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Phoenix Rising ME / CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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262
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NIH ME/CFS Public Lecture April 22, 2020 -- Videocast

News and Research

ME/CFS and other health news and research
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219,295
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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Connecting CFS/Dysautonomia/Cranial Instability/EDS/Mast Cell/Autoimmunity

Advocacy and Fundraising

Advocacy, fundraising and petitions
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Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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59,063
ME awareness hour

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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4,111
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86,083
Threads
4,111
Messages
86,083
Elevated Vitamin D 1,25 Dihydroxy and Low Vitamin D, 25-OH

Symptoms and Treatments

Symptoms

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  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological/Neuro-sensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth, and Nails
  13. General Symptoms
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4,632
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77,990
Other connective tissue illnesses (beside EDS) w CFS?

Treatment and Therapy

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12,516
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221,596
Sub-forums:
  1. General Treatment
  2. Addressing Biotoxin, Chemical & Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Detox: Methylation; B12; Glutathione; Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance; POTS
  9. Rituximab: News and Research
  10. The Gut: De Meirleir & Maes; H2S; Leaky Gut
Threads
12,516
Messages
221,596
EBV test positive for ME

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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1,883
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My experience with KDM and Lyme

Alternative, Co-existing, or Missed Diagnoses

Alternative, Co-existing or Missed Diagnoses

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1,634
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25,026
Sub-forums:
  1. Adrenal Dysfunction
  2. Connective Tissue Disorders/Ehlers-Danlos Syndrome
  3. Fibromyalgia
  4. Fungal Infection (Yeast, Candida)
  5. Lyme Disease and Co-Infections
  6. Mast Cell Disorders/Mastocytosis
  7. Multiple Sclerosis
  8. Thyroid Dysfunction
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1,634
Messages
25,026
New study to try to identify a genetic marker for hEDS

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,470
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26,011
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  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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26,011
Biofield Healing

In Memory of ...

In Memory of ...

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59
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1,289
Threads
59
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1,289
In memory of anonymous victims of ME

Miscellaneous Resources, Projects, and Archives

Resources, Projects, and Archives

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  1. Information and Resources
  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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German study finds xmrv

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