Protocol for ME/CFS induced by herpes veridai viruses

As this blog is public will have to be a bit vague with this update. Was able to get an answer from a doctor finally after trying one or two over the last few weeks. They said kidney stone formation is possible at higher doses but very rare and even rarer at lower doses. They said kidney stone...
godlovesatrier
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I've stopped the valtrex as I got kidney stones and my kidneys feel fairly inflamed, thankfully it's just swelling no real pain - I did have pain but it was transient and has gone now thankfully. So now I'll go back to the famvir at some point. Long story short the valtrex worked as well as...
godlovesatrier
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Hello, Haven't blogged for awhile becuass it gets a bit exhausting in the week with work and maintaining as detailed a diary as I can. Not to mention researching side effects and other issues. So anyway dosages have varied! But 1g twice a day just gave me anaphylactic reactions. I did herx on...
godlovesatrier
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Learning a lot I feel at the moment even if it's in the absence of pathology tests I am going off symptoms. I did a lot on Saturday and Sunday morning felt pretty good, but then I took a higher dose of valtrex and became really tired after that, this tiredness lasted all day. The higher dose...
godlovesatrier
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Hi all, I felt really good yesterday on the valtrex and woke up thismorning feeling even better. Although I woke up at 5.40am first and had to eat something so I could sleep. But other than that had 10 hours sleep and only woke up once or twice. Once the valtrex dose wears off you really...
godlovesatrier
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Hello, So my symptoms all came back as soon as I stopped the Famvir :( Fatigue came back, PEM came back, I even crashed for about half a day (overlap of re-arranging the living room one night). So I spent 2 days trying to find novartis famvir, which is either discontinued - unable to purchase...
godlovesatrier
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Yesterday I moved Famvir to the AM (9am) and took 750mg. 750mg lasts in blood serum for 13 hours, so that's plenty to get through the day, of course it's below the IC50, but I cannot sleep if I take any after 9am, and if I go below 500mg a dose it simply isn't active or effective enough. Long...
godlovesatrier
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I'm definitely starting to notice less fatigue from little trips out and haven't really suffered from any PEM for a few days (the PEM would normally be mild, or if I had crashed it would of course be a lot worse - even if the crash only lasted 3 days which was common with the joshua liesk...
godlovesatrier
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So I restarted and it's now day 3. Too soon to really tell if it's overall going to help or not. The drug makes me feel whacked, I wake up feeling pretty good on the whole, maybe even a little bit more well each day? Hard to say yet. I still get quite a bit of mucous and phlegm at the back...
godlovesatrier
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Stopped for 24 hours. Infection in throat/neck much better but still comes back in the evening so definitely not gone. I've got antibiotics on the way but won't receive for a week. This is very similair to my June throat infection. The difference being that one was fungal I think or candida...
godlovesatrier
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Famvir summary for those who need a quick review: Positives so far: my canker sores of about 4 years seem to have vanished in the last week, I've drank fruit juice (cranberry), eaten crisps and I have had spicy foods and all sorts - even had some pizza! I have yet to experience a single...
godlovesatrier
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So I've been re-reading the old lerner threads and anything I can get my hands on to remind myself how the drug works and theories etc. It occured to me last night that taking an immune modulator with valtrex would surely speed up the entire process? Yes the patient would feel even sicker...
godlovesatrier
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So this is day 5 of my famvir trial. I went up to 250mg twice a day yesterday. Still quite strong flu like symptoms but they come and go and are not persistent. I've only had one fever on day 3 which occurred after dosing not before. Today I feel slightly similar in that I am a bit hot again...
godlovesatrier
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I have stopped taking reishi and oat bran and replaced it with famvir. Today is my third day on famvir and I am tolerating it much better. Am still experiencing herx like symptoms or rather ME symptom exacerbation. Experienced cold like symptoms today, raised body temp, blocked stuffy nose...
godlovesatrier
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Haven't been doing too well recently. Tried Inosine for 2 weeks at various doses, pretty much ruined my sleep and even at lower doses still did the same. Was facing and dealing with heightened ebv like symptoms in the throat etc and sore throat a lot more often with Inosine, although fatigue...
godlovesatrier
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Been looking back at prior blog entries lately, this one specifically: https://forums.phoenixrising.me/blog-articles/still-on-half-joshua-leisk-protocol-flu-jab-time.2889/ I can't believe I was out walking 3 times a week back then. I wasn't taking any green tea, no bcaas's, just probiotics...
So I've been on Inosine 2 weeks now. The first 2 days I took 500mg which instantly made getting to sleep and staying asleep almost impossible from day 1. I reduced to 100mg and continued at that after a 2 day break. I noticed this dose was more tolerable and as time went on I didn't need to...
godlovesatrier
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Inosine week 1 must be day 5 now. 500mg down from 1g first two days. It seems to be working on the whole. But almost impossible to get to sleep totally reliant on nytol which is really bad. Secondly it's totally dried my mouth out meaning I've started to get another ulcer. But this should go...
godlovesatrier
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So I am now on the joshua lieks protocol but I've more or less replaced oat bran with Inosine (500mg twice a day or 1g twice a day in alternating schedules and all weekends off + a 2 week break every 3 months). So far I feel better and it's only been 24 hours. I felt fluey, achy, nauseaous and...
godlovesatrier
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Been awhile since I posted. Haven't been very well since January really, very up and down. But still able to do a lot more than any previous winter. The oat bran is definitely causing neutropenia, because I've had 3 blood tests confirm this now. If I lower the dose they go back up, if I...
godlovesatrier
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