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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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User Blogs
While PEM topics are active today, the PEM today from doing laundry yesterday is frustrating.
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Obviously I'm good for sitting and intermittently making posts on the internet.
But ...
What I really want to do is read those books 📸
and do those model kits and model trains 📸
and play in those...
Well, so much for that neurologist.
A couple years pre-pandemic, my physician referred me to a neurologist.
For several reasons I wanted one not connected to the University hospital.
Because of things which happened in the orthopedic clinic and the other clinic I can't right now remember the...
Just saw this over on Tumblr, the only social media I have enough energy to do.
My partner is starting to run out of steam. It's been seven months now since they became fully bedbound- unable to sit up, stand or walk, unable to use their phone, listen to music or audio books, unable to have their curtains open, unable to talk for more than 5 minutes, unable to tolerate...
Ohhh boy, I made the mistake of reading the reader comments on an article about inquest in to bad hospital care & the attitudes which led to it, regarding the loss of Maeve Boothby O'Neill, the then 27 year old daughter of a Times of London writer.
YikesI the quantity of lack of general...
Are several things I'd like to go get done today, but this defective body with its several different dysfunctions says, nope, not today.
So ...
Distraction is being employed as a coping skill.
(hmm, can you say "different dysfunctions" 3 times fast? even slow once?)
(today, slow once appears to...
Hmm, wonder if that affects any pharmaceuticals I or any of us take?
How many would come by ship, how many would come by air freight?
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First, a note to build the background;
https://asia.nikkei.com/Business/Pharmaceuticals/U.S.-dependence-on-China-for-lifesaving-drugs-grows
(this is a news...
That blogger has a point ...
(and I enjoy that they use a Star Trek theme to make their points)
The one social activity I'm still good for, up to, is the weekly meeting of our little county seat farm burg's creative writers group.
📰🗞️
We meet in a room in a local bake shop where the building was at a time in the past the local newspaper office & where the guys who founded the journalism...
Some of this sounds so much like some of ME/CFS.
When you have both, how do you discern which effect is from which cause?
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Or does it even matter which one caused which thing?
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Why High Masking Autistics Experience Burnout
Hey Y'all; Have some chronic illness prescription humor via Tumblr,
Dear Amazon, I would like to congratulate you for successfully amusing me. :balloons::trophy:🎂
Now there's a thing I've not seen before. 🧐
Last month for "Happy Birthday to Me" I splurged on ordering 2 boxed sets of acrylic model paint of premixed skin tones for various ethnicities, and on...
Well that was interesting, that this forum exists and that I was on it just got up and left my brain without notice one night - 4 years ago! :jaw-drop: And along with it went awareness of the websites which had the Sunday newspaper color comics I used to look at before sensory issues developed...
Our medical system is inverted, most of us here know this. And there are reasons more and more healthcare workers are leaving the system.
I think a good question in coming times is how do we rebuild the system?
And further yet so it can not be repeated again, how did so many life systems on...
Eh, the struggle continues.
But sometimes I still remember to dance even whilst underwater.
Let's have some fun, shall we? I'm totally serious. We're going to have more fun than a one horse open sleigh caught in the midst of a never-ending heatwave. For the past nine days we (the Lower Desert People of Arizona) have been between 114° and 118° each and every afternoon. Imagine that! And...
It was a good night, a warm night. I felt well enough to go out amongst the living. I was excited to be with friends, crowds, waiters, lights, people, life. I brushed my hair, taking breaks to conserve energy. I was sick and I was tired again but this day was markedly better than the last few...
Five separate (blog) writing efforts have been initiated in the past several weeks, yet I have not posted anything. As best I can tell, I'm having difficulty completing the thought. Or perhaps, I'm having difficulty determining whether or not the subject matter offered is at all worthwhile to...
I thought I'd post my latest progress, I have been having much better days since starting the treatment, and great gains from castor oil packs!
I had muscle testing! OMG!!! It's AMAZING!!!
So the a functional medicine practitioner was right, I tested positive for Epstein-Barr, and I have...
Ah summer in a hot climate. When you say you're in a crash and need to go rest but are told "everyone's tired. The sun just drains us all."
And you have to nod along to the person who can work full-time and still have 5 social outings every weekend... somehow despite the sun.