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Phoenix Rising ME / CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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246
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5,891
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246
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CDC ME/CFS Stakeholder Conference Call June 3, 2019

News and Research

ME/CFS and other health news and research
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13,114
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215,377
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Phoenix Rising Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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Intelligence, Emotional Sensitivities and Implications on Immune System

Advocacy and Fundraising

Advocacy, fundraising and petitions
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2,951
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58,731
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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58,731
More exciting happenings during May Momentum
  • Ben H

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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3,796
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80,073
Threads
3,796
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80,073
My ME is in remission
  • Hip

Symptoms and Treatments

Symptoms

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Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological/Neuro-sensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth, and Nails
  13. General Symptoms
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4,420
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74,941
All Things Adrenals: supplements, cortisone, testing, tapering, etc.

Treatment and Therapy

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12,232
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216,816
Sub-forums:
  1. General Treatment
  2. Addressing Biotoxin, Chemical & Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Detox: Methylation; B12; Glutathione; Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance; POTS
  9. Rituximab: News and Research
  10. The Gut: De Meirleir & Maes; H2S; Leaky Gut
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12,232
Messages
216,816
Benzodiazapines

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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1,824
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25,976
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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1,824
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Thoughts and experiences of having an FDG PET

Alternative, Co-existing, or Missed Diagnoses

Alternative, Co-existing or Missed Diagnoses

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1,571
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24,030
Sub-forums:
  1. Adrenal Dysfunction
  2. Connective Tissue Disorders/Ehlers-Danlos Syndrome
  3. Fibromyalgia
  4. Fungal Infection (Yeast, Candida)
  5. Lyme Disease and Co-Infections
  6. Mast Cell Disorders/Mastocytosis
  7. Multiple Sclerosis
  8. Thyroid Dysfunction
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1,571
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24,030
Tracking CCI / AAI MRI & Treatment outcomes

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,430
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25,416
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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25,416
THE CHRONIC ELEPHANT'S SURVIVAL GUIDE TO ' FLARE- UP' DAYS

In Memory of ...

In Memory of ...

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56
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1,277
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56
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In Memory of Shawn Kregan (SK2018)

Miscellaneous Resources, Projects, and Archives

Resources, Projects, and Archives

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Sub-forums:
  1. Information and Resources
  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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CFS/ME Good Doctor List

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