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Phoenix Rising ME / CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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246
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5,914
Threads
246
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5,914
CDC ME/CFS Stakeholder Conference Call June 3, 2019 - POST-CALL DISCUSSION

News and Research

ME/CFS and other health news and research
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13,175
Messages
215,822
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Phoenix Rising Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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215,822
Fatigue in primary Sjögren's syndrome: A proteomic pilot study of cerebrospinal fluid

Advocacy and Fundraising

Advocacy, fundraising and petitions
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58,752
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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2,960
Messages
58,752
Who to contact to get an FMT clinical trial with high quality donors?

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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3,828
Messages
81,129
Threads
3,828
Messages
81,129
Poll about whether you have got better or worse
  • PatJ

Symptoms and Treatments

Symptoms

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Messages
75,333
Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological/Neuro-sensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth, and Nails
  13. General Symptoms
Threads
4,452
Messages
75,333
Well...I wasn’t diagnosed with depression

Treatment and Therapy

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12,264
Messages
217,382
Sub-forums:
  1. General Treatment
  2. Addressing Biotoxin, Chemical & Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Detox: Methylation; B12; Glutathione; Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance; POTS
  9. Rituximab: News and Research
  10. The Gut: De Meirleir & Maes; H2S; Leaky Gut
Threads
12,264
Messages
217,382
Methylation completely stopped working...Can’t find the missing cofactor.

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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1,832
Messages
26,063
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
Threads
1,832
Messages
26,063
Mild, bizarre symptoms

Alternative, Co-existing, or Missed Diagnoses

Alternative, Co-existing or Missed Diagnoses

Threads
1,576
Messages
24,193
Sub-forums:
  1. Adrenal Dysfunction
  2. Connective Tissue Disorders/Ehlers-Danlos Syndrome
  3. Fibromyalgia
  4. Fungal Infection (Yeast, Candida)
  5. Lyme Disease and Co-Infections
  6. Mast Cell Disorders/Mastocytosis
  7. Multiple Sclerosis
  8. Thyroid Dysfunction
Threads
1,576
Messages
24,193
Tracking CCI / AAI MRI & Treatment outcomes

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,433
Messages
25,520
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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1,433
Messages
25,520
Something to Ponder

In Memory of ...

In Memory of ...

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57
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1,281
Threads
57
Messages
1,281
In Memory of Brigitte

Miscellaneous Resources, Projects, and Archives

Resources, Projects, and Archives

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59,128
Sub-forums:
  1. Information and Resources
  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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2,221
Messages
59,128
CFS/ME Good Doctor List

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