Connective Tissue Disorders: Collagen, EDS, CCI

This is the forum for connective tissue problems related to impaired collagen, such as abnormally droopy skin or hypermobile cartilage. This is also the place to discuss disorders like Ehlers-Danlos syndrome (EDS), vascular compression syndromes, and related conditions such as craniocervical instability (CCI).
Pyrrhus
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Vascular Compression: Summary of Discussions
Replies
12
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3K
CristianSerious
CristianSerious
mattie
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  • Poll
Tracking CCI / AAI MRI & Treatment outcomes
23 24 25
Replies
484
Views
107K
CristianSerious
CristianSerious
SK2018
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Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS
116 117 118
Replies
2K
Views
354K
Strawberry
Strawberry
Pyrrhus
  • Sticky
ME/CFS Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing... (van Campen et al., 2021)
Replies
13
Views
4K
kushami
K
sb4
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  • Poll
Have you noticed symptoms of Connective Tissue degradation since onset of disease?
2 3
Replies
58
Views
15K
cheeseater
C
RobeAnJa
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What’s the theory behind the connection between Ehlers-Danlos Syndrome (EDS) and ME/CFS? (Other than CCI/AAI)
2
Replies
22
Views
4K
pattismith
pattismith
sb4
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Signs of Intracranial Hypertension, Hypermobility, and Craniocervical Obstructions in Patients With ME/CFS
Replies
10
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3K
Bowser
B
Hip
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CCI SURVEY – for all ME/CFS patients tested for CCI and related conditions (please answer whether tested positive or negative)
5 6 7
Replies
122
Views
25K
Rufous McKinney
Rufous McKinney
SWAlexander
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Exercise Intolerance in Hypermobility: Systemic Vascular Distensibility relates to exercise capacity in connective tissue disease (Singh et al 2021)
Replies
4
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2K
bread.
B
pattismith
  • Sticky
weakness of the collagen surrounding peripheral nerves in Ehlers-Danlos Syndrome (EDS)
Replies
3
Views
2K
Pyrrhus
Pyrrhus
Hip
  • Sticky
  • Poll
POLL: Do You Have a Sacral Dimple on Your Lower Back? (Can be Medically Significant, and May be Linked to ME/CFS)
2
Replies
31
Views
11K
bensmith
bensmith
Jesse2233
  • Sticky
Recovery of 3 Severe ME/CFS Patients After Cervical Spinal Stenosis Surgery (2018 / Peter Rowe)
2
Replies
38
Views
9K
Marky90
Marky90
Hip
  • Sticky
Consensus Statement on Craniocervical Instability (CCI)
Replies
2
Views
6K
pattismith
pattismith
I
Understanding Invasive Cervical Traction (ICT) Results: How was the dynamic BDI 2mm threshold determined?
Replies
3
Views
301
MecfsPatient
M
S
Diagnosed Cervical Instability
2
Replies
32
Views
4K
Wayne
Wayne
Jyoti
Andrew Maxwell's Theory of .... a lot
Replies
0
Views
423
Jyoti
Jyoti
B
I might have found the cause of my CFS (Eagle syndrome + IJV compression)
Replies
7
Views
642
borko2100
B
Hip
Doxycycline as a CCI treatment: low-dose doxycycline inhibits the MMP enzymes which break down collagen and elastin in ligaments
2 3 4
Replies
76
Views
17K
Marcelo92
M
B
Craniocervical instability surgeons USA
Replies
3
Views
517
SickOfSickness
SickOfSickness
Jwarrior77
  • Poll
Eosinophils and their role in Connective Tissue Disorders, Autonomic Dysfunction, and Mast Cell interactions.
Replies
15
Views
3K
Bexy89
B
belize44
Crest Syndrome
Replies
2
Views
439
Judee
Judee
Wayne
Alternative Non-Surgical Possibilities for Addressing CCI/AAI or Other Serious Neck Issues
7 8 9
Replies
169
Views
33K
Husband of
H
T
IM Vitamin C Injections for hEDS... anyone tried this???
2
Replies
24
Views
2K
Judee
Judee
H
Collagen Modulators
Replies
14
Views
1K
Judee
Judee
B
  • Poll
CCI / AAI / chiari / instability /neck evaluation by Dr Gilete
2 3
Replies
56
Views
14K
Zebra
Zebra
H
Email to neurologist about MRI
2
Replies
23
Views
2K
Husband of
H
Insomniac
Newbie- Does Hypermobility Spectrum or EDS rule out a diagnosis of CFS?
Replies
6
Views
913
heapsreal
heapsreal
B
Calcitriol - anyone know if I can buy it online?
Replies
0
Views
559
Bexy89
B
B
Are there any ideas for natural treatment of tethered cord and cci?
Replies
18
Views
1K
YippeeKi YOW !!
YippeeKi YOW !!
crypt0cu1t
Could someone help me make sense of this?
Replies
5
Views
2K
crypt0cu1t
crypt0cu1t
H
Minimal Resources, Waning Cognition - Where do I Start My CCI or Cervical Spine Journey?
2
Replies
28
Views
2K
lenora
L
W
Where to get CCI prolotherapy / prp: caring medical, centeno clinic or other?
Replies
3
Views
837
Rufous McKinney
Rufous McKinney
B
Sleeping on the belly with head to the side - is it bad for neck issues?
Replies
8
Views
1K
Rufous McKinney
Rufous McKinney
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