As this blog is public will have to be a bit vague with this update. Was able to get an answer from a doctor finally after trying one or two over the last few weeks.
They said kidney stone formation is possible at higher doses but very rare and even rarer at lower doses. They said kidney stone formation is highly likely to be from uric acid and my uric acid went high in January and has only come down by half. I suspect a supplement is the issue or diet. Not sure why.
He also said allergic reactions whilst very rare are not unheard of and that obviously you have to stop if this occurs.
So yeah I don't tolerate the drug in essence. I tolerate 500mg a day but that's it. To be fair I spoke to a lady on twitter who said she and her doctor found out that her maintenance dose was 500mg every 2 to 3 days. That kept her moderate instead of severe....I think.
Still with famvir the above issues seem to never occur. I was a bit asthmatic last night but that's about 8 hours after dosing. So it must be caused by pollen. I think trying different brands of famvir is still worthwhile. However I've woken up two nights in a row with my heart racing and an unpleasant dream. Which isn't very nice.
@heapsreal @DrUniverse @Judee
As for the neutropenia it seems heaps who's taken famvir for years is between 1 and 2 all the time so my neutropenia may not actually be an issue.
I will say one thing it's nice to be able to take 4 pills 3 x a day instead of the 16 + glycine I was taking 3 x a day!!
They said kidney stone formation is possible at higher doses but very rare and even rarer at lower doses. They said kidney stone formation is highly likely to be from uric acid and my uric acid went high in January and has only come down by half. I suspect a supplement is the issue or diet. Not sure why.
He also said allergic reactions whilst very rare are not unheard of and that obviously you have to stop if this occurs.
So yeah I don't tolerate the drug in essence. I tolerate 500mg a day but that's it. To be fair I spoke to a lady on twitter who said she and her doctor found out that her maintenance dose was 500mg every 2 to 3 days. That kept her moderate instead of severe....I think.
Still with famvir the above issues seem to never occur. I was a bit asthmatic last night but that's about 8 hours after dosing. So it must be caused by pollen. I think trying different brands of famvir is still worthwhile. However I've woken up two nights in a row with my heart racing and an unpleasant dream. Which isn't very nice.
@heapsreal @DrUniverse @Judee
As for the neutropenia it seems heaps who's taken famvir for years is between 1 and 2 all the time so my neutropenia may not actually be an issue.
I will say one thing it's nice to be able to take 4 pills 3 x a day instead of the 16 + glycine I was taking 3 x a day!!
