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Phoenix Rising ME / CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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NIH ME/CFS Telebriefing August 19, 2019

News and Research

ME/CFS and other health news and research
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Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Phoenix Rising Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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Cracking letter from Prof. Racaniello to Dr Brown ed.in chief re: Dr Esther Crawley's LP paper.

Advocacy and Fundraising

Advocacy, fundraising and petitions
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  2. Advocacy Projects
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  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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US Access Board: Public Comments – JULY 10TH Meeting

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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3,864
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Crashed

Symptoms and Treatments

Symptoms

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  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological/Neuro-sensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth, and Nails
  13. General Symptoms
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Anyone Else get ill after exposure to sunlight - not just the heat

Treatment and Therapy

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Sub-forums:
  1. General Treatment
  2. Addressing Biotoxin, Chemical & Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Detox: Methylation; B12; Glutathione; Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance; POTS
  9. Rituximab: News and Research
  10. The Gut: De Meirleir & Maes; H2S; Leaky Gut
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Vitamin C as a pro-oxidant?

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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New clinician at Center for Complex Diseases
  • Jyoti

Alternative, Co-existing, or Missed Diagnoses

Alternative, Co-existing or Missed Diagnoses

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Sub-forums:
  1. Adrenal Dysfunction
  2. Connective Tissue Disorders/Ehlers-Danlos Syndrome
  3. Fibromyalgia
  4. Fungal Infection (Yeast, Candida)
  5. Lyme Disease and Co-Infections
  6. Mast Cell Disorders/Mastocytosis
  7. Multiple Sclerosis
  8. Thyroid Dysfunction
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2 schools of thought you will encounter with MCAS

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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Book: Polishing God's Monuments: A story of severe ME and the Christian response to suffering

In Memory of ...

In Memory of ...

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In Memory of Brigitte

Miscellaneous Resources, Projects, and Archives

Resources, Projects, and Archives

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  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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CFS/ME Good Doctor List

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