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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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User Blogs
Not much has changed since my last post except I have my vitamin B1 powder again so I figured I would jot down everything I am currently taking to address my long term B12 deficiency/refeeding syndrome. (see last blog post for details)
Vit B12 1000 mcg 3-4x a day (currently using multiple...
Today I woke up somewhat rested, sleep wise last night wasn't as bad as I thought it would be. The morning and work was also better than I expected. My mood was better today and something was generally more connected in my brain though I can't really specifically describe what I mean by that...
It's always seems like every time I have an extended amount of days off I always find myself in some kind of trouble. Today I was pretty peaceful when I woke up and actually did sleep through the night for once but it was one of those nights where I was going to sleep for hours too long if I...
Last night I starts ultra low dose activated charcoal, I take a fraction of a 1/4th teaspoon and have a gulp. Even this is proving to be pretty intense for me. Sleeping besides a brief period of delirious dreaming in my freezing cold floor futon was nearly impossible. In the morning I woke up...
Just a warning as I get into a variety of topics on here including sexual one's related to my health or other life events, was going to add more to my about page here but I can't find out where you go to edit that. Anyhow in the past few days after introducing vitamin K2 I've been able to...
“May the light illuminate all hearts” ~ author unknown
From my room to yours, close your eyes and feel the sun 💛 let it feed your own inner light ✨
Yes, I am still working on that darned thing, that album which remains incomplete (from last summer). I figured, who knows, I better put something out while I remain capable of doing such things. A couple songs still need some editing. And then vocals are needed and necessary. So I got to sing...
1:01 am and finally the pain has diminished in such a way as to allow my potential sleeping (while listening to Oranssi Pazuzu’s most recently released effort, Mestarin Kynsi. You see, I had wanted this album since the first came out a couple of years ago. During the big covid surge (back when I...
I'm very grateful to this community for creating such an extensive resource for the chronically ill. When I recently started having negative reactions to an oral B12 supplement I was surprised and confused. Not that long ago I had been able to afford vitamin B12 injections and had an amazing...
Perhaps of interest if, for example, you are thinking of joining another social media platform.
My social media channels are listed here: https://me-pedia.org/wiki/Tom_Kindlon#Online_presence
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Mastodon vs Bluesky
Just in case of interest to anyone:
I now have exactly the same number of...
“However long
or dark your night is
Right where you are
That’s where the light is
My love
The sun
Is a reflection
It’s true
We’re one
We are each other”
One of my most favorite songs.
I used to listen to it and sing it over and over at campfires as my limited energy allotted. It...
Barbara O’Neill has some amazing gems of wisdom pertaining to health. I’m not even going to summarize. If interested, highly worth your time to watch this in its entirety.
“For some you will be a mystic
For some you will be crazy
For some you will be a wise man
For others you will be misunderstood
You will be a good example to some
A danger to others
To some people you can be a good friend
Do you realize?
You are merely a reflection of the state of mind of...
12/25/2023 - 0017 hours
I'm in the midst of what sounds like a war zone (out there). Round after round of gunfire, explosions on all sides, and flashing pyrotechnics are at hand. I'm not exactly sure why this is happening on what was once known as Christmas Eve —- but perhaps I missed the...
Yeah, maybe that's the first thing that came to mind when he woke up yesterday morning...
He???
Yeah, I should probably explain.
So in between storms last night, I decided to go out for a short ride into the rather brisk early evening. To take in the scene, I sat near the side of the...
Sharing a beautiful song and a writing from rosemary gladstar ✨☀️
“Tomorrow brings the winter solstice, the darkest day of the year. It's a reminder that even in the darkest of times, the tiniest glimmer of light can bring hope.
As Howard Zinn so sagely said, "To be hopeful in bad times is not...
Yo, people of Phoenix Rising - Lend me your ears! Or how about … your eyeballs instead?
Ummm, this will be a sort of rant. But not really. This is a copy of the email I'm sending to my dietitian / nutritionist. Why am I sending this to her? Well, why not? I have to send this to somebody. Not...
Tonight we will explore medicinal mushrooms in healing gut health.
Something modern society has gotten far away from …. Is remembering the healing qualities of many mushrooms. They are in a category of their own food wise, they are not quite a vegetable and they are quite intelligent! I highly...
I had a dream…
It’s probably intense for many I’m sure. That’s your invitation to leave 😉
The good news is it’s not just cathartic for me but possibly others too. Hence why I’m sharing.
“You watched me burn”
I live in a small ish town of 20k. On the tip of a lake. This dream took place in...