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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Beat the Heat / Beef Stew / Toppings on the StreetOh, the Palo Verde is off to the right and above me... basically, the shade maker (of sorts). And I am still in the garage. Today was the warmest... -
Beat the Heat / Beef Stew / Toppings on the StreetWhat type of tree is that in the park @Howard? I looked up Palo Verde tree but not sure it is the same as the one in your photo. Amazing sky in... -
I Miss Movement as an OutletI should try the mental movement thing more, for some reason I'm resistant to doing it. Maybe the energetic cost of concentrating, dunno... -
I Miss Movement as an OutletI love Tai chi! It was taught free at a park across the street when I was newly ill. Went to one class and that was all I could do. Amazing you...
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(This relates to matters in the Republic of Ireland so may have minimal interest for people in other countries)
I thought I would make a quick post to share some extracts from, and comments on, “The Green Paper on Disability Reform: a flawed effort to reform payments for people with...
After herxing a lot yesterday taking 250mcg of kpv for a bad head cold I woke up today feeling pretty good, not 100% but still better than the previous day. Brainfog and worsened dizziness are very common with kpv but always abate the following day and almost always 90% of the time are followed...
I'm half asleep right now. But that also means I'm half awake. Let floweth thyne words, right?
So what comes next is my response to the comments received in my previous blog entry. My original stated dilemma had much to do with my future choosing, specifically, answering the following...
I started to feel better around day 40, lactoferrin 900mg a day appeared to ameliorate coat hangar pain.
Then this weekend after trying lots of antihistamines and decongestants (most of which crashed me for 24 hours) the coat hanger pain lifted and I now don't have any. I am only taking low...
A few months ago, I reacted negatively to a potent neuropeptide, which plunged me back into bedbound bizarro world where I remain today—disillusioned, frustrated, and bored—with the added side effect of an increased appetite on par with that of a black bear.
Since then, I have been questioning...
Hello blog readers! Time for the promised update. Sorry about the long delay, thanks PASC/LC for that...
Here is a final entry in this blog series, my 'results' report and conclusion based on evidence of multiple people testing out this theory, with some references. I am now calling this a...
Greetings. I am still alive. And if you are reading this, you are still alive, too. Congratulations! Please forgive my lack of posting. I've been a lowdown dirty depressed sort of human during these recent weeks, but heck, things could turn around suddenly. Improvement is just on the horizon...
it's been 5 days on and today off of osha root. I could have survived a full week but after an initial herx of pain all through my jaw and head with abdominal cramps at random and a background of terrible fatigue that turned into largely just some abdominal pain now and then plus the fatigue I...
Lung pain has definitely gone since taking two 5mg hydrocortisone doses one week apart six weeks post covid.
My energy envelope is improving as well. However neuro inflammation seems to be much higher than it was pre COVID. Hopefully it will fully recover by six months.
But I'm still on the...
A TRIP OUT
This week I did something I hadn't done in a while - I went to the cinema. I was very excited to see a movie in person, rather than on the TV at home. I drove myself there to meet a friend and spent most of my time simply sitting down, so hoped I wouldn't be too tired afterwards...
I've got air hunger now which I haven't had for about two or three years and fatigue in my upper arms with bad coathanger pain. Again haven't had those since 2022 probably about October time. Why did it get better? Not sure but I think not getting COVID would have helped.
I'm hopeful tho that...
The past few days have been up and down. I learned I wasn't able to tolerate the gluconate or citrate types of potassium so I decided to try the bicarbonate version which is the type found in food and was alright with that and it's been helping with my energy while keeping me a bit more level at...
I've been suffering with a ton of inflammation since about week 2 (after taking some citalopram) of covid recovery. Inflammation is all over but I feel it most in my throat, neck and ent nerves/glands and tonsils. However I think it is also manifesting as insomnia and quite possibly anxiety as...
Today I woke up already somewhat exhausted and it was the second day off the round of activated charcoal I gave myself and day 3 of propolis. It seems to be sitting well with my and consistently keeping inflammation low so until it tells me otherwise I'm keeping in my supplement stack. Pretty...
Hi all,
So I got covid over christmas and continued with the legumes but stopped biomesight testing and any new gut based treatments.
Covid did a number on me and whilst i am not battling fatigue as badly I have some symptoms I am struggling with.
When I got covid I had a fever of 39 for two...
Yesterday I went from extremely high strung energetically to more stable but far lower energy than I'd like after just a partial amount of anthocyanin that I thought might help with inflammation and my guts but the result we're mixed. I was extremely tired within 10 minutes of taking it, seemed...
This may be a depressing unsatisfactory read. Proceed with caution.
Brief update:
I received trigger point lidocaine injections this afternoon in my stoma area, and the pain went away... for 60 minutes. Yes, it was a glorious 60 minutes!
I have a follow-up appointment on February 8th.
In...
Not much has changed since my last post except I have my vitamin B1 powder again so I figured I would jot down everything I am currently taking to address my long term B12 deficiency/refeeding syndrome. (see last blog post for details)
Vit B12 1000 mcg 3-4x a day (currently using multiple...
Today I woke up somewhat rested, sleep wise last night wasn't as bad as I thought it would be. The morning and work was also better than I expected. My mood was better today and something was generally more connected in my brain though I can't really specifically describe what I mean by that...
It's always seems like every time I have an extended amount of days off I always find myself in some kind of trouble. Today I was pretty peaceful when I woke up and actually did sleep through the night for once but it was one of those nights where I was going to sleep for hours too long if I...