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Money, Metal, Marijuana, and Abdominal Cutaneous Nerve Entrapment Syndrome

1:01 am and finally the pain has diminished in such a way as to allow my potential sleeping (while listening to Oranssi Pazuzu’s most recently released effort, Mestarin Kynsi. You see, I had wanted this album since the first came out a couple of years ago. During the big covid surge (back when I was exclusively bed bound and particularly close to dying) this particular band played a live concert on YouTube, playing the entire album from start to finish.

And the day they did this, was my first attempt at smoking marijuana (seeking out potential solutions or some kind of relief). It turned out that the relief was short in coming. The day after I took the loan hit off of the marijuana joint, I could not stay awake. And then the day after that, I had muscle pain from head to toe. My whole body ached, muscle burning.

Two more times (at three month intervals) I tried marijuana again, the edible form, and then a medical marijuana joint. Each time I took a minimal dosage. And each time the side effects played out similarly.

But now, that's not the case. Two weeks ago I started out with marijuana lollipops. And now I've graduated to smoking marijuana pre-rolls. Apparently, that's what they call marijuana joints, within the industry.

What I'm doing is taking one drag off of a joint each time the pain becomes unmanageable. Because, continuous pain really sucks! And no one wants to write me a script for pain medications. At least not at this point. But you know, help has always been slow in coming. I'm sure each of you can relate to my difficulties on that front.

Not only that, I also started smoking cigarettes. I hadn't smoked in years, but I read that nicotine can bring temporarily pain relief. And approximately 75% of the time, it does. It doesn't help much when the pain is super serious, but when it's only a 5 on the scale of 10, smoking does seem to help for 20 or 30 minutes at a time.

The thing is, I cannot smoke marijuana exclusively, or I would. As it turns out, I've already had two panic / anxiety attacks due to its effects. And really, I do not want to be high on drugs, even if they are legal.

So I started out with the marijuana lollipops, and augmented those with the cigarettes and other marijuana products. Today I purchased gummy bears.

I'm not high right now, I'm just a little bit cold. I do have the space heater, but I need to turn it off while I'm sleeping. I mean, perhaps I do not. But I'm not interested in starting a fire of any sort.

And I almost forgot to mention, we've had the coldest 7 days that I can remember - probably 2007 was that year. Upper 20s three or four different nights.

By the way, the marijuana is making me occasionally stupid. Dull. Unmotivated.


Oh

So I may have mentioned this before, but they finally figured out my SSI monthly stipend (in the neighborhood of $900). And since I hadn't had any spending money since 2013, I decided to spend $88 on music downloads. Some of these songs and albums had been on my list for the greater portion of a decade.

The genres are almost exclusively metal. Because that's been my mindset. The pain makes my mind aggressive. The aggressive music absolves my inclination towards aggressiveness.

So, the following bands are on my immediate future listening agenda (list provided simply for the reason that you have a feel for their band names):

Ekpyrosis

Nightmarer

Noneuclid

OXXO XOOX

Pensees Nocturnes

Pryapisme

Schizoid Lloyd

Sebkha-Chott

Scepticflesh

Triptykon

Varials

Wormed

And six additional Jute Gyte albums (at $3 a pop)


I absolutely do not recommend any of these bands for you, unless you are into psychedelic black metal, any of the metalcore(s), or technical metal variations.

On my way to the marijuana dispensary this afternoon, a guy in an SUV pulled over and stopped me.

“You want me to buy you some food, some dinner?”

He assumed I was homeless. Which I guess, is how I look right now. Heck, I'm probably pushing 115 lb, hoping the free fall has ceased. Because really, humans can survive on 800 calories a day. I've done it before, so doing it right now ain't no big deal.

And speaking of pain, and the inability to ingest sustenance, I am set for a nerve block on February 1st. Of course, the doctor did not explain any of the procedural or diagnostic details with me. So I've been doing my own research.

And it seems as though the procedure will be somewhat painful, as I cannot receive an IV sedative, because they do not have the technologically necessary equipment to give me an IV. I require ultrasound in order to place the needle. But whatever, they said they could give me a local.

I mean, how badly can it hurt?

Diagnose Me

By the way, my medical self diagnosis is Abdominal Cutaneous Nerve Entrapment Syndrome (ACNES). That's got to be it. The entire upper left quadrant underneath the rib cage feels bruised. And it's probable the nerve is entrapped in and around my stoma area, as a result of the procedure completed last February, where they replaced my feeding tube. That's when this sorta pain began, and also began increasing by the day.

I'm also aiming to see an acupuncturist sometime soon. I found a couple community acupuncturists who have a sliding fee scale. Maybe 30 bucks for an appointment. Conveniently located.

