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Forums
Comorbid Conditions / Differential Diagnoses
Comorbid Conditions
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Connective Tissue Disorders: Collagen, EDS, CCI
This is the forum for connective tissue disorders like Ehlers-Danlos syndrome (EDS), and related conditions such as craniocervical instability (CCI).
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Sticky
Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS
SK2018
Jan 1, 2018
114
115
116
Replies
2,309
Views
265,369
Aug 20, 2022
Husband of
Sticky
CCI SURVEY – for all ME/CFS patients tested for CCI and related conditions (please answer whether tested positive or negative)
Hip
Aug 19, 2019
4
5
6
Replies
118
Views
18,410
Jun 7, 2022
Hip
Poll
Sticky
Have you noticed symptoms of Connective Tissue degradation since onset of disease?
sb4
Jun 2, 2019
2
3
Replies
56
Views
10,641
Apr 14, 2022
Reading_Steiner
Poll
Sticky
Tracking CCI / AAI MRI & Treatment outcomes
mattie
Jan 3, 2019
23
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25
Replies
482
Views
83,831
Mar 10, 2022
BaileyBeached
Sticky
ME/CFS Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing... (van Campen et al., 2021)
Pyrrhus
Jul 1, 2021
Replies
11
Views
2,597
Dec 27, 2021
Pyrrhus
Sticky
Exercise Intolerance in Hypermobility: Systemic Vascular Distensibility relates to exercise capacity in connective tissue disease (Singh et al 2021)
SWAlexander
Dec 20, 2021
Replies
4
Views
858
Dec 22, 2021
bread.
Sticky
What’s the theory behind the connection between Ehlers-Danlos Syndrome (EDS) and ME/CFS? (Other than CCI/AAI)
RobeAnJa
Dec 6, 2020
2
Replies
21
Views
2,430
Dec 17, 2021
ChookityPop
Sticky
Vascular Compression: Summary of Discussions
Pyrrhus
Jul 21, 2021
Replies
11
Views
1,598
Nov 27, 2021
Rufous McKinney
Sticky
Signs of Intracranial Hypertension, Hypermobility, and Craniocervical Obstructions in Patients With ME/CFS
sb4
Sep 30, 2020
Replies
8
Views
1,643
Jul 13, 2021
kangaSue
Sticky
weakness of the collagen surrounding peripheral nerves in Ehlers-Danlos Syndrome (EDS)
pattismith
Sep 10, 2019
Replies
3
Views
1,424
Jul 13, 2021
Pyrrhus
Poll
Sticky
POLL: Do You Have a Sacral Dimple on Your Lower Back? (Can be Medically Significant, and May be Linked to ME/CFS)
Hip
Aug 26, 2020
2
Replies
31
Views
6,774
Jan 29, 2021
bensmith
Sticky
Recovery of 3 Severe ME/CFS Patients After Cervical Spinal Stenosis Surgery (2018 / Peter Rowe)
Jesse2233
Feb 4, 2018
2
Replies
38
Views
7,114
Nov 11, 2019
Marky90
Sticky
Consensus Statement on Craniocervical Instability (CCI)
Hip
Aug 13, 2019
Replies
2
Views
4,035
Sep 25, 2019
pattismith
H
Minimal Resources, Waning Cognition - Where do I Start My CCI or Cervical Spine Journey?
hikinglo
Sunday at 4:24 PM
2
Replies
21
Views
255
Yesterday at 4:38 PM
Judee
W
Where to get CCI prolotherapy / prp: caring medical, centeno clinic or other?
wegonebeaite
Aug 24, 2022
Replies
3
Views
192
Aug 25, 2022
Rufous McKinney
S
Diagnosed Cervical Instability
Swim15
Feb 18, 2022
2
Replies
28
Views
1,296
Aug 24, 2022
wegonebeaite
Could someone help me make sense of this?
crypt0cu1t
Jul 9, 2022
Replies
4
Views
473
Aug 3, 2022
HurrySaveMe
B
Poll
CCI / AAI / chiari / instability /neck evaluation by Dr Gilete
bombsh3ll
Jun 9, 2019
2
3
Replies
47
Views
9,422
Aug 1, 2022
Pyrrhus
B
Sleeping on the belly with head to the side - is it bad for neck issues?
Bergkamp
Jul 10, 2022
Replies
8
Views
408
Jul 10, 2022
Rufous McKinney
hEDS: the causal genetic mutation may have been identified!
Zebra
Jul 3, 2022
Replies
0
Views
284
Jul 3, 2022
Zebra
Question about EDS
MikeC
Nov 10, 2020
2
3
Replies
52
Views
3,614
Jun 29, 2022
lint7
Growing CCI issues from a few weeks bedbound?
GlassCannonLife
Mar 16, 2022
Replies
5
Views
597
Mar 17, 2022
GlassCannonLife
Looking for info on CCI/AAI diagnosis in Australia
purrsian
Dec 22, 2019
Replies
11
Views
1,448
Mar 16, 2022
GlassCannonLife
Doxycycline as a CCI treatment: low-dose doxycycline inhibits the MMP enzymes which break down collagen and elastin in ligaments
Hip
Sep 8, 2019
2
3
4
Replies
62
Views
9,374
Feb 18, 2022
Momentum
Has anyone noticed significant changes in their collagen? ( Vascular, Skin, Joints )
Jwarrior77
May 9, 2020
2
3
Replies
41
Views
4,703
Jan 28, 2022
Ethereal55
Alternative Non-Surgical Possibilities for Addressing CCI/AAI or Other Serious Neck Issues
Wayne
Jan 31, 2019
7
8
9
Replies
168
Views
22,769
Jan 11, 2022
Violeta
Washington Post Article: -- A doctor struggled with a rare, incurable syndrome [Ehlers-Danlos]. Now she helps others overcome it.
Wayne
Dec 27, 2021
Replies
7
Views
1,451
Dec 30, 2021
lenora
Are these symptoms sounding like connective tissue disease?
ChookityPop
Nov 27, 2021
Replies
9
Views
1,032
Dec 28, 2021
Crux
J
My ME is in remission
JenB
May 20, 2019
9
10
11
Replies
208
Views
34,350
Dec 27, 2021
valentinelynx
Jeff anyone who have consulted with Dr Bolonesse ... help confused!
humanrising
Feb 4, 2019
2
Replies
30
Views
5,715
Dec 22, 2021
kewia
W
Cervical C1 PRP treatments in Canada?
wegonebeaite
Dec 15, 2021
Replies
4
Views
986
Dec 19, 2021
Nord Wolf
Link between craniocervical instability (CCI) and Dr Markov's bacterial dysbiosis theory of ME/CFS?
Hip
Dec 13, 2021
Replies
7
Views
1,224
Dec 14, 2021
godlovesatrier
Anyone identified connective tissue disease through whole genome sequencing?
ChookityPop
Nov 27, 2021
Replies
2
Views
948
Dec 3, 2021
lenora
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Forums
Comorbid Conditions / Differential Diagnoses
Comorbid Conditions