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    Phoenix Rising is an online discussion forum and community for patients with the illness myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). You are invited to join Phoenix Rising if you have ME/CFS, suspect you may have it, or have been diagnosed with an ME/CFS-like condition such as dysautonomia, MCAS, fibromyalgia or Long COVID, which you think might be ME/CFS-related.

    If you are a caregiver of an ME/CFS patient, a researcher, a journalist, a physician or other medical professional, you are also welcome to join the forum, provided you plan to post about ME/CFS issues. Generally we do not allow people to join the forum to post about health issues unrelated to ME/CFS; this is in order to keep this forum focused on ME/CFS and its related conditions.

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Phoenix Rising ME/CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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Dr Ros Vallings speaking in Auckland, New Zealand: 11th February 2021

News and Research

ME/CFS and other health news and research
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227,581
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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An Isolated Complex V Inefficiency and Dysregulated Mitochondrial Function in Immortalized Lymphocytes from ME/CFS patients 9/2019

Advocacy and Fundraising

Advocacy, fundraising and petitions
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  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
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  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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Germany: ME/CFS in Germany

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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Threads
4,561
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90,449
Has anyone had a Covid vaccine yet?
  • Mary

Symptoms and Treatments

Symptoms

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  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological & Neurosensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth and Nails
  13. General Symptoms
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Questioning Tattoos and the Immune System

Treatment and Therapy

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Sub-forums:
  1. General Treatment
  2. Mold, Biotoxins, Chemical/Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Methylation, B12, Glutathione, Detox and Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance, POTS
  9. Rituximab: News and Research
  10. The Gut: IBS, SIBO, Leaky Gut, Gastroparesis
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13,067
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Undermethylated - bad reaction to sam-e

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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Does anyone know any good doctors in Chicagoland area?

Comorbid Conditions / Differential Diagnoses

Comorbid Conditions

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Sub-forums:
  1. Connective Tissue Disorders: EDS, CCI
  2. Mast Cell Activation Syndrome
  3. Lyme Disease and Co-Infections
  4. Fibromyalgia
  5. Thyroid Dysfunction
  6. Adrenal Dysfunction
  7. Fungal Infection (Yeast, Candida)
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1,711
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29,787
Irritable Bowel Syndrome caused by MCAS? New report.

Differential Diagnoses

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45
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244
Sub-forums:
  1. Multiple Sclerosis
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45
Messages
244
I think i might have encephalitis lethargica.

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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CPET Test for disability?

In Memory of ...

In Memory of ...

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63
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Threads
63
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1,341
In Memory of Patrick Johnson "PatJ"

Miscellaneous

Resources, Projects, and Archives

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  1. Google Site Search
  2. Supplement Shopping Search
  3. Information and Resources
  4. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  5. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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What happened to Healthrising blog??

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