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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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liza58
2 min read
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A TRIP OUT This week I did something I hadn't done in a while - I went to the cinema. I was very excited to see a movie in person, rather than on the TV at home. I drove myself there to meet a friend and spent most of my time simply sitting down, so hoped I wouldn't be too tired afterwards...
godlovesatrier
1 min read
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User Blogs
I've got air hunger now which I haven't had for about two or three years and fatigue in my upper arms with bad coathanger pain. Again haven't had those since 2022 probably about October time. Why did it get better? Not sure but I think not getting COVID would have helped. I'm hopeful tho that...
Dysfunkion
3 min read
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132
User Blogs
The past few days have been up and down. I learned I wasn't able to tolerate the gluconate or citrate types of potassium so I decided to try the bicarbonate version which is the type found in food and was alright with that and it's been helping with my energy while keeping me a bit more level at...
godlovesatrier
3 min read
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I've been suffering with a ton of inflammation since about week 2 (after taking some citalopram) of covid recovery. Inflammation is all over but I feel it most in my throat, neck and ent nerves/glands and tonsils. However I think it is also manifesting as insomnia and quite possibly anxiety as...
Dysfunkion
2 min read
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111
User Blogs
Today I woke up already somewhat exhausted and it was the second day off the round of activated charcoal I gave myself and day 3 of propolis. It seems to be sitting well with my and consistently keeping inflammation low so until it tells me otherwise I'm keeping in my supplement stack. Pretty...
godlovesatrier
6 min read
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Hi all, So I got covid over christmas and continued with the legumes but stopped biomesight testing and any new gut based treatments. Covid did a number on me and whilst i am not battling fatigue as badly I have some symptoms I am struggling with. When I got covid I had a fever of 39 for two...
Dysfunkion
3 min read
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User Blogs
Yesterday I went from extremely high strung energetically to more stable but far lower energy than I'd like after just a partial amount of anthocyanin that I thought might help with inflammation and my guts but the result we're mixed. I was extremely tired within 10 minutes of taking it, seemed...
Howard
5 min read
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User Blogs
This may be a depressing unsatisfactory read. Proceed with caution. Brief update: I received trigger point lidocaine injections this afternoon in my stoma area, and the pain went away... for 60 minutes. Yes, it was a glorious 60 minutes! I have a follow-up appointment on February 8th. In...
Katt
3 min read
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User Blogs
Not much has changed since my last post except I have my vitamin B1 powder again so I figured I would jot down everything I am currently taking to address my long term B12 deficiency/refeeding syndrome. (see last blog post for details) Vit B12 1000 mcg 3-4x a day (currently using multiple...
Dysfunkion
2 min read
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141
User Blogs
Today I woke up somewhat rested, sleep wise last night wasn't as bad as I thought it would be. The morning and work was also better than I expected. My mood was better today and something was generally more connected in my brain though I can't really specifically describe what I mean by that...
Dysfunkion
3 min read
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124
User Blogs
It's always seems like every time I have an extended amount of days off I always find myself in some kind of trouble. Today I was pretty peaceful when I woke up and actually did sleep through the night for once but it was one of those nights where I was going to sleep for hours too long if I...
Dysfunkion
2 min read
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347
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Last night I starts ultra low dose activated charcoal, I take a fraction of a 1/4th teaspoon and have a gulp. Even this is proving to be pretty intense for me. Sleeping besides a brief period of delirious dreaming in my freezing cold floor futon was nearly impossible. In the morning I woke up...
Just a warning as I get into a variety of topics on here including sexual one's related to my health or other life events, was going to add more to my about page here but I can't find out where you go to edit that. Anyhow in the past few days after introducing vitamin K2 I've been able to...
sunshine44
1 min read
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“May the light illuminate all hearts” ~ author unknown From my room to yours, close your eyes and feel the sun 💛 let it feed your own inner light ✨
Howard
1 min read
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309
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Yes, I am still working on that darned thing, that album which remains incomplete (from last summer). I figured, who knows, I better put something out while I remain capable of doing such things. A couple songs still need some editing. And then vocals are needed and necessary. So I got to sing...
Howard
6 min read
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576
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User Blogs
1:01 am and finally the pain has diminished in such a way as to allow my potential sleeping (while listening to Oranssi Pazuzu’s most recently released effort, Mestarin Kynsi. You see, I had wanted this album since the first came out a couple of years ago. During the big covid surge (back when I...
Katt
2 min read
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User Blogs
I'm very grateful to this community for creating such an extensive resource for the chronically ill. When I recently started having negative reactions to an oral B12 supplement I was surprised and confused. Not that long ago I had been able to afford vitamin B12 injections and had an amazing...
Tom Kindlon
1 min read
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244
User Blogs
Perhaps of interest if, for example, you are thinking of joining another social media platform. My social media channels are listed here: https://me-pedia.org/wiki/Tom_Kindlon#Online_presence ==== Mastodon vs Bluesky Just in case of interest to anyone: I now have exactly the same number of...
sunshine44
5 min read
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“However long or dark your night is Right where you are That’s where the light is My love The sun Is a reflection It’s true We’re one We are each other” One of my most favorite songs. I used to listen to it and sing it over and over at campfires as my limited energy allotted. It...
sunshine44
1 min read
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User Blogs
Barbara O’Neill has some amazing gems of wisdom pertaining to health. I’m not even going to summarize. If interested, highly worth your time to watch this in its entirety.