• Planning to Register?

    Please Note:

    Phoenix Rising forums are primarily for patients with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME/CFS). Caregivers, researchers, physicians, and other medical professionals are welcome to join as long as you plan to post about ME/CFS.

    If you are a researcher looking for study participants, please contact a Moderator prior to posting on the forums.

    Members of the general public who join to post about health issues that are unrelated to ME/CFS will not have their posts accepted and will be asked to find a more appropriate website to ask questions and/or post information. This keeps our forums focused on ME/CFS.

    Please make sure you read our Forum Rules and Forum Guidelines after joining and prior to posting and make sure to introduce yourself in the Introduce Yourself forum.

Phoenix Rising ME / CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

Threads
239
Messages
5,770
Threads
239
Messages
5,770
NIH ME/CFS Telebriefing April 9, 2019

News and Research

ME/CFS and other health news and research
Threads
12,993
Messages
213,953
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Phoenix Rising Articles
  4. Other Health News and Research
  5. Active Clinical Studies
Threads
12,993
Messages
213,953
Prof Brian Hughes:If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you*

Advocacy and Fundraising

Advocacy, fundraising and petitions
Threads
2,932
Messages
58,577
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
Threads
2,932
Messages
58,577
URGENT ADVOCACY ACTION! House FY20 Funding Requests

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
Threads
3,740
Messages
78,760
Threads
3,740
Messages
78,760
Ladies. How common is Vulvodynia in MEcfs ?

Symptoms and Treatments

Symptoms

Threads
4,364
Messages
73,741
Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological/Neuro-sensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth, and Nails
  13. General Symptoms
Threads
4,364
Messages
73,741
Strange nighttime burning smell on hand

Treatment and Therapy

Threads
12,138
Messages
215,233
Sub-forums:
  1. General Treatment
  2. Addressing Biotoxin, Chemical & Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Detox: Methylation; B12; Glutathione; Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance; POTS
  9. Rituximab: News and Research
  10. The Gut: De Meirleir & Maes; H2S; Leaky Gut
Threads
12,138
Messages
215,233
Has vitamin K-2 (mk-4 or mk7) helped you ?

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
Threads
1,810
Messages
25,822
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
Threads
1,810
Messages
25,822
Celltrend and DSY1 lab tests what is the benefit?

Alternative, Co-existing, or Missed Diagnoses

Alternative, Co-existing or Missed Diagnoses

Threads
1,562
Messages
23,823
Sub-forums:
  1. Adrenal Dysfunction
  2. Connective Tissue Disorders/Ehlers-Danlos Syndrome
  3. Fibromyalgia
  4. Fungal Infection (Yeast, Candida)
  5. Lyme Disease and Co-Infections
  6. Mast Cell Disorders/Mastocytosis
  7. Multiple Sclerosis
  8. Thyroid Dysfunction
Threads
1,562
Messages
23,823
Partly recovery + larger muscle groups
  • Hd-x

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
Threads
1,424
Messages
25,243
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
Threads
1,424
Messages
25,243
Something to Ponder

In Memory of ... .

In Memory of ...

Threads
55
Messages
1,233
Threads
55
Messages
1,233
In Memory of JBoneske

Miscellaneous Resources, Projects, and Archives

Resources, Projects, and Archives

Threads
2,221
Messages
59,127
Sub-forums:
  1. Information and Resources
  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
Threads
2,221
Messages
59,127
Wheelchair Training Guide

Donate

Help Keep Phoenix Rising Running!

Donations play a vital role in Phoenix Rising’s support of the ME/CFS community. You do not need to have a Paypal account to make a donation.

Single Donation
Monthly Donation

Did you know?

Show another tip

New Threads

Latest Blog Entries

Staff online

Members online

Total: 195 (members: 27, guests: 168)

Forum statistics

Threads
61,522
Messages
1,120,220
Members
26,112
Latest member
doggerland

Share this page