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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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sunshine44
6 min read
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11
User Blogs
My daughter has been showing signs of what I have or mold illness or a combination of both. For sometime now. 5 drs past 10 days. The most ridiculous diagnosis reasons for throwing up 3-5 am while just wanting to sleep and feeling burning up with no fever, 2 abnormal thyroid tests but not off...
godlovesatrier
3 min read
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489
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5
User Blogs
Someone asked me to update this post, I am no longer taking tudca, will try UDCA at some point: Diet High fibre to lower bacteroidetes (30g a day up from around 15) Low fat to lower bacteroidetes (removal of lamb, red meat once a week, fatty foods like chorizo and others out) Regular...
godlovesatrier
2 min read
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618
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8
User Blogs
Well my symptoms of sore throat, congestion and poor digestion with some very mild fatigue came back overnight after a 24 hour tudca break. Insomnia was bad overnight but I somehow managed to get back to sleep after covering myself with a second duvet. My body does this very very strange thing...
godlovesatrier
2 min read
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621
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User Blogs
Hi guys, So I have been taking tudca for about 6 to 7 days 250mg a day. I have been quite shocked at some of the improvements, here's a list: 1. initially improved cognitive clarity (less so in subsequent days likey due to poor sleep) 2. Physical fatigue disappeared and even when I had a bit...
Howard
6 min read
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932
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25
User Blogs
First, Last and Only "You need to try harder if you want to get stronger. Most people don't push themselves." Yes, he was talking to me, and about me. That was his immediate impression. The physical therapist assigned to me was insinuating that I wasn't trying hard enough, that I was unwilling...
Howard
8 min read
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964
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21
User Blogs
Basically, I am hiding in a cave. But it's not particularly dark, nor dank. Nope, I'd suggest dry and warm is the thematic equivalent. Or possibly, it's more so the thermostatic likeness. So while living in this garage, I must remain unheard and unseen for the duration - I shan't be deported...
godlovesatrier
2 min read
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437
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5
User Blogs
Continuing to eat black eyed beans while battling seasonal viruses and kidney stones. I've just done another round of 3 100g doses of black eyed beans and feel better again physically for doing it. I have had to increase my rishi dose to 4 caps 3 X a day and ive restarted TIME lions mane...
sunshine44
2 min read
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643
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15
User Blogs
Eclipse Moon Enough, Enough Close the doors please 🙏 “Strange times we're living in World can put fear in ya Hierarchy parties, they make us feel inferior Greed runs through the parliament interior Devils walk among us, they fit the criteria Eerie theories strike fear in weary minded men...
Howard
6 min read
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668
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4 days, 21 hours, and 44 minutes is all I have left And really, I should stop right there. No need to continue on with additional words, is there? Well, I suppose there's a minimum amount of words required to officially make this a blog entry. So I shall indeed enter more words. And then...
sunshine44
4 min read
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548
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6
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13
User Blogs
The current situation. Why is this whole illness such a nightmare from beyond? It’s like some of us have to stave off demons from every direction whilst already battling for our lives alone. So, I have a few things that are approaching medical intervention, if I want to stay alive that is...
godlovesatrier
2 min read
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488
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2
User Blogs
Hi guys, I wanted to do an update on what I take now and what dietary interventions I am making that are important. I am still on a lot of josh's OLD protocol (not his new one) but I have added a few other things, so here it is Diet interventions increase firmicutes and lower bacteroidetes...
sunshine44
2 min read
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311
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3
User Blogs
“…hi Ren… I’ve been taking some time to be distant, I’ve been taking some time to be still I’ve been taking some time to be by myself and I've spent half my life ill But just as sure as the tide start turning Just as sure as the night has dawn Just as sure as rain fall soon runs dry when you...
Howard
4 min read
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850
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6
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23
User Blogs
This will be one of my last evenings perched above the freeway. And due to the excess noise beneath me, I am nearly hollering into my phone as a means to get my words across and understood (via voice-to-text). I suppose you don't need to know this, or perhaps, you don't need to know anything at...
sunshine44
2 min read
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257
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3
User Blogs
"I have woken up With heart broken again No smart poetic answers To the suffering that rages In places I do not know No fancy spiritual philosophy That shields them When the bombs fall Just a tiny voice that whispers The love of peace Even in the midst of war." ~...
Howard
4 min read
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730
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12
User Blogs
Dos As of today it's been two years since I first came to reside at the nursing home. And somehow I've survived this ordeal. Of course, many haven't. The average lifespan of a nursing home male species inductee is approximately 6 months. Females typically last 9 months. It's true though, that I...
sunshine44
1 min read
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223
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User Blogs
Fires…::….. “And if you have ever been abandoned. Be a constant. If you have ever been wrapped up in nights so dark, you could not find your way back home. Be light. If you have ever fallen apart into a thousand, fractured pieces and wondered where on earth everyone has gone. Be present. If...
sunshine44
4 min read
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374
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User Blogs
“Here is a truth you often don’t hear: traumatized women have the potential to become the most powerful people in this world. The most ignorant members of society call this type of woman “damaged.” But she is the most powerful type of woman there is What they forget is that survivors have...
sunshine44
1 min read
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341
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User Blogs
Because….music. Moon river, wider than a mile I'm crossing you in style some day Oh, dream maker, you heart breaker Wherever you're goin', I'm goin' your way Two drifters, off to see the world There's such a lot of world to see We're after the same rainbow's end Waitin' 'round the bend My...
sunshine44
9 min read
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1K
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45
User Blogs
Trigger warning. Medical ptsd triggers. Not a pretty entry. ************ I have worked so hard for years to reach today. YEARS. And years and years…. And years. I need assistance and I know this. I’ve been rejected left and right from medical community. In SO many ways. Despite mostly...
Howard
5 min read
Views
430
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7
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3
User Blogs
Updates (without answers) It's been exactly a month since I've been relegated to (mostly) bed duty… I may have had covid-19 (they didn't test me back then, but they are testing residents and staff now because we have several active cases in our hallway). I shall make it known that I am...
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