Tom Kindlon

UK medical research charities spend a broadly similar amount to the taxpayer-funded National Institute for Health Research & Medical Research Council
There is a popular tweet going around by somebody with ME in the UK complaining that biomedical research shouldn't have to be funded/crowd-funded by charities. I have no wish to name this individual; I imagine lots of people have a similar view. But it does give me an opportunity to highlight...
Tom Kindlon
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488
Should donating to ME/CFS research be left to millionaire sufferers and ex-sufferers? I'm not convinced
I think it is important that there is private money raised for research to speed up research progress. For example, researchers will have a better chance of getting government grants if they have pilot data which can be paid for from private funds. Also, ideally private funds would step in to...
Tom Kindlon
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2
It'd be great if ME/CFS research funds could be set up in more countries, either as part of existing groups, stand-alone or affiliates of other charities As I have argued before, research progress is most likely if all of the following are contributing significant funds to research: (i)...
Tom Kindlon
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1,049
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(This is an updated version of something I wrote in July 2017) I am fortunate to have managed to get my BMI down to a healthy 21.7 by losing 70 lb / 32kg / 5 stone while ill with severe ME/CFS. (I hope to lose a bit more again: I feel I have the habits now to be able to do that slowly, without...
Tom Kindlon
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1,113
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I am fortunate to have managed to get my BMI under 25 (24.7) by losing 48lb / 22kg / 3st 6lb while ill with severe ME/CFS. (I hope to lose more again). It took me 2.5 years so I didn't break any records. I thought I would share some techniques I used to lose the weight as a few people did ask...
Tom Kindlon
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This week is my 28th anniversary of becoming sick (aka "sickaversary") with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome at age 16. I've spent nearly 22.5 years severely affected. I'm one of millions around the world. We need more public and private money to make research progress...
Tom Kindlon
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184
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Some reasons why I donate to research into my illness (ME/CFS) (Following on from a discussion elsewhere, I was prompted to write this) I see donating to ME/CFS research as ways to: - Help myself. There clearly isn't enough known about the condition. So much is guesswork. I would like...
Tom Kindlon
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I have been reflecting on reasons why I'm passionate to get rid of Chronic Fatigue Syndrome (CFS) following a Twitter exchange yesterday. I had a long battle against the CDC's empiric criteria which found that 2.54% of the population were affected. It was a terrible definition. For example, 89%...
Tom Kindlon
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165
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3
(I originally posted this on Co-Cure back in 2007 but thought I'd post it somewhere else now. The same points still apply I thought people might find it interesting to look at the SF-36 physical functioning sub-scale as it is one of the two primary outcome measures in the PACE trial and in...
Tom Kindlon
Views
119

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Tom Kindlon
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