• Planning to Register on Phoenix Rising?

    Phoenix Rising is an online discussion forum and community for patients with the illness myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). You are invited to join Phoenix Rising if you have ME/CFS, suspect you may have it, or have been diagnosed with an ME/CFS-like condition such as dysautonomia, MCAS, fibromyalgia or Long COVID, which you think might be ME/CFS-related.

    If you are a caregiver of an ME/CFS patient, a researcher, a journalist, a physician or other medical professional, you are also welcome to join the forum, provided you plan to post about ME/CFS issues. Generally we do not allow people to join the forum to post about health issues unrelated to ME/CFS; this is in order to keep this forum focused on ME/CFS and its related conditions.

    To register an account, press the Register button at top right.

    If you decide to join Phoenix Rising, please read our forum rules before posting.

    Note that we do not allow spammers on the forum, and we manually vet all new registrations and keep a close eye on forum posts in order to detect and eject spammers. To post links to or promote a business you own or work for, you must first obtain permission from a moderator.

    If you are a researcher looking for study participants, please contact a moderator prior to posting on the forum.

Phoenix Rising ME/CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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IACFS/ME August 2021 Virtual Conference: Register Now!

News and Research

ME/CFS and other health news and research
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232,423
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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14,556
Messages
232,423
Very Severe ME: Are Intimate Relationships Possible?

Advocacy and Fundraising

Advocacy, fundraising and petitions
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3,067
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59,607
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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ME/CFS is a living death--why mortality isnt what matters in illness advocacy

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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4,760
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94,952
Threads
4,760
Messages
94,952
Struggling bad about getting Covid Vaccine

Symptoms and Treatments

Symptoms

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Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological & Neurosensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth and Nails
  13. General Symptoms
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5,091
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85,434
Is Emotional PEM a thing?

Treatment and Therapy

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Sub-forums:
  1. General Treatment
  2. Mold, Biotoxins, Chemical/Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Methylation, B12, Glutathione, Detox and Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance, POTS
  9. Rituximab: News and Research
  10. The Gut: IBS, SIBO, Leaky Gut, Gastroparesis
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Messages
237,832
No PEM after weeks on Valacyclovir

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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2,015
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28,002
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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2,015
Messages
28,002
Lists of ME/CFS doctors

Comorbid Conditions / Differential Diagnoses

Comorbid Conditions

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1,754
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Sub-forums:
  1. Connective Tissue Disorders: EDS, CCI
  2. Mast Cell Activation Syndrome
  3. Lyme Disease and Co-Infections
  4. Fibromyalgia
  5. Thyroid Dysfunction
  6. Adrenal Dysfunction
  7. Fungal Infection (Yeast, Candida)
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1,754
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30,430
My experience with oral ketotifen (powder in capsule).

Differential Diagnoses

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49
Messages
268
Sub-forums:
  1. Multiple Sclerosis
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49
Messages
268
MS DMTs for ME

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,536
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Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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What do you do to find joy and meaning in life?

In Memory of ...

In Memory of ...

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66
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Dr. Paul Cheney has passed away

Miscellaneous

Resources, Projects, and Archives

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  1. Google Site Search
  2. Supplement Shopping Search
  3. Information and Resources
  4. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  5. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
  6. Content Team Resources
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