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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Lost in Bed: Transitioning into an Adult Care Facility

Howard
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Let's have some fun, shall we? I'm totally serious. We're going to have more fun than a one horse open sleigh caught in the midst of a never-ending heatwave. For the past nine days we (the Lower Desert People of Arizona) have been between 114° and 118° each and every afternoon. Imagine that! And...
Howard
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Five separate (blog) writing efforts have been initiated in the past several weeks, yet I have not posted anything. As best I can tell, I'm having difficulty completing the thought. Or perhaps, I'm having difficulty determining whether or not the subject matter offered is at all worthwhile to...
Howard
6 min read
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Gimme a Lift My hulking son carried me up the stairs at 2:06 p.m. this past Sunday afternoon. Yes, fortunately he's muscle bound, or we never would have made the ascent. Due to the constricted space, the initial wheelchair effort massively failed (rolling me up the stairs). And well before...
Howard
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If I disclose this symptomatic information to my doctor, I suspect she'll try to medicate me, as well as having me psychoanalyzed. Heck, I'm not even sure they psychoanalyze anymore. There's probably some newfangled term defining intrusive mine probing these days - a glorious task that doesn't...
Howard
6 min read
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Background The following statistical summarization includes all initial conversational interactions that have taken place since I've been wheelchair bound (nearly two years) Note: I utilize a power wheelchair to get around. Most of my initial getting around took place within a nursing home...
Howard
7 min read
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I didn't want to call the fire department. No one does. Unless they have to. You see, I sort of got myself into a situation. Not immediately life-threatening, yet not exactly life-affirming either. At least there was plenty of time for solutions; dozens of minutes, a couple of hours, but perhaps...
Howard
8 min read
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Days Past , Days Pass Most of the body of this blog effort happened on Thursday. Today is Saturday. Tomorrow is Sunday. Basically, that's how the days of the week work. In the United States of America, many people don't know this. Unfortunately there's a pronounced element of brainwashed...
Howard
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I'm half asleep right now. But that also means I'm half awake. Let floweth thyne words, right? So what comes next is my response to the comments received in my previous blog entry. My original stated dilemma had much to do with my future choosing, specifically, answering the following...
Howard
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Greetings. I am still alive. And if you are reading this, you are still alive, too. Congratulations! Please forgive my lack of posting. I've been a lowdown dirty depressed sort of human during these recent weeks, but heck, things could turn around suddenly. Improvement is just on the horizon...
Howard
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This may be a depressing unsatisfactory read. Proceed with caution. Brief update: I received trigger point lidocaine injections this afternoon in my stoma area, and the pain went away... for 60 minutes. Yes, it was a glorious 60 minutes! I have a follow-up appointment on February 8th. In...
Howard
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Yes, I am still working on that darned thing, that album which remains incomplete (from last summer). I figured, who knows, I better put something out while I remain capable of doing such things. A couple songs still need some editing. And then vocals are needed and necessary. So I got to sing...
Howard
6 min read
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1:01 am and finally the pain has diminished in such a way as to allow my potential sleeping (while listening to Oranssi Pazuzu’s most recently released effort, Mestarin Kynsi. You see, I had wanted this album since the first came out a couple of years ago. During the big covid surge (back when I...
Howard
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12/25/2023 - 0017 hours I'm in the midst of what sounds like a war zone (out there). Round after round of gunfire, explosions on all sides, and flashing pyrotechnics are at hand. I'm not exactly sure why this is happening on what was once known as Christmas Eve —- but perhaps I missed the...
Howard
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Yeah, maybe that's the first thing that came to mind when he woke up yesterday morning... He??? Yeah, I should probably explain. So in between storms last night, I decided to go out for a short ride into the rather brisk early evening. To take in the scene, I sat near the side of the...
Howard
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Yo, people of Phoenix Rising - Lend me your ears! Or how about … your eyeballs instead? Ummm, this will be a sort of rant. But not really. This is a copy of the email I'm sending to my dietitian / nutritionist. Why am I sending this to her? Well, why not? I have to send this to somebody. Not...
Howard
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Responses to (and updates for) those of you who've been following along from blog entry to blog entry. And then also, brief background information explaining “how I got here” - in case anybody ‘new’ has happened along: NOTE - Not new to the story? For your ease and convenience, please skip...
Howard
2 min read
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Responses to comments from previous blog entry --- Hey y'all ... appreciate the suggestions. My doctor told me to go to the hospital tonight, but really, there's no sense in doing so (right now). I am basing this upon my urine color (yellow / straw), and upon the fact that I felt decent over...
Howard
6 min read
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First, Last and Only "You need to try harder if you want to get stronger. Most people don't push themselves." Yes, he was talking to me, and about me. That was his immediate impression. The physical therapist assigned to me was insinuating that I wasn't trying hard enough, that I was unwilling...
Howard
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Basically, I am hiding in a cave. But it's not particularly dark, nor dank. Nope, I'd suggest dry and warm is the thematic equivalent. Or possibly, it's more so the thermostatic likeness. So while living in this garage, I must remain unheard and unseen for the duration - I shan't be deported...
Howard
6 min read
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4 days, 21 hours, and 44 minutes is all I have left And really, I should stop right there. No need to continue on with additional words, is there? Well, I suppose there's a minimum amount of words required to officially make this a blog entry. So I shall indeed enter more words. And then...

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Howard
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