hold a charge longer than 24 hours...
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This was what happened just before I got ill in 2018
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296
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Link to recording of and slides for Dr Ros Vallings' recent talk and Q&A
From: Irish ME Trust & Irish ME/CFS Association Hi Everyone, The YouTube link below relates to the Online talk and Q&A with Dr Ros Vallings on...
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239
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I'm posting this to some yahoogroups tonight. In case it is of interest to anyone, I thought I would share it here. Tom --- With yahoogroups...
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Continued previous entry "Yesterday on 11/12/2020 at 7 PM on day 2 cycle 15 off I added additional heat shock protein (HSP) inducers because they...
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The "little man/woman" can make a difference
Ten years ago, I believe I was the first to highlight in a peer-reviewed ME/CFS publication that there was no formal system to report adverse...
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why are we supposed to run around and tell everyone that we have MECFS? because its over. mecfs is covid-long. whatever virus... whatever...
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Experimental immunotherapy for coxsackievirus-Cycle 9- 2/2
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I'm preparing for the next round. Currently added another supplement to reduce blocking of the reactive oxygen apoptosis pathway. Based on...
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