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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Blazer95
2 min read
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Hi fellow ME people, this entry has a quick summary wich is intended to be reader friendly for severe ME patients. I think we all should do this more often to include our severe fellows, if possible. 3 Days ago I underwent the HELP-apheresis in germany. The procedure was quite a ride giving me...
Howard
7 min read
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I didn't want to call the fire department. No one does. Unless they have to. You see, I sort of got myself into a situation. Not immediately life-threatening, yet not exactly life-affirming either. At least there was plenty of time for solutions; dozens of minutes, a couple of hours, but perhaps...
Artemisia
1 min read
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Perhaps everyone's scent addiction has gotten out of hand when I walk outside and see not a soul, but can smell their laundry detergent from when they walked to their cars minutes (hours?) before. Or that I can distinguish my apartment neighbors' different laundry scents from sitting out in the...
Blazer95
2 min read
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Hi everyone! Intro: Since being tested positive for Borrelia 1 year ago I have been lingering around what outsiders would call the "chronic lyme theory". I have seen multiple people getting better from lengthy antibiotic treatments, and while of course that brings risks - I think being so...
sunshine44
4 min read
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Vent and purge post***** Trigger warnings Don’t read further if you don’t want to hear unpleasant things rn. I’m trying so hard stabilize. To remain positive. But in truth, many nasty things are occurring in my body. I’ve lost track of updates. I took a 4th ambulance in. I’m on home...
Blazer95
2 min read
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Hi friends, long time no see! Preparation Appointment at the HELP-apheresis clinic: I must say my first appointment at the clinic where I will get the HELP-apheresis next week was nice. He was incredibly careful not to forget anything to explain about this procedure, explaing possible side...
SpinachHands
2 min read
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I don't really have anyone I think I can talk to about this in real life, but I can't keep it all inside me either. My partner has ended things, they don't love me anymore, and as soon as they're well enough for someone else to look after them, they want me to leave. I think I want to leave too...
Howard
8 min read
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User Blogs
Days Past , Days Pass Most of the body of this blog effort happened on Thursday. Today is Saturday. Tomorrow is Sunday. Basically, that's how the days of the week work. In the United States of America, many people don't know this. Unfortunately there's a pronounced element of brainwashed...
sunshine44
2 min read
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Well…. My body is STRONGLY feeling the pull of this eclipse. No surprise. I first went down around 2017 eclipse and knew the 2024 one would affect me as well. These things are like full moons on steroids for some of us. 🙈😵‍💫 Anywaayysss with the eclipse on my mind and distracting from immense...
sunshine44
1 min read
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“There will be a time, when the dark finds out that it has been serving the light.” ~ Similarion J.R.R. Tolkien Many in the me/cfs community are more tuned in than not I have found. Partially by necessity at times from this wretched illness forcing us into cocoons that break (and...
Artemisia
2 min read
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When physical activity was an essential creative outlet, what to do when it's no longer available? I was the slowest on sports teams as a kid (background fatigue issues from early childhood). But I always loved to swim. In my early 20s I got really into yoga, did it everyday for many years...
sunshine44
3 min read
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Hi everyone, Starting a new blog entry on it because … well I just am. I feel like posting a song. I’ve mostly not been able to listen to music past month. But, a song will do right now. Things have continued to be rocky with me. My family left town for 5? Days and I was on my own. After all...
Blazer95
2 min read
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The title was intended to sound this confusing because it portrays my confusion best. Today on my daily and unreasonably high effort on treating this vietnam war zone of a disease called ME/CFS I stumbled uppon a guy that vlogged about his experiences with INUSpheresis. INUSpheresis is a type...
Blazer95
1 min read
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Today, I woke Up thinking I slept awesome because my Fitbit told so. Needless to say its always risky to make such a bold Statement when you have unpredictable ME. The watch told me i got 9h of sleep with a solid 2,5h of deep sleep. My HRV was at 45ms wich is very high for me so I thought wow...
Atlas
3 min read
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"There is a river Whose streams make glad The city of God, the holy place God is within her; she will not fall God is her help at the break of day." ... There is a river. ... I found that when I'm able to let the "need for control" substitute god die in me, that's when I'm no longer in a...
godlovesatrier
2 min read
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Well since my last few updates I started to suffer from exhaustion and extreme tiredness by about Thursday into Friday. I had to take Fridays off work temporarily. I've probably done that for six weeks to help myself out. I think that running out of max dose lactoferrin, not having taken any...
sunshine44
1 min read
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If you pray, will you pray for me please? I have covid pneumonia and was just sent home by ambulance by an overworked worn out ER. If you know how severe my situation already was, you know I could use all the prayers. 🙏💗