Kids Being Kids

Ummm …. A good thing is that my 5-year-old step grandson came to visit this afternoon. And I took him for a walk through the interior of the complex. He ended up playing a quick round of football with some of the older kids. He doesn't know the rules, and really just ran around in circles, but what the heck, why not?

In any case, I had fun spending time with him - even though it reminded me of the fun times ahead of my son before this illness struck me down (as well as the decade worth of fun times I missed while he was growing up, too busy being deathly ill). We used to play in the same exact grassy area, throwing the football around, the baseball, that sort of thing.

That's all I'm going to write for right now. Time to shut off the heat and shut off my brain.

I've got a few thousand words covering New Year's and engagements with some of the locals, but that requires proofreading. Perhaps this requires proof reading as well, but I'm not in that mindset. My mouth is getting slow. My eyelids are drooping. And I finally found a physician that may allow me to slip into unconsciousness. Not a physician, a position. And why not a possession? Or a procession? I need to march. Down the boulevard. The Dirty Boulevard. Something Lou Reed once sung before he died. Not that I'm a big fan of that song. “Walk on the Wild Side” and "This Magic Moment" are the two songs of his I really liked though.


Alright then people, hang in there. I'm surviving. So are you. And usually, I work towards being the best person that I can possibly be, but I've put that on hold of late. So perhaps y'all can do that for me. :)


Take care,
Howard Cha





P.S. I owe some of you responses to the comments and the previous blog entry, so I haven't forgotten. Or maybe I did forget. Few times. But now I remember. But the marijuana makes me forget. Yes, I will blame the marijuana for everything from now on and going forward. When I'm going backwards, however, I will Blame It on Rio!


  • 1:53 A.M.

Cold Palm Trees

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Cold Sunset

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Another Cold Occasion

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Comments

Oh: I read part of this.

I'm parked in Resume Marijuana

It can be a pretty effective pain killer and anti inflammatory and anti nausea.

But generally do not do rocket science on Marijuana. And work on that poem, tomorrow instead.

(nicotine patches have been recently recommended in lieu of smoking it)

Maybe you need a sign: THIS IS CHRONIC ILLNESS
 
Regarding this nerve syndrome: in the Dept of I'm Maybe Unrealistic, I think they may have some means, to block a particular nerve';s message....

Look Into That.

Yes find a good acupuncturist, also. Mine is very good, and has lots of raws chinese herbs in his office. (only now I cannot see him any longer, as I"m not nearby)
 
Don't know if this would help you or not? There are several other support groups that I belong to and some take California Poppy for pain. Note: Most of them take more than the suggested dose. Of course it's not going to be the same as your prescription pain pill but it might give you some kind of relief and may be worth a try.

Here are 2 that are used in those groups I mentioned.

California Poppy extract/tincture by Hawaii Pharm (alcohol free liquid)

BioNutrition California Poppy seed (capsules).

I used to be able to smoke marijuana pre CFS days but post CFS it just gives me more pain and not a very good high. Very puzzling.

Interesting about the cigarettes.
 
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Amazing sunset photo Howard and strange to see Phoenix looking more like the UK :woot: Stay warm.

I used to smoke marijuana when a lot younger (I'm your age) both before and after I got ill....after I got ill, it started to give me panic attacks more often than not so I stopped.

Have also smoked cigarettes - maybe slightly helped for a while, not dramatically, but the effect wore off.

There's a recent thread on the forum about folks experimenting with nicotine patches...

Nice that someone approached you on the street with an offer of help rather than threatening you like the last a**hole!

Yes, music is important to me also - great than you can now afford new downloads....enjoy!
 
I think they may have some means, to block a particular nerve';s message....

Right, I'm hoping the nerve block procedure will be successful somehow. :)

Additionally, I've been given a referral to see a physiatrist. I've never heard of that type of doctor previously, but apparently they do something in order to resolve something. Hopefully the something that resolve is my pain related issue.

The referral came from my gastroenterologist, who, seems to have given up on any solutions from his end of the ledger. Locating the feeding tube elsewhere is a potential option --- not one that I relish though.
 
Interesting about the cigarettes.

Thank you, I will check out the Poppy People of California. I'm pretty much open to anything at this point.

And yeah, the cigarette turned a good thing, but I'm desperate and type of relief, even if it's only psychological, psychosomatic, or whatever. Smoking gives me a few minutes of rebellious reprieve. Hopefully I can quit doing this soon.

And I trust you are staying warm. So far in this calendar year 2024, it's been below to well below average each and every day. I'd imagine you are in the same boat.
 
There's a recent thread on the forum about folks experimenting with nicotine patches...

Yeah, someone did recommend the nicotine patches to me. For me. I also may try caffeine, perhaps that will stimulate my intestines and relieve some of the pressure. If that's truly the cause.

Nice that someone approached you on the street with an offer of help rather than threatening you like the last a**hole!

