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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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User Blogs
Trigger warning. Medical ptsd triggers.
Not a pretty entry.
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I have worked so hard for years to reach today. YEARS. And years and years…. And years.
I need assistance and I know this. I’ve been rejected left and right from medical community. In SO many ways. Despite mostly...
Updates (without answers)
It's been exactly a month since I've been relegated to (mostly) bed duty… I may have had covid-19 (they didn't test me back then, but they are testing residents and staff now because we have several active cases in our hallway).
I shall make it known that I am...
Quick request ME/CFS friends….
Sharing in support of this brave woman that she hopefully gets the help she needs and deserves. How horrifying in 2023 you have to beg for your life publicly in hopes the hospital makes the right choice when you acquire certain illnesses that are blacklisted...
Monday morning music therapy✨🌹
“Told you we ain't dead yet
We been livin'
through your internet
You don't have to believe
everything you think
We've been programmed
wake up,
we miss you
They call you indigo,
we call you Africa
Go get baptized
in the ocean
of the people
Say reboot...
September 3rd (Sunday)
I've been stuck in bed for the past six days. Something went wrong, likely initiated by my new feeding formula.
I had "the runs" for 24-hours, and ever since, I've felt exhausted, poisoned, and shaky. I sweat profusely when sitting upright. And my bloating and stoma...
Chronic Infection: Extension-A Closer Look (Helpers for Epstein Barr Virus and Other Co-Infections))
So many herbs are multi beneficial in so many ways....that sometimes its hard to remember why society remains mostly focused on a few heroes finding a pharmaceutical that rarely is as extensively beneficial as the herb. We have millions of heroes around us at all times. They mostly don't require...
And to close off this series that i might as well of named Stephen Buhner's brief overview :lol: we will talk about a BRIEF amount of herbs possible to assist with viral and bacterial infections and cytokines.
I decided to do a brief overview because i have multiple bedridden friends that...
I would like to share a passage in Buhner's book on cytokines today...what they are and how they work.
"Cytokines are small cell signaling molecules released by cells that are damaged, cells of the immune system and the glial cells of the nervous system that are important in intercellular...
A energetic palette cleanser for my feed
💙🦋
Cerulean
Blue moon
In the sea
Waiting
But will you
dance with me
Dancing waves
Encompassing millennia
Beyond these crests
That break
There is a flow
That commands…
Commends
Magnetizes
Divests
Unrests
To create
Coming apart
To fALL...
I'm in my chair rolling around early Friday morning looking for a dead body. A corpse. You'd think it's got to be around here somewhere (indeed, I've covered the usual terrain). However, there remain several tucked away spots, places wherein I have no wheelchair access.
Why this in morbid...
It’s a brave new world….
A Friday night interruption from the chronic infections series.
I will open with another passage of Stephen Buhner's book on Lyme and co-infections (bartonella, Epstein Barr virus, coxackie, babesia etc) ....
"Lyme and its co-infections, instead of being thought of as they commonly are, should more properly be understood to be a closely cooperating group of...
Sunday Morning -
It seems there's a sense of urgency, as Todd is making a beeline for the porta potty (the orange one). He's barefoot. But now he's run out of grassy real estate, thus, slowing his pace considerably across the uneven parking lot (strewn with loose pebbles and other debris)...
My results arrived yesterday. Most of what i have is not surprising. Through the years i've had multiple infections such as shingles at 14, EBV (twice), CDC positive lyme and the list goes on...high Strep counts in my urogenital system yet multiple doctors always noted it was fine. :) Totally...
New Song: Get Outta This Place
There's this woman here, a staff member … and she and I have engaged interactions every now and again. So she approaches me as I'm playing guitar in the back corner area of the building (where I am hiding out). Then words come out.
"Are you going to serenade...
I have decided to do a three? part blog series on the potential role latent and invisible infections play in this realm of people that visit phoenix rising. Too many labels to list here. I had a mobile lab out this week to get a (expensive) test to see what microbes are left in me. No test is...