• Phoenix Rising has opened two new sub-forums: Autoimmunity and Autoimmune Diseases and Long COVID and Coronavirus.

  • Planning to Register on Phoenix Rising?

    Phoenix Rising is an online discussion forum and community for patients with the illness myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). You are invited to join Phoenix Rising if you have ME/CFS, suspect you may have it, or have been diagnosed with an ME/CFS-like condition such as dysautonomia, MCAS, fibromyalgia or Long COVID, which you think might be ME/CFS-related.

    If you are a caregiver of an ME/CFS patient, a researcher, a journalist, a physician or other medical professional, you are also welcome to join the forum, provided you plan to post about ME/CFS issues. Generally we do not allow people to join the forum to post about health issues unrelated to ME/CFS; this is in order to keep this forum focused on ME/CFS and its related conditions.

    To register an account, press the Register button at top right.

    If you decide to join Phoenix Rising, please read our forum rules before posting.

    Note that we do not allow spammers on the forum, and we manually vet all new registrations and keep a close eye on forum posts in order to detect and eject spammers. To post links to or promote a business you own or work for, you must first obtain permission from a moderator.

    If you are a researcher looking for study participants, please contact a moderator prior to posting on the forum.

Phoenix Rising ME/CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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6,323
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288
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Oct 23: Advances in Our Understanding of ME/CFS and the Impact of Long Covid

News and Research

ME/CFS and other health news and research
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14,628
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234,481
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Other Health News and Research
  4. Long COVID and Coronavirus
  5. Active Clinical Studies
  6. Articles
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14,628
Messages
234,481
Sept 21 - Stanford Working Group Meeting

Advocacy and Fundraising

Advocacy, fundraising and petitions
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2,728
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51,150
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Millions Missing Campaign
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Christoph's Funding Challenge: Donate to Dr. Maureen Hanson's enterovirus study now! Every bit helps!

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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4,664
Messages
93,075
Threads
4,664
Messages
93,075
Diagnosing Hypoxemia - Any doctors actually think about a problem - first principles?

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,636
Messages
27,909
Sub-forums:
  1. Information and Resources
  2. Lifestyle Management
  3. Finances, Work, and Disability
  4. Spirituality and ME/CFS
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1,636
Messages
27,909
Good locations for low income SSDi ?Environmental Sensitivties
  • Irat

Symptoms and Treatments

Symptoms

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5,098
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85,362
Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological & Neurosensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth and Nails
  13. General Symptoms
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5,098
Messages
85,362
Does Anyone Else Wake Every 1.5 hrs?

Treatment and Therapy

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13,333
Messages
238,394
Sub-forums:
  1. General Treatment
  2. Mold, Biotoxins, Chemical/Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Methylation, B12, Glutathione, Detox and Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance, POTS
  9. Rituximab: News and Research
  10. The Gut: IBS, SIBO, Leaky Gut, Gastroparesis
Threads
13,333
Messages
238,394
THE STAGES OF METHYLATION AND HEALING

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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2,005
Messages
27,598
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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2,005
Messages
27,598
How likely is the presence of enterovirus without GI symptoms?

Comorbid Conditions / Differential Diagnoses

Comorbid Conditions

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1,760
Messages
30,468
Sub-forums:
  1. Connective Tissue Disorders: EDS, CCI
  2. Mast Cell Activation Syndrome
  3. Lyme Disease and Co-Infections
  4. Fibromyalgia
  5. Thyroid Dysfunction
  6. Adrenal Dysfunction
  7. Fungal Infection (Yeast, Candida)
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1,760
Messages
30,468
Vascular Compression: Summary of Discussions

Differential Diagnoses

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339
Messages
5,772
Sub-forums:
  1. Multiple Sclerosis
  2. Autoimmunity and Autoimmune Diseases
Threads
339
Messages
5,772
Has anyone ever been tested for Autoimmune Retinopathy?

In Memory of ...

In Memory of ...

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68
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1,380
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68
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1,380
Rosemary Underhill O'Gorman (1937-2021)

Miscellaneous

Resources, Projects, and Archives

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2,490
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66,990
Sub-forums:
  1. Google Site Search
  2. Supplement Shopping Search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
  5. Content Team Resources
  6. Institute of Medicine (IOM) Government Contract
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2,490
Messages
66,990
Australian ME/CFS Good Doctor List

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