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Phoenix Rising ME / CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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Emerge Australia ME/CFS International Research Symposium March 12-15, 2019

News and Research

ME/CFS and other health news and research
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214,026
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Phoenix Rising Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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Dr David Tuller: The CDC's pathetic response to Reuters
  • Diwi9

Advocacy and Fundraising

Advocacy, fundraising and petitions
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  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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URGENT ADVOCACY ACTION! House FY20 Funding Requests

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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Jen Brea on whether some of us might be mis-diagnosed EDS patients.

Symptoms and Treatments

Symptoms

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  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological/Neuro-sensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth, and Nails
  13. General Symptoms
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How to understand the mechanism of chronic diseases of the digestive system?

Treatment and Therapy

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Sub-forums:
  1. General Treatment
  2. Addressing Biotoxin, Chemical & Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Detox: Methylation; B12; Glutathione; Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance; POTS
  9. Rituximab: News and Research
  10. The Gut: De Meirleir & Maes; H2S; Leaky Gut
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12,146
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Carnivore Diet for ME?
  • Lolo

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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SF Bay Area Primary Care Doctor Recommendations
  • Ejw18

Alternative, Co-existing, or Missed Diagnoses

Alternative, Co-existing or Missed Diagnoses

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Sub-forums:
  1. Adrenal Dysfunction
  2. Connective Tissue Disorders/Ehlers-Danlos Syndrome
  3. Fibromyalgia
  4. Fungal Infection (Yeast, Candida)
  5. Lyme Disease and Co-Infections
  6. Mast Cell Disorders/Mastocytosis
  7. Multiple Sclerosis
  8. Thyroid Dysfunction
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1,562
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23,826
Provoking Herx as diagnostic tool
  • tooth

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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Planning for 'the future' - contingencies and such
  • Mary

In Memory of ... .

In Memory of ...

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55
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Threads
55
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In Memory of JBoneske

Miscellaneous Resources, Projects, and Archives

Resources, Projects, and Archives

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  1. Information and Resources
  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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Wheelchair Training Guide

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