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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Protocol for ME/CFS induced by herpes veridai viruses

godlovesatrier
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Well since my last few updates I started to suffer from exhaustion and extreme tiredness by about Thursday into Friday. I had to take Fridays off work temporarily. I've probably done that for six weeks to help myself out. I think that running out of max dose lactoferrin, not having taken any...
godlovesatrier
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After herxing a lot yesterday taking 250mcg of kpv for a bad head cold I woke up today feeling pretty good, not 100% but still better than the previous day. Brainfog and worsened dizziness are very common with kpv but always abate the following day and almost always 90% of the time are followed...
godlovesatrier
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I started to feel better around day 40, lactoferrin 900mg a day appeared to ameliorate coat hangar pain. Then this weekend after trying lots of antihistamines and decongestants (most of which crashed me for 24 hours) the coat hanger pain lifted and I now don't have any. I am only taking low...
godlovesatrier
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Lung pain has definitely gone since taking two 5mg hydrocortisone doses one week apart six weeks post covid. My energy envelope is improving as well. However neuro inflammation seems to be much higher than it was pre COVID. Hopefully it will fully recover by six months. But I'm still on the...
godlovesatrier
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I've got air hunger now which I haven't had for about two or three years and fatigue in my upper arms with bad coathanger pain. Again haven't had those since 2022 probably about October time. Why did it get better? Not sure but I think not getting COVID would have helped. I'm hopeful tho that...
godlovesatrier
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I've been suffering with a ton of inflammation since about week 2 (after taking some citalopram) of covid recovery. Inflammation is all over but I feel it most in my throat, neck and ent nerves/glands and tonsils. However I think it is also manifesting as insomnia and quite possibly anxiety as...
godlovesatrier
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Hi all, So I got covid over christmas and continued with the legumes but stopped biomesight testing and any new gut based treatments. Covid did a number on me and whilst i am not battling fatigue as badly I have some symptoms I am struggling with. When I got covid I had a fever of 39 for two...
godlovesatrier
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Hi guys, So I have been feeling progressiely better on legumes but I still don't have my test results from biomesight to prove anything. However I did go out yesterday and had fatigue in the evening but I also experienced some acute stress the same day and I could feel that playing havoc with...
godlovesatrier
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Someone asked me to update this post, I am no longer taking tudca, will try UDCA at some point: Diet High fibre to lower bacteroidetes (30g a day up from around 15) Low fat to lower bacteroidetes (removal of lamb, red meat once a week, fatty foods like chorizo and others out) Regular...
godlovesatrier
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Well my symptoms of sore throat, congestion and poor digestion with some very mild fatigue came back overnight after a 24 hour tudca break. Insomnia was bad overnight but I somehow managed to get back to sleep after covering myself with a second duvet. My body does this very very strange thing...
godlovesatrier
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Hi guys, So I have been taking tudca for about 6 to 7 days 250mg a day. I have been quite shocked at some of the improvements, here's a list: 1. initially improved cognitive clarity (less so in subsequent days likey due to poor sleep) 2. Physical fatigue disappeared and even when I had a bit...
godlovesatrier
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Continuing to eat black eyed beans while battling seasonal viruses and kidney stones. I've just done another round of 3 100g doses of black eyed beans and feel better again physically for doing it. I have had to increase my rishi dose to 4 caps 3 X a day and ive restarted TIME lions mane...
godlovesatrier
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Hi guys, I wanted to do an update on what I take now and what dietary interventions I am making that are important. I am still on a lot of josh's OLD protocol (not his new one) but I have added a few other things, so here it is Diet interventions increase firmicutes and lower bacteroidetes...
godlovesatrier
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I've been busy recovering from antivirals the last 4 weeks. I had two crashes that triggered dysautonomia and a much worsening state which wasn't fun. But I seem to have bounced back after a week on the joshua leisk protocol. I found out something quite interesting. My body couldn't really...
godlovesatrier
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The last 3 weeks maybe 4 I've crashed several times and the pattern appears to be bursts of adrenaline, with hormonal changes like lowered or vastly raised cortisol and immune stimulation / drug reactions. So I decided to try and get my cortisol under control which is making me feel extra...
godlovesatrier
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So I've been on and off antivirals for about 2 months now. Ended up dosing valtrex 500mg every week or every 5 days because my kidneys just got very inflamed if it was taken more often than that. 250mg doesn't seem to do anything. 1g causes more of an allergic reaction. Id like to try...
godlovesatrier
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As this blog is public will have to be a bit vague with this update. Was able to get an answer from a doctor finally after trying one or two over the last few weeks. They said kidney stone formation is possible at higher doses but very rare and even rarer at lower doses. They said kidney stone...
godlovesatrier
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I've stopped the valtrex as I got kidney stones and my kidneys feel fairly inflamed, thankfully it's just swelling no real pain - I did have pain but it was transient and has gone now thankfully. So now I'll go back to the famvir at some point. Long story short the valtrex worked as well as...
godlovesatrier
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Hello, Haven't blogged for awhile becuass it gets a bit exhausting in the week with work and maintaining as detailed a diary as I can. Not to mention researching side effects and other issues. So anyway dosages have varied! But 1g twice a day just gave me anaphylactic reactions. I did herx on...
godlovesatrier
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Learning a lot I feel at the moment even if it's in the absence of pathology tests I am going off symptoms. I did a lot on Saturday and Sunday morning felt pretty good, but then I took a higher dose of valtrex and became really tired after that, this tiredness lasted all day. The higher dose...

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godlovesatrier
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