I truly believe that people don't know what to make of me. I guess in a way, I wander around like a homeless person. I surely look malnourished, perhaps like a meth head. I pretty much wear the same clothes everyday. Limited stock. And I do indeed communicate with the homeless directly, on occasion.
 
There's a recent thread on the forum about folks experimenting with nicotine patches...

Yeah, someone did recommend the nicotine patches to me. For me. I also may try caffeine, perhaps that will stimulate my intestines and relieve some of the pressure. If that's truly the cause.

Nice that someone approached you on the street with an offer of help rather than threatening you like the last a**hole!

I truly believe that people don't know what to make of me. I guess in a way, I wander around like a homeless person. I surely look malnourished, perhaps like a meth head. I pretty much wear the same clothes everyday. Limited stock. And I do indeed communicate with the homeless directly, on occasion.
 
I tried to see if there is a ACNES specialist in AZ but couldn't find anyone. There is a website (maybe you found it already)
https://www.acnesawareness.org/# but it doesn't seem to work on my web browser. My OS is Windows 7 so sometimes Firefox doesn't work well on it anymore.

Even if we could find a doctor out of state, maybe you could email him and do a virtual consult and he could help you find a doctor near you to do the surgery. (I think when you talked about this before that it requires surgery). Yikes.

Wonder how they would do that if you can't do a sedative. Maybe a spinal block. The surgeon did that instead of a lot of sedatives for my Mom because she had COPD and they were afraid the regular sedatives would affect that.

Edit: Boston Children's does it. Maybe they know a doctor who handles adult patients too??? https://www.childrenshospital.org/conditions/anterior-cutaneous-nerve-entrapment-syndrome

Edit #2: This doctor in NC: https://school.wakehealth.edu/faculty/a/william-b-applegate wrote this paper about it: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6220638/

Not sure why this person only gave him a 1 star and then a glowing review. ??https://www.healthgrades.com/physician/dr-william-applegate-xttvm

Edit #3: This page quotes him but I don't like that CAWP designation that the article (not him) calls this pain. That makes it almost sound psychosomatic. :(
https://immattersacp.org/archives/2017/09/abdominal-wall-pain-as-its-own-diagnosis.htm

It also listed another treatment beside surgery.
 
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Hi @Howard.....& Others, I hope you're all staying good and warm. From one extreme to the other it would seem.

Here in sunny Dallas we were expecting a low of -6F this morning. I have no idea what the temp. was, but the house was mighty frigid. Which led me to think of everyone, and especially you, Howard, living in an uninsulated garage. Brrr....! You'd better take a chance on the space heater, I think.

I know that Phoenix had very cold weather and of course know that cold temps. are throughout the country (with more storms, etc., to come). Really, I have nothing to complain about, but we were without the internet from Sat. evening until mid-morning today. It's a bit shocking to think of how much we rely on this "new tech." Shocking, indeed....no one knows how to inflate a tire much less cook dinner.

Anyway, I'll stop complaining because I'm not in pain, nor am I cold. We've kept the thermostat low to help others (really, do you think this works?)
All is good here and I hope everyone else is the same. Yours, Lenora
 
I tried to see if there is a ACNES specialist in AZ but couldn't find anyone. There is a website (maybe you found it already)
Thanks for searching. What they are now doing is sending me to a Physiatrist -

Physiatry is the medical specialty that emphasizes the prevention, diagnosis, treatment and rehabilitation of people disabled by disease, disorder or injury.

It is one of the newer areas of medicine that manages a diversity of conditions involving the nervous and musculoskeletal systems, and focuses on function, independence and quality of life.

Physiatry, also referred to as Physical Medicine & Rehabilitation, provides integrated, multidisciplinary care aimed at recovery of the whole person by addressing the individual's physical, emotional, medical, vocational and social needs. Physiatry is unique among medical specialties in that its area of expertise is the functioning of the whole patient, as compared with a focus on an organ system or systems. A doctor who specializes in physical medicine and rehabilitation is called a physiatrist.


So that looks promising, right? I mean, perhaps this specialist will be the curious sort.

And then hopefully this pain specialist can execute the nerve block plan.

Very glad your electricity is up and running!!!
 
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Those of you who are frozen solid may enjoy this depiction of a warm 74° in the desert environs - basically, short sleeve weather, at long last!

This is about 2 miles away from where I live. Hurray for excursions into the abyss.
 
View attachment 53269


Those of you who are frozen solid may enjoy this depiction of a warm 74° in the desert environs - basically, short sleeve weather, at long last!

This is about 2 miles away from where I live. Hurray for excursions into the abyss.

Ahhh, that sky looks a lovely blue and I love those cacti - so unique.

Great that you got out in that warm sunshine and beautiful scenery 🌞
 

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