• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Phoenix Rising ME/CFS Forums

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News, Research, and Advocacy

ME/CFS Events

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Oct. 24th 2023 Webinar: Infection Associated Chronic Conditions - Patient Advocacy Coalition Initiative - IACCPAC

News and Research

ME/CFS and other health news and research
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Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Other Health News and Research
  4. Long COVID and Coronavirus
  5. Active Clinical Studies
  6. Phoenix Rising Articles
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Catalytic Antibodies May Contribute to Demyelination in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Advocacy

Advocacy, fundraising and petitions
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  1. Action Alerts and Advocacy
    1. Advocacy Projects
    2. Millions Missing Campaign
  2. Petitions
  3. Fundraising
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Judee
Insurance company (United Healthcare) hardball tactics

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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Threads
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sometexan84
TMW You get banned from a me/cfs subreddit for speaking on misdiagnosis and "recovery/cure" stories

Symptoms and Treatments

Symptoms

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  1. General Symptoms
  2. Post-Exertional Malaise and Fatigue
  3. Pain and Soreness
  4. Neurological and Sensory Sensitivity
  5. Cognition, Brain fog, and Emotion
  6. Sleep
  7. Peripheral Neuropathy & SFN
  8. Immunology, Inflammation, Allergies
  9. Hypersensitivity, Intolerance, MCS
  10. Dysautonomia: Problems Standing, OI, POTS
  11. Dysautonomia: Cardiovascular, Respiratory, etc.
  12. Hormones, HPA axis, etc.
  13. Gastrointestinal: IBS, SIBO & Urinary
  14. Skeleton, Skin, Hair, Teeth, and Nails
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Slushiefan
Filgotinib case studies

Treatment

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Sub-forums:
  1. General Treatment
  2. Antivirals, Antibiotics and Immune Modulators
    1. GcMAF
    2. Rituximab: News and Research
  3. Methylation, B12, Glutathione, etc.
  4. Hypersensitivity/MCS Treatment
  5. Gastrointestinal Treatment
  6. Alternative Therapies
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12.5K
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229.8K
serg1942
Update on my "anti-purinergic journey" & sharing my new therapy of negative voltage

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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Sub-forums:
  1. Information and Resources
  2. Lifestyle Management
  3. Finances, Work, and Disability
  4. Disease Onset and Progression
  5. Spirituality and ME/CFS
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V
How do you cook your legumes?

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
  3. Genetic Testing and SNPs
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godlovesatrier
Dr Bansal consultation

Related Conditions

Comorbid Conditions, Differential Diagnoses, etc.

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40.7K
Sub-forums:
  1. Fibromyalgia
  2. Lyme and Bacterial Infections
  3. Viral Infections
  4. Fungal Infection (Yeast, Candida, Mold)
  5. Mast Cell Activation (MCAS)
  6. Connective Tissue Disorders: Collagen, EDS, CCI
  7. Thyroid Dysfunction
  8. Adrenal Dysfunction
  9. Multiple Sclerosis
  10. Autoimmunity and Autoimmune Diseases
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40.7K
linusbert
Story: After long lyme disease when patient was ready to die this happend...

In Memory of ...

In Memory of ...

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75
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Threads
75
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Gingergrrl
In memory of Jim Ellsworth, aka jimells

Miscellaneous

Resources, Projects, and Archives

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  1. Google Site Search
  2. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
  3. Content Team Resources
  4. Institute of Medicine (IOM) Government Contract
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L
Ampligen Experiences

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