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Phoenix Rising ME / CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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246
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5,918
Threads
246
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Emerge Australia ME/CFS International Research Symposium March 12-15, 2019

News and Research

ME/CFS and other health news and research
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13,201
Messages
216,015
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Phoenix Rising Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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216,015
Validation of impaired Transient Receptor Potential Melastatin 3 ion channel activity in natural killer cells from ME/CFS patients

Advocacy and Fundraising

Advocacy, fundraising and petitions
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2,960
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58,770
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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2,960
Messages
58,770
Who to contact to get an FMT clinical trial with high quality donors?
  • suevu

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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3,835
Messages
81,263
Threads
3,835
Messages
81,263
Rx Sleeping meds to seek/avoid

Symptoms and Treatments

Symptoms

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Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological/Neuro-sensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth, and Nails
  13. General Symptoms
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4,455
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75,402
Do you have thumb hyperextension?

Treatment and Therapy

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12,270
Messages
217,497
Sub-forums:
  1. General Treatment
  2. Addressing Biotoxin, Chemical & Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Detox: Methylation; B12; Glutathione; Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance; POTS
  9. Rituximab: News and Research
  10. The Gut: De Meirleir & Maes; H2S; Leaky Gut
Threads
12,270
Messages
217,497
NAC & sulphur

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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1,835
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Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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1,835
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26,077
Doctors in and around London, UK

Alternative, Co-existing, or Missed Diagnoses

Alternative, Co-existing or Missed Diagnoses

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1,580
Messages
24,259
Sub-forums:
  1. Adrenal Dysfunction
  2. Connective Tissue Disorders/Ehlers-Danlos Syndrome
  3. Fibromyalgia
  4. Fungal Infection (Yeast, Candida)
  5. Lyme Disease and Co-Infections
  6. Mast Cell Disorders/Mastocytosis
  7. Multiple Sclerosis
  8. Thyroid Dysfunction
Threads
1,580
Messages
24,259
Current fav MCAS med: Phenibut

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,435
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25,555
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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1,435
Messages
25,555
How many years before you had to quit work?

In Memory of ...

In Memory of ...

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57
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1,281
Threads
57
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1,281
In Memory of Brigitte

Miscellaneous Resources, Projects, and Archives

Resources, Projects, and Archives

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Sub-forums:
  1. Information and Resources
  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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2,221
Messages
59,128
CFS/ME Good Doctor List

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