• Planning to Register on Phoenix Rising?

    Phoenix Rising is an online discussion forum and community for patients with the illness myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). You are invited to join Phoenix Rising if you have ME/CFS, suspect you may have it, or have been diagnosed with an ME/CFS-like condition such as dysautonomia, MCAS, fibromyalgia or Long COVID, which you think might be ME/CFS-related.

    If you are a caregiver of an ME/CFS patient, a researcher, a journalist, a physician or other medical professional, you are also welcome to join the forum, provided you plan to post about ME/CFS issues. Generally we do not allow people to join the forum to post about health issues unrelated to ME/CFS; this is in order to keep this forum focused on ME/CFS and its related conditions.

    To register an account, press the Register button at top right.

    If you join Phoenix Rising, please read our forum rules before posting.

    If you are a researcher looking for study participants, please contact a moderator prior to posting on the forum.

Phoenix Rising ME/CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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277
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6,261
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277
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An evening with Jennifer Brea and Megan Moodie – Talking about chronic illness, care, and Covid – January 14, 2021

News and Research

ME/CFS and other health news and research
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14,165
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226,854
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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Nitric oxide nasal spray for covid-19
  • Hip

Advocacy and Fundraising

Advocacy, fundraising and petitions
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59,331
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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Tweet Elon Musk and ask him to fund Vtose for ME

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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4,520
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89,749
Threads
4,520
Messages
89,749
You probably have an autoimmune disease...

Symptoms and Treatments

Symptoms

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Messages
81,880
Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological & Neurosensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth and Nails
  13. General Symptoms
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4,896
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81,880
Glutathione causing anxiety/irritability

Treatment and Therapy

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13,024
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230,429
Sub-forums:
  1. General Treatment
  2. Mold, Biotoxins, Chemical/Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Methylation, B12, Glutathione, Detox and Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance, POTS
  9. Rituximab: News and Research
  10. The Gut: IBS, SIBO, Leaky Gut, Gastroparesis
Threads
13,024
Messages
230,429
Betahistine

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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1,965
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Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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1,965
Messages
27,542
What autoantibodies and ANAs tests should I do?

Comorbid Conditions / Differential Diagnoses

Comorbid Conditions

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1,701
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Sub-forums:
  1. Connective Tissue Disorders: EDS, CCI
  2. Mast Cell Activation Syndrome
  3. Lyme Disease and Co-Infections
  4. Fibromyalgia
  5. Thyroid Dysfunction
  6. Adrenal Dysfunction
  7. Fungal Infection (Yeast, Candida)
Threads
1,701
Messages
29,583
Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS

Differential Diagnoses

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44
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233
Sub-forums:
  1. Multiple Sclerosis
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44
Messages
233
Postorgasmic Illness Syndrome (POIS)
  • Muon

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,507
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26,594
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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1,507
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26,594
SSDI Resources of Interest

In Memory of ...

In Memory of ...

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62
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1,327
Threads
62
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1,327
In Memory of Patrick Johnson "PatJ"

Miscellaneous

Resources, Projects, and Archives

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Sub-forums:
  1. Google Site Search
  2. Supplement Shopping Search
  3. Information and Resources
  4. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  5. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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2,225
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59,145
What happened to Healthrising blog??

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