• Planning to Register?

    Please Note:

    Phoenix Rising forums are primarily for patients with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME/CFS). Caregivers, researchers, physicians, and other medical professionals are welcome to join as long as you plan to post about ME/CFS.

    If you are a researcher looking for study participants, please contact a Moderator prior to posting on the forums.

    Members of the general public who join to post about health issues that are unrelated to ME/CFS will not have their posts accepted and will be asked to find a more appropriate website to ask questions and/or post information. This keeps our forums focused on ME/CFS.

    Please make sure you read our Forum Rules and Forum Guidelines after joining and prior to posting and make sure to introduce yourself in the Introduce Yourself forum.

Phoenix Rising ME / CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

Threads
258
Messages
6,141
Threads
258
Messages
6,141
NIH ME/CFS Webinar October 17, 2019

News and Research

ME/CFS and other health news and research
Threads
13,423
Messages
218,049
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Articles
  4. Other Health News and Research
  5. Active Clinical Studies
Threads
13,423
Messages
218,049
ME/CFS and the Change of Seasons: How Does This Affect You?

Advocacy and Fundraising

Advocacy, fundraising and petitions
Threads
2,982
Messages
58,894
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
Threads
2,982
Messages
58,894
A Federal Funding Update - September 30
  • Mary

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
Threads
3,995
Messages
84,073
Threads
3,995
Messages
84,073
Sjogren's Syndrome- Dry eyes, mouth? get this one ruled out, or in!

Symptoms and Treatments

Symptoms

Threads
4,557
Messages
77,015
Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological/Neuro-sensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth, and Nails
  13. General Symptoms
Threads
4,557
Messages
77,015
Partial Right Bundle Block Branch Block (RBBB)

Treatment and Therapy

Threads
12,412
Messages
219,812
Sub-forums:
  1. General Treatment
  2. Addressing Biotoxin, Chemical & Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Detox: Methylation; B12; Glutathione; Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance; POTS
  9. Rituximab: News and Research
  10. The Gut: De Meirleir & Maes; H2S; Leaky Gut
Threads
12,412
Messages
219,812
Would you try a Lyme disease treatment ?

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
Threads
1,857
Messages
26,300
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
Threads
1,857
Messages
26,300
Looking for a doctor in Dublin, Ireland?

Alternative, Co-existing, or Missed Diagnoses

Alternative, Co-existing or Missed Diagnoses

Threads
1,612
Messages
24,833
Sub-forums:
  1. Adrenal Dysfunction
  2. Connective Tissue Disorders/Ehlers-Danlos Syndrome
  3. Fibromyalgia
  4. Fungal Infection (Yeast, Candida)
  5. Lyme Disease and Co-Infections
  6. Mast Cell Disorders/Mastocytosis
  7. Multiple Sclerosis
  8. Thyroid Dysfunction
Threads
1,612
Messages
24,833
Borrelia miyamotoi anyone?

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
Threads
1,461
Messages
25,856
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
Threads
1,461
Messages
25,856
Having a crisis of meaning

In Memory of ...

In Memory of ...

Threads
59
Messages
1,288
Threads
59
Messages
1,288
In Memory of Myra

Miscellaneous Resources, Projects, and Archives

Resources, Projects, and Archives

Threads
2,221
Messages
59,128
Sub-forums:
  1. Information and Resources
  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
Threads
2,221
Messages
59,128
CFS/ME Good Doctor List

Donate

Help Keep Phoenix Rising Running!

Donations play a vital role in Phoenix Rising’s support of the ME/CFS community. You do not need to have a Paypal account to make a donation.

Single Donation
Monthly Donation

Did you know?

Show another tip

New Threads

Latest Blog Entries

Staff online

Members online

Total: 106 (members: 25, guests: 81)

Forum statistics

Threads
63,595
Messages
1,163,459
Members
27,078
Latest member
JuliaR22

Share this page