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    Phoenix Rising is an online discussion forum and community for patients with the illness myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). You are invited to join Phoenix Rising if you have ME/CFS, suspect you may have it, or have been diagnosed with an ME/CFS-like condition such as dysautonomia, MCAS, fibromyalgia or Long COVID, which you think might be ME/CFS-related.

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Phoenix Rising ME/CFS Forums

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News, Research, and Advocacy

ME/CFS Events

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Emmarose47
Bateman Horne Center online support group meetings

News and Research

ME/CFS and other health news and research
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  5. Active Clinical Studies
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A
Strikingly Positive' Effect of Novel MS Agent. Has anyone tried it on ME/CFS?

Advocacy

Advocacy, fundraising and petitions
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  1. Action Alerts and Advocacy
    1. Advocacy Projects
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T
My first cousin once removed, Lyra Chan, is raising money for the (UK) ME Association

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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pattismith
Anyone with Coronary microvascular dysfunction (CMD)?

Symptoms and Treatments

Symptoms

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  1. General Symptoms
  2. Post-Exertional Malaise and Fatigue
  3. Pain and Soreness
  4. Neurological and Sensory Sensitivity
  5. Cognition, Brain fog, and Emotion
  6. Sleep
  7. Peripheral Neuropathy & SFN
  8. Immunology, Inflammation, Allergies
  9. Hypersensitivity, Intolerance, MCS
  10. Dysautonomia: Problems Standing, OI, POTS
  11. Dysautonomia: Cardiovascular, Respiratory, etc.
  12. Hormones, HPA axis, etc.
  13. Gastrointestinal: IBS, SIBO & Urinary
  14. Skeleton, Skin, Hair, Teeth, and Nails
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V
Alcohol potentiates orthostatic hyptension

Treatment

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  2. Antivirals, Antibiotics and Immune Modulators
    1. GcMAF
    2. Rituximab: News and Research
  3. Methylation, B12, Glutathione, etc.
  4. Hypersensitivity/MCS Treatment
  5. Gastrointestinal Treatment
  6. Alternative Therapies
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heapsreal
Effectiveness against CMV

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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  4. Disease Onset and Progression
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Lovalab
USA alert tomorrow

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
  3. Genetic Testing and SNPs
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LamzyDivey
Doctor in Maryland?

Related Conditions

Comorbid Conditions, Differential Diagnoses, etc.

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  1. Fibromyalgia
  2. Lyme and Bacterial Infections
  3. Viral Infections
  4. Fungal Infection (Yeast, Candida, Mold)
  5. Mast Cell Activation (MCAS)
  6. Connective Tissue Disorders: Collagen, EDS, CCI
  7. Thyroid Dysfunction
  8. Adrenal Dysfunction
  9. Multiple Sclerosis
  10. Autoimmunity and Autoimmune Diseases
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40.6K
S
Very Severe Case - Please Help

In Memory of ...

In Memory of ...

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75
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Gingergrrl
In memory of Jim Ellsworth, aka jimells

Miscellaneous

Resources, Projects, and Archives

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    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
  3. Content Team Resources
  4. Institute of Medicine (IOM) Government Contract
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L
Ampligen Experiences

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