• Planning to Register on Phoenix Rising?

    The Phoenix Rising forums are for patients with myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). Those who have this illness, or suspect they might have it, are welcome to register.

    If you are a caregiver, researcher, physician or other medical professional you are also welcome to join the forum, as long as you plan to post about ME/CFS.

    We do not allow people to join the forum to post about health issues unrelated to ME/CFS; this is in order to keep our forum focused on ME/CFS.

    If you are a researcher looking for study participants, please contact a moderator prior to posting on the forum.

    Please read our forum rules prior to posting.

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Phoenix Rising ME/CFS Forums

New posts

News, Research, and Campaigns

Upcoming ME/CFS Events

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6,241
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Dr. Fauci Webinar: Long Haul Covid-- October 2, 2020 - RESCHEDULED FOR OCTOBER 30, 2020

News and Research

ME/CFS and other health news and research
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14,067
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225,762
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Articles
  4. Other Health News and Research
  5. Active Clinical Studies
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225,762
Dr David Tuller: Professor Chew-Graham’s Apparent Shift in Position on GET/CBT

Advocacy and Fundraising

Advocacy, fundraising and petitions
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3,036
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59,261
Sub-forums:
  1. Action Alerts and Advocacy
  2. Advocacy Projects
  3. Petitions
  4. Fundraising
  5. Institute of Medicine (IOM) Government Contract
  6. Millions Missing Campaign
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59,261
Introducing Phoenix Rising's New Supplement Shopping Search Page (Buy Supplements at a Discount)

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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4,399
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87,745
Threads
4,399
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87,745
Feeling some cold symptoms. How much Vitamin C to take daily?

Symptoms and Treatments

Symptoms

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80,689
Sub-forums:
  1. Post-Exertional Malaise, Fatigue, and Crashes
  2. Pain and Inflammation
  3. Neurological & Neurosensory
  4. Cognition
  5. Sleep
  6. Peripheral Neuropathy
  7. Immunological
  8. Hypersensitivity and Intolerance
  9. Autonomic, Cardiovascular, and Respiratory
  10. Hormones
  11. Gastrointestinal and Urinary
  12. Skeleton, Skin, Muscles, Hair, Teeth and Nails
  13. General Symptoms
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4,811
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80,689
ME/CFS for 18 years, recently diagnosed with D-Lactic acidosis as cause of symptoms and illness.

Treatment and Therapy

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12,891
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227,989
Sub-forums:
  1. General Treatment
  2. Mold, Biotoxins, Chemical/Food Sensitivities
  3. Antivirals, Antibiotics and Immune Modulators
  4. Alternative Therapies
  5. Methylation, B12, Glutathione, Detox and Chelation
  6. GcMAF
  7. Genetic Testing and SNPs
  8. Problems Standing: Orthostatic Intolerance, POTS
  9. Rituximab: News and Research
  10. The Gut: IBS, SIBO, Leaky Gut, Gastroparesis
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12,891
Messages
227,989
Abilify- Stanford Clinic Patients

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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1,941
Messages
27,328
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
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1,941
Messages
27,328
United States Physician Recommendations?

Comorbid Conditions / Differential Diagnoses

Comorbid Conditions

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1,683
Messages
29,291
Sub-forums:
  1. Connective Tissue Disorders: EDS, CCI
  2. Mast Cell Activation Syndrome
  3. Lyme Disease and Co-Infections
  4. Fibromyalgia
  5. Thyroid Dysfunction
  6. Adrenal Dysfunction
  7. Fungal Infection (Yeast, Candida)
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1,683
Messages
29,291
Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS

Differential Diagnoses

Threads
42
Messages
201
Sub-forums:
  1. Multiple Sclerosis
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42
Messages
201
Guillian Barr anyone?

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
Threads
1,501
Messages
26,456
Sub-forums:
  1. Lifestyle Management
  2. Finances, Work, and Disability
  3. Spirituality and ME/CFS
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1,501
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26,456
anyone tried organic or green mattresses?

In Memory of ...

In Memory of ...

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61
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1,305
Threads
61
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1,305
Hangininthere/Patti J.

Miscellaneous

Resources, Projects, and Archives

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59,141
Sub-forums:
  1. Google Site Search
  2. Supplement Shopping Search
  3. Information and Resources
  4. Phoenix Rising Projects
    1. Create A 'PatientsLikeUs' ME/CFS Treatment Program
    2. Patient Data Repository & Treatment Review Project
  5. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
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2,224
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59,141
A study at the rise of Parkinson's

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