• Planning to Register?

    Please Note:

    Phoenix Rising forums are primarily for patients with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME/CFS). Caregivers, researchers, physicians, and other medical professionals are welcome to join as long as you plan to post about ME/CFS.

    If you are a researcher looking for study participants, please contact a Moderator prior to posting on the forums.

    Members of the general public who join to post about health issues that are unrelated to ME/CFS will not have their posts accepted and will be asked to find a more appropriate website to ask questions and/or post information. This keeps our forums focused on ME/CFS.

    Please make sure you read our Forum Rules and Forum Guidelines after joining and prior to posting and make sure to introduce yourself in the Introduce Yourself forum.

Phoenix Rising ME / CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

Threads
246
Messages
5,914
Threads
246
Messages
5,914
CDC ME/CFS Stakeholder Conference Call June 3, 2019 - POST-CALL DISCUSSION

News and Research

ME/CFS and other health news and research
Threads
13,167
Messages
215,767
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Phoenix Rising Articles
  4. Other Health News and Research
  5. Active Clinical Studies
Threads
13,167
Messages
215,767
Interesting Interview with Dr. James Adams, researcher at Arizona State University (ASU), re his Autism/Microbiome Phase 1 Study Results

Advocacy and Fundraising

Advocacy, fundraising and petitions
Threads
2,960
Messages
58,749
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
Threads
2,960
Messages
58,749
New video: Children with ME

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
Threads
3,827
Messages
81,072
Threads
3,827
Messages
81,072
Heat intolerance - common in ME/cfs

Symptoms and Treatments

Symptoms

Threads
4,449
Messages
75,305
Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological/Neuro-sensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth, and Nails
  13. General Symptoms
Threads
4,449
Messages
75,305
Odd new symptom freaking me out

Treatment and Therapy

Threads
12,256
Messages
217,300
Sub-forums:
  1. General Treatment
  2. Addressing Biotoxin, Chemical & Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Detox: Methylation; B12; Glutathione; Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance; POTS
  9. Rituximab: News and Research
  10. The Gut: De Meirleir & Maes; H2S; Leaky Gut
Threads
12,256
Messages
217,300
Active B12 Protocol Basics

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
Threads
1,831
Messages
26,058
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
Threads
1,831
Messages
26,058
Doctors in and around London, UK
  • lior

Alternative, Co-existing, or Missed Diagnoses

Alternative, Co-existing or Missed Diagnoses

Threads
1,575
Messages
24,158
Sub-forums:
  1. Adrenal Dysfunction
  2. Connective Tissue Disorders/Ehlers-Danlos Syndrome
  3. Fibromyalgia
  4. Fungal Infection (Yeast, Candida)
  5. Lyme Disease and Co-Infections
  6. Mast Cell Disorders/Mastocytosis
  7. Multiple Sclerosis
  8. Thyroid Dysfunction
Threads
1,575
Messages
24,158
Tracking CCI / AAI MRI & Treatment outcomes

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
Threads
1,433
Messages
25,504
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
Threads
1,433
Messages
25,504
Something to Ponder

In Memory of ...

In Memory of ...

Threads
57
Messages
1,279
Threads
57
Messages
1,279
In Memory of Brigitte

Miscellaneous Resources, Projects, and Archives

Resources, Projects, and Archives

Threads
2,221
Messages
59,128
Sub-forums:
  1. Information and Resources
  2. Google site search
  3. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  4. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
Threads
2,221
Messages
59,128
CFS/ME Good Doctor List

Donate

Help Keep Phoenix Rising Running!

Donations play a vital role in Phoenix Rising’s support of the ME/CFS community. You do not need to have a Paypal account to make a donation.

Single Donation
Monthly Donation

Did you know?

Show another tip

New Threads

Latest Blog Entries

Members online

Total: 126 (members: 31, guests: 95)

Forum statistics

Threads
62,328
Messages
1,139,599
Members
26,573
Latest member
Paola Villa

Share this page