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Phoenix Rising ME / CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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246
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5,895
Threads
246
Messages
5,895
NIH's "Accelerating Research on ME/CFS" Conference April 4-5, 2019 - livestreaming

News and Research

ME/CFS and other health news and research
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13,120
Messages
215,412
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Phoenix Rising Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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13,120
Messages
215,412
Jennifer, whose story was told in the Daily Mail this week, has passed away, aged 31 years old.

Advocacy and Fundraising

Advocacy, fundraising and petitions
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2,952
Messages
58,733
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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2,952
Messages
58,733
OMF "Keeping the Hope" Song Release

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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3,799
Messages
80,382
Threads
3,799
Messages
80,382
Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS

Symptoms and Treatments

Symptoms

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4,423
Messages
74,999
Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological/Neuro-sensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth, and Nails
  13. General Symptoms
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4,423
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74,999
Ph, acidity, achiness, fatigue, baking soda, high BP - is lemon juice the answer?
  • Mary

Treatment and Therapy

Threads
12,241
Messages
216,927
Sub-forums:
  1. General Treatment
  2. Addressing Biotoxin, Chemical & Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Detox: Methylation; B12; Glutathione; Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance; POTS
  9. Rituximab: News and Research
  10. The Gut: De Meirleir & Maes; H2S; Leaky Gut
Threads
12,241
Messages
216,927
BPC-157

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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1,824
Messages
25,979
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
Threads
1,824
Messages
25,979
MGH or Brigham & Women's Experience?
  • Mel9

Alternative, Co-existing, or Missed Diagnoses

Alternative, Co-existing or Missed Diagnoses

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1,573
Messages
24,070
Sub-forums:
  1. Adrenal Dysfunction
  2. Connective Tissue Disorders/Ehlers-Danlos Syndrome
  3. Fibromyalgia
  4. Fungal Infection (Yeast, Candida)
  5. Lyme Disease and Co-Infections
  6. Mast Cell Disorders/Mastocytosis
  7. Multiple Sclerosis
  8. Thyroid Dysfunction
Threads
1,573
Messages
24,070
Tracking CCI / AAI MRI & Treatment outcomes

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
Threads
1,431
Messages
25,418
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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1,431
Messages
25,418
THE CHRONIC ELPHANT DOES A ( REALLY HELPFUL) MINDNESS COURSE

In Memory of ...

In Memory of ...

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56
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1,277
Threads
56
Messages
1,277
In Memory of Shawn Kregan (SK2018)

Miscellaneous Resources, Projects, and Archives

Resources, Projects, and Archives

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59,128
Sub-forums:
  1. Information and Resources
  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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2,221
Messages
59,128
CFS/ME Good Doctor List

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