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    The Phoenix Rising forums are for patients with myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). Those who have this illness, or suspect they might have it, are welcome to register.

    If you are a caregiver, researcher, physician or other medical professional you are also welcome to join the forum, as long as you plan to post about ME/CFS.

    We do not allow people to join the forum to post about health issues unrelated to ME/CFS; this is in order to keep our forum focused on ME/CFS.

    If you are a researcher looking for study participants, please contact a moderator prior to posting on the forum.

    Please read our forum rules prior to posting.

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Phoenix Rising ME/CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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271
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6,231
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271
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CDC ME/CFS Stakeholder Conference Call September 23, 2020

News and Research

ME/CFS and other health news and research
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14,031
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225,443
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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225,443
Long Covid: Summary of discussions

Advocacy and Fundraising

Advocacy, fundraising and petitions
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3,032
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59,253
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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3,032
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59,253
Germany petition: ME patients need research and medical care!

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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4,378
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87,371
Threads
4,378
Messages
87,371
Blood and Calcium

Symptoms and Treatments

Symptoms

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4,793
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80,568
Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological & Neurosensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth and Nails
  13. General Symptoms
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4,793
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80,568
I think Earthing cured my dysautonomia/POTS
  • Hip

Treatment and Therapy

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12,849
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226,846
Sub-forums:
  1. General Treatment
  2. Mold, Biotoxins, Chemical/Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Methylation, B12, Glutathione, Detox and Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance, POTS
  9. Rituximab: News and Research
  10. The Gut: IBS, SIBO, Leaky Gut, Gastroparesis
Threads
12,849
Messages
226,846
Treatment for shortness of breath?

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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1,930
Messages
27,227
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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1,930
Messages
27,227
Looking for a CFS doctor in Eugene Oregon

Comorbid Conditions / Differential Diagnoses

Comorbid Conditions

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1,677
Messages
29,183
Sub-forums:
  1. Connective Tissue Disorders: EDS, CCI
  2. Mast Cell Activation Syndrome
  3. Lyme Disease and Co-Infections
  4. Fibromyalgia
  5. Thyroid Dysfunction
  6. Adrenal Dysfunction
  7. Fungal Infection (Yeast, Candida)
Threads
1,677
Messages
29,183
has anyone used a saunders cervical traction device?

Differential Diagnoses

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42
Messages
201
Sub-forums:
  1. Multiple Sclerosis
Threads
42
Messages
201
Guillian Barr anyone?

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,500
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26,444
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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1,500
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26,444
Positive aspects of being ill

In Memory of ...

In Memory of ...

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61
Messages
1,305
Threads
61
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1,305
Hangininthere/Patti J.

Miscellaneous

Resources, Projects, and Archives

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2,224
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59,141
Sub-forums:
  1. Google Site Search
  2. Supplement Shopping Search
  3. Information and Resources
  4. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  5. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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2,224
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59,141
A study at the rise of Parkinson's

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