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Phoenix Rising ME / CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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246
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Threads
246
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CDC ME/CFS Stakeholder Conference Call June 3, 2019 - POST-CALL DISCUSSION

News and Research

ME/CFS and other health news and research
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13,166
Messages
215,762
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Phoenix Rising Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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Microorganisms in the Soil Found to Have Anti-Inflammatory Fat Regulating Properties
  • Wally

Advocacy and Fundraising

Advocacy, fundraising and petitions
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Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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58,749
New video: Children with ME

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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3,825
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81,043
Threads
3,825
Messages
81,043
Neck pain, spasms CCI or ligament instability?

Symptoms and Treatments

Symptoms

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Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological/Neuro-sensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth, and Nails
  13. General Symptoms
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4,448
Messages
75,297
Ejection fraction question

Treatment and Therapy

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12,255
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217,279
Sub-forums:
  1. General Treatment
  2. Addressing Biotoxin, Chemical & Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Detox: Methylation; B12; Glutathione; Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance; POTS
  9. Rituximab: News and Research
  10. The Gut: De Meirleir & Maes; H2S; Leaky Gut
Threads
12,255
Messages
217,279
Methylation completely stopped working...Can’t find the missing cofactor.

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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1,831
Messages
26,056
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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1,831
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Mild, bizarre symptoms

Alternative, Co-existing, or Missed Diagnoses

Alternative, Co-existing or Missed Diagnoses

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1,575
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24,149
Sub-forums:
  1. Adrenal Dysfunction
  2. Connective Tissue Disorders/Ehlers-Danlos Syndrome
  3. Fibromyalgia
  4. Fungal Infection (Yeast, Candida)
  5. Lyme Disease and Co-Infections
  6. Mast Cell Disorders/Mastocytosis
  7. Multiple Sclerosis
  8. Thyroid Dysfunction
Threads
1,575
Messages
24,149
Tracking CCI / AAI MRI & Treatment outcomes

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1,433
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25,489
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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1,433
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25,489
SSDI hearing judge questioned why I couldn't work

In Memory of ...

In Memory of ...

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56
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1,277
Threads
56
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1,277
In Memory of Shawn Kregan (SK2018)

Miscellaneous Resources, Projects, and Archives

Resources, Projects, and Archives

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Sub-forums:
  1. Information and Resources
  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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2,221
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59,128
CFS/ME Good Doctor List

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