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Protocol for ME/CFS induced by herpes veridai viruses
- Author godlovesatrier
- Create date
- Updated
Neutrophils are at 1,29.
B12 is at 1000
Esr is still 2 5 years after my first test!
Doctor has referred me to hematology but I'm not expecting much. However if I can get the nhs to prescribe anti biotics I think that might help. But it does mean regular anti biotics.
I've definitely got some...
So I got my latest blood test results, neutrophils are now down to 1.29 and prolactin is around 500.
I did some research and it seems clinically high prolactin doesn't always mean high prolactin. It can often mean high macro prolactin and normal prolactin. Prolactin is made up of two types...
So slightly odd turn of events, assuming I don't crash tonight or tomorrow morning I seem to be having the same energy levels as of Friday that I did 1 day prior to my first az covid jab. This is WITHOUT PEM and without any fatigue at all.
It's bizarre but I am happy.
I really need to post...
A chink of light in that dank dark diseased state? Ok so I am being dramatic but I started feeling better last night and woke up thismorning feeling quite "with it". Physically and mentally so far, I think the physical with it will stay even if the mental waxes and wanes.
24 hours is normally...
Have added egcg back in 80mg in the AM as it appears to completely cancel out brain fog.
I still have a cold...it feels like a new one but I don't see how that's possible. All the solid energy I had before the flu jab has gone, so no longer feel like I am heading towards normality.
I'm at 70%...
Still in a bit of a dip since the flu jab.
I got the flu jab and felt hyperactive for about 4 days and then a cold which my gf had already given me seemed to go nuclear. Sore throat with muscle fatigue, joints hurt on and off, asthma on and off. Also lots of phlegm in my throat. I've prob...
So it's been 4 days since I had the flu jab and I feel pretty good. Not 100% but about 90% and for me considering every single year brings on 2 weeks of feeling crap after the flu jab (from memory this was even true when I was on ginseng) basically nothing has helped me with that, but the...
Still taking most of the protocol apart from egcg and lions mane.
I added
magnesium malate 1 capsule 3x a day
mag biglycinate 3x a day
1.5g vitamin x 3x a day
120mg mag ascorbate magnesium 3x a day
zinc 10mg AM
selenium 100mg AM
Still taking 2g NAC 3x a day for it's anti enteroviral...
Just a quick update. Neutrophil count still falling, now down to 1.4.
Prolactin still very high.
But doctor referring me to specialists if they keep going down, so that's good news!
So after much experimentation over about 6 weeks and lots of false guesses. I was still getting more and more and more depressed. My sex drive reached zero and my motivation to do anything was incredibly low. Depression also meant I couldn't really speak to anyone, unless it was work related...
I keep forgetting to give an update of my functioning. Even though I do think I have an infection which I'm treating with ghanian quinine tincture (finally found out that if I put the drops in a gelatin capsule I can get the right dose 3x a day and it doesn't hit my teeth - which means no...
I've amended my b vitamins. If I take 80mg egcg twice a day the muscular and back issues from lack of b12 aren't too bad and I don't energy crash when not taking it, which is good.
I'm now taking
B2 50mg
No b3 due to depression side effects
B5 20mg
B1 100mg
Molybdenum 200uq
No biotin, no...
It's been awhile since I posted. As I have been experimenting and trying to figure out various things. But primarily focusing on b vitamin's.
Firstly I switched from Thorne multi to b12 oils and individual b vitamin's.
Then I experimented with niacin to stop insomnia from over methylation...
Last night I took niacin as niacinamide 100mg before bed and slept like a baby. Did the same thing the night before. I keep going to bed a bit wired and after a chat with Caledonia she suggested I try niacin to knock down methylation. The more I've experimented the more I've realised that...
I should point out that today I dropped the thorne b complex in favour of b12 oils and individual b vitamins combined with metafolin. So basically the same as the thorne just more bioavailable with one additional b12 vitamin type.
I used half a squirt of the b12 oil today. Took 400mg...
A recap of what I am taking:
1 thorne b complex
8000 IU vitamin D
400uq vitamin E
half a mineral capsule biocare mineral complex (zinc, selenium, copper, molydenum, mag, boron, etc)
2 lions mane ultra capsules 3x a day
1 reishi capsule 3x a day (lowered the dose to save on reishi costs! but...
This is my third day off the b complex. Huge drop in energy today, feels like energy has been pulled out of my muscles, they also feel a bit colder than usual. Dizziness got much worse last night and even worse into today. It's not the same dizziness from ME though, this is actually...
Haven't had any real PEM now for awhile. I did quite a lot yesterday and didn't feel 100% while doing it, but I woke up this morning with muscles aches and mild fatigue, instead of a full blown hellish crash.
This took ages to achieve and I'm pretty convinced the beta glucans and reishi are...
So this last week I've been feeling ok, but I did some more experiments.
Firstly I tried taking out the b complex, interestingly this brought back the inflammation in my neck and occipital area, nothing else did this on the protocol. So maybe b vitamins are responsible for getting rid of...
So I had a bit of a breakthrough 3 days ago. I had a chat with a PR member who's also on the protocol. He's the same age as me, able to work full time, but all the symptoms of ME for the last five or ten years. At any rate he said he'd not been taking any b vitamins the entire time he'd been...