This is apparenrly much common than people think and most people with neck pain have some amount of instability.
I just spent 7 hours yesterday having imaging done and going over things with the doc and Ive got major instability between C-0/C1 and some between C1/C2. Atlas is about 5.5mm off of where it should be with ~3mm overhang on lateral flexion from laxity as well.
I went to Caring Medical in Florida after talking with a number of clinics nationwide and Dr Giletes office in Spain and felt that caring medical was a good medium of expense, ease to get to, knowledge, etc since they see people from all over the world.
Caring medical was the only clinic I talked to with a screening process and multi-step at that.
Overall I was impressed which doesn’t happen much - only one other time my 4-5 years of docs. They were incredibly thorough and did maybe 20 sets of imaging for the optic nerve, pupillary size and reflex, vagus nerve imaging, internal jugular vein imaging in multiple sitting and supine positions including the position I sleep in which was interestingly enough the worst one. They also image cerebral arteries and measure rate of flow to help determine intracranial hypertension. In addition to these, they do autonomic feedback testing in multiple positions, digital motion X-ray, and 3D cone beam scan.
All in all, I’ve got a dilated optic nerve, around 50% vagus nerve deterioration, occlusion of the internal jugular veins with my left being severe, and intracranial hypertension along with obvious structural deviations on imaging.
So their approach seems to work well and they are more than happy to work with other clinics local to you if you are from out of state or out of the country. Putting money in their pockets doesn’t seem to be the goal and they’re more than happy for people to get treatment elsewhere and help coordinate that if they can.
So, prognosis is good from what they told me. They start with cervical curve correction using cervical weights primarily and the nurse that was with me said they see incredible results with the fastest curve correction he has seen being completed within a month. He speculated that mine would probably take around 3 months.
After, or in conjunction depending on the case, curve correction they begin treating with prolotherapy primarily. They do use PRP and stem cell but they said they find it’s unnecessary in most cases. They have sent people for spinal fusion but they said they see more cases of people after fusion than I would believe and they reserve surgery for the most severe rare cases - said they’ve only sent a handful of people before.
This is the last thing I wanted to hear but I’ve had cervical pain now for a long time which, at this point, appears to be secondary to mold exposure.
I think this also explains some things that haven’t been answered by other diagnoses. I am likely going to send my results for a 2nd opinion for good measure but right now my plan is to go back in 2 weeks for a first round of prolo and get fitted for cervical weights. Ideally gonna attack this as much as I can for at least 3 months, full treatment being around 6 mounts, and evaluate results along with the other stuff I’m doing for treatment.
I just spent 7 hours yesterday having imaging done and going over things with the doc and Ive got major instability between C-0/C1 and some between C1/C2. Atlas is about 5.5mm off of where it should be with ~3mm overhang on lateral flexion from laxity as well.
I went to Caring Medical in Florida after talking with a number of clinics nationwide and Dr Giletes office in Spain and felt that caring medical was a good medium of expense, ease to get to, knowledge, etc since they see people from all over the world.
Caring medical was the only clinic I talked to with a screening process and multi-step at that.
Overall I was impressed which doesn’t happen much - only one other time my 4-5 years of docs. They were incredibly thorough and did maybe 20 sets of imaging for the optic nerve, pupillary size and reflex, vagus nerve imaging, internal jugular vein imaging in multiple sitting and supine positions including the position I sleep in which was interestingly enough the worst one. They also image cerebral arteries and measure rate of flow to help determine intracranial hypertension. In addition to these, they do autonomic feedback testing in multiple positions, digital motion X-ray, and 3D cone beam scan.
All in all, I’ve got a dilated optic nerve, around 50% vagus nerve deterioration, occlusion of the internal jugular veins with my left being severe, and intracranial hypertension along with obvious structural deviations on imaging.
So their approach seems to work well and they are more than happy to work with other clinics local to you if you are from out of state or out of the country. Putting money in their pockets doesn’t seem to be the goal and they’re more than happy for people to get treatment elsewhere and help coordinate that if they can.
So, prognosis is good from what they told me. They start with cervical curve correction using cervical weights primarily and the nurse that was with me said they see incredible results with the fastest curve correction he has seen being completed within a month. He speculated that mine would probably take around 3 months.
After, or in conjunction depending on the case, curve correction they begin treating with prolotherapy primarily. They do use PRP and stem cell but they said they find it’s unnecessary in most cases. They have sent people for spinal fusion but they said they see more cases of people after fusion than I would believe and they reserve surgery for the most severe rare cases - said they’ve only sent a handful of people before.
This is the last thing I wanted to hear but I’ve had cervical pain now for a long time which, at this point, appears to be secondary to mold exposure.
I think this also explains some things that haven’t been answered by other diagnoses. I am likely going to send my results for a 2nd opinion for good measure but right now my plan is to go back in 2 weeks for a first round of prolo and get fitted for cervical weights. Ideally gonna attack this as much as I can for at least 3 months, full treatment being around 6 mounts, and evaluate results along with the other stuff I’m doing for treatment.