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Phoenix Rising ME/CFS Forums

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News, Research, and Advocacy

ME/CFS Events

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Emmarose47
Bateman Horne Center online support group meetings

News and Research

ME/CFS and other health news and research
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  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Other Health News and Research
  4. Long COVID and Coronavirus
  5. Active Clinical Studies
  6. Phoenix Rising Articles
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Treeman
Some decades back, 1990 “Scientists Identify virus causing fatigue in ME“

Advocacy

Advocacy, fundraising and petitions
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  1. Action Alerts and Advocacy
    1. Advocacy Projects
    2. Millions Missing Campaign
  2. Petitions
  3. Fundraising
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T
My first cousin once removed, Lyra Chan, is raising money for the (UK) ME Association

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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Andrew
Much worse following bone marrow biopsy

Symptoms and Treatments

Symptoms

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  1. General Symptoms
  2. Post-Exertional Malaise and Fatigue
  3. Pain and Soreness
  4. Neurological and Sensory Sensitivity
  5. Cognition, Brain fog, and Emotion
  6. Sleep
  7. Peripheral Neuropathy & SFN
  8. Immunology, Inflammation, Allergies
  9. Hypersensitivity, Intolerance, MCS
  10. Dysautonomia: Problems Standing, OI, POTS
  11. Dysautonomia: Cardiovascular, Respiratory, etc.
  12. Hormones, HPA axis, etc.
  13. Gastrointestinal: IBS, SIBO & Urinary
  14. Skeleton, Skin, Hair, Teeth, and Nails
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G
petrified of glioma

Treatment

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  1. General Treatment
  2. Antivirals, Antibiotics and Immune Modulators
    1. GcMAF
    2. Rituximab: News and Research
  3. Methylation, B12, Glutathione, etc.
  4. Hypersensitivity/MCS Treatment
  5. Gastrointestinal Treatment
  6. Alternative Therapies
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12.4K
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SWAlexander
Methylation Question

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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  1. Information and Resources
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  3. Finances, Work, and Disability
  4. Disease Onset and Progression
  5. Spirituality and ME/CFS
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Strawberry
Anyone try a Fold & Go Chair?

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
  3. Genetic Testing and SNPs
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wastwater
Holy lab results, Batman! B6, NK cells, Histamine, oh my!

Related Conditions

Comorbid Conditions, Differential Diagnoses, etc.

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2.3K
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40.6K
Sub-forums:
  1. Fibromyalgia
  2. Lyme and Bacterial Infections
  3. Viral Infections
  4. Fungal Infection (Yeast, Candida, Mold)
  5. Mast Cell Activation (MCAS)
  6. Connective Tissue Disorders: Collagen, EDS, CCI
  7. Thyroid Dysfunction
  8. Adrenal Dysfunction
  9. Multiple Sclerosis
  10. Autoimmunity and Autoimmune Diseases
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2.3K
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40.6K
Belle21
You probably have an autoimmune disease...

In Memory of ...

In Memory of ...

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75
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75
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Gingergrrl
In memory of Jim Ellsworth, aka jimells

Miscellaneous

Resources, Projects, and Archives

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  1. Google Site Search
  2. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
  3. Content Team Resources
  4. Institute of Medicine (IOM) Government Contract
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L
Ampligen Experiences

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