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    The Phoenix Rising forums are for patients with myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). Those who have this illness, or suspect they might have it, are welcome to register.

    If you are a caregiver, researcher, physician or other medical professional you are also welcome to join the forum, as long as you plan to post about ME/CFS.

    We do not allow people to join the forum to post about health issues unrelated to ME/CFS; this is in order to keep our forum focused on ME/CFS.

    If you are a researcher looking for study participants, please contact a moderator prior to posting on the forum.

    Please read our forum rules prior to posting.

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Phoenix Rising ME/CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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269
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13th IACFS/ME Conference June 10-13, 2020 New York Cancelled

News and Research

ME/CFS and other health news and research
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223,440
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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Is there a summary or list of brain effects?
  • PatJ

Advocacy and Fundraising

Advocacy, fundraising and petitions
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Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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Senate Action! Deadline Monday May 25

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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4,231
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85,166
Threads
4,231
Messages
85,166
Is there a safe exercise-free weight loss diet for people with ME?

Symptoms and Treatments

Symptoms

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Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological & Neurosensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth and Nails
  13. General Symptoms
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Heart beat feeling like it is pounding very hard...feeling and hearing each beat

Treatment and Therapy

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12,653
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223,304
Sub-forums:
  1. General Treatment
  2. Mold, Biotoxins, Chemical/Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Methylation, B12, Glutathione, Detox and Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance, POTS
  9. Rituximab: News and Research
  10. The Gut: IBS, SIBO, Leaky Gut, Gastroparesis
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12,653
Messages
223,304
Gene Therapy to Eradicate Herpesviruses

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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1,903
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26,761
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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1,903
Messages
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Best tests for ME?

Comorbid Conditions / Differential Diagnoses

Comorbid Conditions

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1,660
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Sub-forums:
  1. Connective Tissue Disorders: EDS, CCI
  2. Mast Cell Activation Syndrome
  3. Lyme Disease and Co-Infections
  4. Fibromyalgia
  5. Thyroid Dysfunction
  6. Adrenal Dysfunction
  7. Fungal Infection (Yeast, Candida)
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1,660
Messages
28,921
Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS

Differential Diagnoses

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41
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198
Sub-forums:
  1. Multiple Sclerosis
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41
Messages
198
Misdiagnosed MS as ME/CFS?

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,484
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26,273
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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1,484
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26,273
Aust DSP living with partner query (pls help! :D)

In Memory of ...

In Memory of ...

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60
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1,292
Threads
60
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1,292
In Memory of Tink Bastian

Miscellaneous

Resources, Projects, and Archives

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Sub-forums:
  1. Information and Resources
  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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2,223
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59,139
A study at the rise of Parkinson's

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