• Planning to Register on Phoenix Rising?

    Phoenix Rising is an online discussion forum and community for patients with the illness myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). You are invited to join Phoenix Rising if you have ME/CFS, suspect you may have it, or have been diagnosed with an ME/CFS-like condition such as dysautonomia, MCAS, fibromyalgia or Long COVID, which you think might be ME/CFS-related.

    If you are a caregiver of an ME/CFS patient, a researcher, a journalist, a physician or other medical professional, you are also welcome to join the forum, provided you plan to post about ME/CFS issues. Generally we do not allow people to join the forum to post about health issues unrelated to ME/CFS; this is in order to keep this forum focused on ME/CFS and its related conditions.

    To register an account, press the Register button at top right.

    If you decide to join Phoenix Rising, please read our forum rules before posting.

    Note that we do not allow spammers on the forum, and we manually vet all new registrations and keep a close eye on forum posts in order to detect and eject spammers. To post links to or promote a business you own or work for, you must first obtain permission from a moderator.

    If you are a researcher looking for study participants, please contact a moderator prior to posting on the forum.

Phoenix Rising ME/CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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291
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Epstein-Barr Virus Management Strategies - Dr. Nik Hedberg

News and Research

ME/CFS and other health news and research
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14,712
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235,390
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Other Health News and Research
  4. Long COVID and Coronavirus
  5. Active Clinical Studies
  6. Articles
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Is Apheresis an effective treatment for Long Covid and ME?

Advocacy and Fundraising

Advocacy, fundraising and petitions
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Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Millions Missing Campaign
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Donations for a trial using BC 007 specifically for me/cfs

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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Threads
4,690
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Are you going ahead with a Booster vaccination?
  • Crux

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,642
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28,005
Sub-forums:
  1. Information and Resources
  2. Lifestyle Management
  3. Finances, Work, and Disability
  4. Spirituality and ME/CFS
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1,642
Messages
28,005
Can anyone recommend a good chair?

Symptoms and Treatments

Symptoms

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5,114
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Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological & Neurosensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth and Nails
  13. General Symptoms
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5,114
Messages
85,634
Coffee for insomnia and restless legs, why ?

Treatment and Therapy

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13,366
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239,021
Sub-forums:
  1. General Treatment
  2. Mold, Biotoxins, Chemical/Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Methylation, B12, Glutathione, Detox and Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance, POTS
  9. Rituximab: News and Research
  10. The Gut: IBS, SIBO, Leaky Gut, Gastroparesis
Threads
13,366
Messages
239,021
LDN - how's it working for you?

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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2,013
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Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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2,013
Messages
27,652
A thoughts on these blood results?

Comorbid Conditions / Differential Diagnoses

Comorbid Conditions

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1,762
Messages
30,513
Sub-forums:
  1. Connective Tissue Disorders: EDS, CCI
  2. Mast Cell Activation Syndrome
  3. Lyme Disease and Co-Infections
  4. Fibromyalgia
  5. Thyroid Dysfunction
  6. Adrenal Dysfunction
  7. Fungal Infection (Yeast, Candida)
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1,762
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30,513
Cusack protocol for EDS—reports from anyone trying it
  • xebex

Differential Diagnoses

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340
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5,786
Sub-forums:
  1. Multiple Sclerosis
  2. Autoimmunity and Autoimmune Diseases
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340
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5,786
You probably have an autoimmune disease...
  • Yuno

In Memory of ...

In Memory of ...

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69
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1,385
Threads
69
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1,385
Graham McPhee (@Graham)

Miscellaneous

Resources, Projects, and Archives

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Sub-forums:
  1. Google Site Search
  2. Supplement Shopping Search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
  5. Content Team Resources
  6. Institute of Medicine (IOM) Government Contract
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Australian ME/CFS Good Doctor List

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