• Planning to Register on Phoenix Rising?

    Phoenix Rising is an online discussion forum and community for patients with the illness myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). You are very welcome to join Phoenix Rising if you have ME/CFS, suspect you may have it, or have an ME/CFS-like condition such as dysautonomia, MCAS, fibromyalgia or Long COVID.

    If you are a caregiver of an ME/CFS patient, a researcher, a journalist, a physician or other medical professional, you are also welcome to join the forum, provided you plan to post about ME/CFS issues. Generally we do not allow people to join the forum to post about health issues unrelated to ME/CFS; this is in order to keep this forum focused on ME/CFS.

    To register an account, press the Register button at top right.

    If you join Phoenix Rising, please read our forum rules before posting.

    If you are a researcher looking for study participants, please contact a moderator prior to posting on the forum.

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Phoenix Rising ME/CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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276
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NIH Workshop: Post-Acute Sequelae of COVID19, December 3-4, 2020

News and Research

ME/CFS and other health news and research
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Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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Experimental Drug Reverses Cognitive Decline
  • Hip

Advocacy and Fundraising

Advocacy, fundraising and petitions
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Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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Support Phoenix Rising

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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4,465
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88,754
Threads
4,465
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88,754
EVERYONE NEEDS TO READ THIS. Great improvement by diet change

Symptoms and Treatments

Symptoms

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81,248
Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological & Neurosensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth and Nails
  13. General Symptoms
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ME/CFS for 18 years, recently diagnosed with D-Lactic acidosis as cause of symptoms and illness.

Treatment and Therapy

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12,967
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229,435
Sub-forums:
  1. General Treatment
  2. Mold, Biotoxins, Chemical/Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Methylation, B12, Glutathione, Detox and Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance, POTS
  9. Rituximab: News and Research
  10. The Gut: IBS, SIBO, Leaky Gut, Gastroparesis
Threads
12,967
Messages
229,435
Proprioception Dysfunction - treating this improved my symptoms (I think!)
  • Hip

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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1,960
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Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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1,960
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Fatigue Doctor Recommendation: Dr. Jon Kaiser (based in CA, does telehealth sessions nationwide)

Comorbid Conditions / Differential Diagnoses

Comorbid Conditions

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1,694
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29,424
Sub-forums:
  1. Connective Tissue Disorders: EDS, CCI
  2. Mast Cell Activation Syndrome
  3. Lyme Disease and Co-Infections
  4. Fibromyalgia
  5. Thyroid Dysfunction
  6. Adrenal Dysfunction
  7. Fungal Infection (Yeast, Candida)
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1,694
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29,424
High aldosterone and low ACTH means?

Differential Diagnoses

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44
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213
Sub-forums:
  1. Multiple Sclerosis
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44
Messages
213
Postorgasmic Illness Syndrome (POIS)

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,505
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26,564
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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1,505
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26,564
Declaring fibromyalgia for permanent disability?

In Memory of ...

In Memory of ...

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61
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1,305
Threads
61
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1,305
Hangininthere/Patti J.

Miscellaneous

Resources, Projects, and Archives

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Sub-forums:
  1. Google Site Search
  2. Supplement Shopping Search
  3. Information and Resources
  4. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  5. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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2,225
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59,145
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