I've stopped the valtrex as I got kidney stones and my kidneys feel fairly inflamed, thankfully it's just swelling no real pain - I did have pain but it was transient and has gone now thankfully.
So now I'll go back to the famvir at some point.
Long story short the valtrex worked as well as the famvir if not better, I was I think fully PEM buffered from a 20 minute walk, if I did have PEM symptoms it was mainly dizziness and disorientation, but can't tell it apart from aggrevation of kidney stones passing through my uretra. Anyway it did work, I think my main problems are ebv and hsv related, famvir should hit this I hope pretty well, if I can find a brand that doesn't have a ton of side effects. All my fingers are crossed.
I got my kidney and liver function tests back today and everythings fine, just slightly raised urea but it's a tiny bit raised and not above prior baselines.
The valtrex caused neutropenia, my neutrophils are now 1.51 so trending down again. Seems when I attack the viruses that cause my ME I get neutropenia. I suspect whatever causes my ME and immune dsyfunction is very closely related to the neutropenia, or why would oat bran cause neutropenia and valtrex? I hadn't taken oat bran for 2 weeks prior to the test and was not on it long before that, so I can discount any overlap. Also neutropenia is a known side effect of valtrex.
So bit annoyed that Valtrex was working but I could never sustain or get up to the right dosage. But it is what it is. I was already at the lowest dose so I don't think taking even less is worthit.
I got my asot test results which show no antibodies, or neglible antibodies, so no active strep infection which is great. Also got my mycoplasma test back and that was negative as well for both igm and igg.
So really the only test I need to get now is CMV, hhv-6 involves a 1 hour trip south and I can't get the time off to do that test.
--
On a second note the benefits of the valtrex appear to have stayed so far. I don't have intense fatigue or anything, but haven't done anything yet either. Sore throats remained gone. I do still feel foggy but that's due to vairous factors I think.
So now I'll go back to the famvir at some point.
Long story short the valtrex worked as well as the famvir if not better, I was I think fully PEM buffered from a 20 minute walk, if I did have PEM symptoms it was mainly dizziness and disorientation, but can't tell it apart from aggrevation of kidney stones passing through my uretra. Anyway it did work, I think my main problems are ebv and hsv related, famvir should hit this I hope pretty well, if I can find a brand that doesn't have a ton of side effects. All my fingers are crossed.
I got my kidney and liver function tests back today and everythings fine, just slightly raised urea but it's a tiny bit raised and not above prior baselines.
The valtrex caused neutropenia, my neutrophils are now 1.51 so trending down again. Seems when I attack the viruses that cause my ME I get neutropenia. I suspect whatever causes my ME and immune dsyfunction is very closely related to the neutropenia, or why would oat bran cause neutropenia and valtrex? I hadn't taken oat bran for 2 weeks prior to the test and was not on it long before that, so I can discount any overlap. Also neutropenia is a known side effect of valtrex.
So bit annoyed that Valtrex was working but I could never sustain or get up to the right dosage. But it is what it is. I was already at the lowest dose so I don't think taking even less is worthit.
I got my asot test results which show no antibodies, or neglible antibodies, so no active strep infection which is great. Also got my mycoplasma test back and that was negative as well for both igm and igg.
So really the only test I need to get now is CMV, hhv-6 involves a 1 hour trip south and I can't get the time off to do that test.
--
On a second note the benefits of the valtrex appear to have stayed so far. I don't have intense fatigue or anything, but haven't done anything yet either. Sore throats remained gone. I do still feel foggy but that's due to vairous factors I think.
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