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Phoenix Rising ME / CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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243
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5,883
Threads
243
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Stanford and OMF-Save the Date - Third Annual Community Symposium
  • Ben H

News and Research

ME/CFS and other health news and research
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214,760
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Phoenix Rising Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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Brain inflammation research?

Advocacy and Fundraising

Advocacy, fundraising and petitions
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58,691
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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Time to crowdfund the very excellent Dr David Tuller again, Folks!

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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3,769
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79,363
Threads
3,769
Messages
79,363
Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS

Symptoms and Treatments

Symptoms

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74,227
Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological/Neuro-sensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth, and Nails
  13. General Symptoms
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4,389
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Body Twitching issue

Treatment and Therapy

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12,186
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216,050
Sub-forums:
  1. General Treatment
  2. Addressing Biotoxin, Chemical & Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Detox: Methylation; B12; Glutathione; Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance; POTS
  9. Rituximab: News and Research
  10. The Gut: De Meirleir & Maes; H2S; Leaky Gut
Threads
12,186
Messages
216,050
Experience with antibiotics

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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1,820
Messages
25,895
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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1,820
Messages
25,895
2-day CPET test results (reveals Chronotropic incompetence)

Alternative, Co-existing, or Missed Diagnoses

Alternative, Co-existing or Missed Diagnoses

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1,565
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23,936
Sub-forums:
  1. Adrenal Dysfunction
  2. Connective Tissue Disorders/Ehlers-Danlos Syndrome
  3. Fibromyalgia
  4. Fungal Infection (Yeast, Candida)
  5. Lyme Disease and Co-Infections
  6. Mast Cell Disorders/Mastocytosis
  7. Multiple Sclerosis
  8. Thyroid Dysfunction
Threads
1,565
Messages
23,936
New doctor wants to treat empirically for Lyme, good idea?

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,427
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25,396
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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25,396
The Outer Limits...

In Memory of ...

In Memory of ...

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56
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1,276
Threads
56
Messages
1,276
In Memory of Shawn Kregan (SK2018)

Miscellaneous Resources, Projects, and Archives

Resources, Projects, and Archives

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Sub-forums:
  1. Information and Resources
  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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2,221
Messages
59,127
Wheelchair Training Guide

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