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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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sunshine44
3 min read
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362
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User Blogs
Hi everyone, Starting a new blog entry on it because … well I just am. I feel like posting a song. I’ve mostly not been able to listen to music past month. But, a song will do right now. Things have continued to be rocky with me. My family left town for 5? Days and I was on my own. After all...
Blazer95
2 min read
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User Blogs
The title was intended to sound this confusing because it portrays my confusion best. Today on my daily and unreasonably high effort on treating this vietnam war zone of a disease called ME/CFS I stumbled uppon a guy that vlogged about his experiences with INUSpheresis. INUSpheresis is a type...
Blazer95
1 min read
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User Blogs
Today, I woke Up thinking I slept awesome because my Fitbit told so. Needless to say its always risky to make such a bold Statement when you have unpredictable ME. The watch told me i got 9h of sleep with a solid 2,5h of deep sleep. My HRV was at 45ms wich is very high for me so I thought wow...
Atlas
3 min read
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User Blogs
"There is a river Whose streams make glad The city of God, the holy place God is within her; she will not fall God is her help at the break of day." ... There is a river. ... I found that when I'm able to let the "need for control" substitute god die in me, that's when I'm no longer in a...
godlovesatrier
2 min read
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User Blogs
Well since my last few updates I started to suffer from exhaustion and extreme tiredness by about Thursday into Friday. I had to take Fridays off work temporarily. I've probably done that for six weeks to help myself out. I think that running out of max dose lactoferrin, not having taken any...
sunshine44
1 min read
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User Blogs
If you pray, will you pray for me please? I have covid pneumonia and was just sent home by ambulance by an overworked worn out ER. If you know how severe my situation already was, you know I could use all the prayers. 🙏💗
Tom Kindlon
6 min read
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User Blogs
(This relates to matters in the Republic of Ireland so may have minimal interest for people in other countries) I thought I would make a quick post to share some extracts from, and comments on, “The Green Paper on Disability Reform: a flawed effort to reform payments for people with...
godlovesatrier
3 min read
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User Blogs
After herxing a lot yesterday taking 250mcg of kpv for a bad head cold I woke up today feeling pretty good, not 100% but still better than the previous day. Brainfog and worsened dizziness are very common with kpv but always abate the following day and almost always 90% of the time are followed...
Howard
6 min read
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User Blogs
I'm half asleep right now. But that also means I'm half awake. Let floweth thyne words, right? So what comes next is my response to the comments received in my previous blog entry. My original stated dilemma had much to do with my future choosing, specifically, answering the following...
godlovesatrier
2 min read
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User Blogs
I started to feel better around day 40, lactoferrin 900mg a day appeared to ameliorate coat hangar pain. Then this weekend after trying lots of antihistamines and decongestants (most of which crashed me for 24 hours) the coat hanger pain lifted and I now don't have any. I am only taking low...
Cloudyskies
2 min read
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User Blogs
A few months ago, I reacted negatively to a potent neuropeptide, which plunged me back into bedbound bizarro world where I remain today—disillusioned, frustrated, and bored—with the added side effect of an increased appetite on par with that of a black bear. Since then, I have been questioning...
kurt
4 min read
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User Blogs
Hello blog readers! Time for the promised update. Sorry about the long delay, thanks PASC/LC for that... Here is a final entry in this blog series, my 'results' report and conclusion based on evidence of multiple people testing out this theory, with some references. I am now calling this a...
Howard
3 min read
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830
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User Blogs
Greetings. I am still alive. And if you are reading this, you are still alive, too. Congratulations! Please forgive my lack of posting. I've been a lowdown dirty depressed sort of human during these recent weeks, but heck, things could turn around suddenly. Improvement is just on the horizon...
Dysfunkion
2 min read
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113
User Blogs
it's been 5 days on and today off of osha root. I could have survived a full week but after an initial herx of pain all through my jaw and head with abdominal cramps at random and a background of terrible fatigue that turned into largely just some abdominal pain now and then plus the fatigue I...
godlovesatrier
1 min read
Views
124
User Blogs
Lung pain has definitely gone since taking two 5mg hydrocortisone doses one week apart six weeks post covid. My energy envelope is improving as well. However neuro inflammation seems to be much higher than it was pre COVID. Hopefully it will fully recover by six months. But I'm still on the...