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Phoenix Rising ME / CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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246
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Threads
246
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NIH's "Accelerating Research on ME/CFS" Conference April 4-5, 2019 - livestreaming

News and Research

ME/CFS and other health news and research
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13,115
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215,382
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Phoenix Rising Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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20 patients now found positive for CCI / AAI, there must be many more...

Advocacy and Fundraising

Advocacy, fundraising and petitions
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58,732
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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58,732
OMF "Keeping the Hope" Song Release
  • Ben H

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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3,797
Messages
80,133
Threads
3,797
Messages
80,133
Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS

Symptoms and Treatments

Symptoms

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Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological/Neuro-sensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth, and Nails
  13. General Symptoms
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4,420
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74,952
Sore tailbone anyone?

Treatment and Therapy

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12,238
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216,840
Sub-forums:
  1. General Treatment
  2. Addressing Biotoxin, Chemical & Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Detox: Methylation; B12; Glutathione; Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance; POTS
  9. Rituximab: News and Research
  10. The Gut: De Meirleir & Maes; H2S; Leaky Gut
Threads
12,238
Messages
216,840
Cast iron?

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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1,824
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25,979
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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1,824
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MGH or Brigham & Women's Experience?
  • Mel9

Alternative, Co-existing, or Missed Diagnoses

Alternative, Co-existing or Missed Diagnoses

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1,572
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24,039
Sub-forums:
  1. Adrenal Dysfunction
  2. Connective Tissue Disorders/Ehlers-Danlos Syndrome
  3. Fibromyalgia
  4. Fungal Infection (Yeast, Candida)
  5. Lyme Disease and Co-Infections
  6. Mast Cell Disorders/Mastocytosis
  7. Multiple Sclerosis
  8. Thyroid Dysfunction
Threads
1,572
Messages
24,039
2 schools of thought you will encounter with MCAS

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,430
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25,416
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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1,430
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25,416
THE CHRONIC ELEPHANT'S SURVIVAL GUIDE TO ' FLARE- UP' DAYS

In Memory of ...

In Memory of ...

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56
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1,277
Threads
56
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1,277
In Memory of Shawn Kregan (SK2018)

Miscellaneous Resources, Projects, and Archives

Resources, Projects, and Archives

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Sub-forums:
  1. Information and Resources
  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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2,221
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59,128
CFS/ME Good Doctor List

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