Menu
Home
Articles
Forums
New posts
Search forums
Google site search
Supplement search
Popular content
Donate to Phoenix Rising
What's new
New posts
New resources
New blog entries
New blog entry comments
Latest activity
Blogs
New entries
New comments
Blog list
Series
Search blogs
Resources
Latest reviews
Search resources
Members
Current visitors
About us
Log in
Register
What's new
Search
Search
Everywhere
Threads
This forum
Search titles only
By:
New posts
Search forums
Google site search
Supplement search
Popular content
Donate to Phoenix Rising
Menu
Log in
Register
Forums
Comorbid Conditions / Differential Diagnoses
Comorbid Conditions
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
Connective Tissue Disorders: Collagen, EDS, CCI
This is the forum for connective tissue disorders like Ehlers-Danlos syndrome (EDS), and related conditions such as craniocervical instability (CCI).
1
2
3
…
Go to page
Go
9
Next
1 of 9
Go to page
Go
Next
Last
Filters
Show only:
Loading…
Sticky
Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS
SK2018
Jan 1, 2018
113
114
115
Replies
2,291
Views
240,210
Monday at 11:49 AM
lenora
Poll
Sticky
Have you noticed symptoms of Connective Tissue degradation since onset of disease?
sb4
Jun 2, 2019
2
3
Replies
56
Views
9,286
Apr 14, 2022
Reading_Steiner
Poll
Sticky
Tracking CCI / AAI MRI & Treatment outcomes
mattie
Jan 3, 2019
23
24
25
Replies
482
Views
76,164
Mar 10, 2022
BaileyBeached
Sticky
ME/CFS Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing... (van Campen et al., 2021)
Pyrrhus
Jul 1, 2021
Replies
11
Views
2,067
Dec 27, 2021
Pyrrhus
Sticky
Exercise Intolerance in Hypermobility: Systemic Vascular Distensibility relates to exercise capacity in connective tissue disease (Singh et al 2021)
SWAlexander
Dec 20, 2021
Replies
4
Views
522
Dec 22, 2021
bread.
Sticky
What’s the theory behind the connection between Ehlers-Danlos Syndrome (EDS) and ME/CFS? (Other than CCI/AAI)
RobeAnJa
Dec 6, 2020
2
Replies
21
Views
1,862
Dec 17, 2021
ChookityPop
Sticky
Vascular Compression: Summary of Discussions
Pyrrhus
Jul 21, 2021
Replies
11
Views
1,101
Nov 27, 2021
Rufous McKinney
Sticky
CCI SURVEY – for all ME/CFS patients tested for CCI and related conditions (please answer whether tested positive or negative)
Hip
Aug 19, 2019
4
5
6
Replies
114
Views
16,368
Aug 1, 2021
TinaYesen
Sticky
Signs of Intracranial Hypertension, Hypermobility, and Craniocervical Obstructions in Patients With ME/CFS
sb4
Sep 30, 2020
Replies
8
Views
1,200
Jul 13, 2021
kangaSue
Sticky
weakness of the collagen surrounding peripheral nerves in Ehlers-Danlos Syndrome (EDS)
pattismith
Sep 10, 2019
Replies
3
Views
1,060
Jul 13, 2021
Pyrrhus
Poll
Sticky
POLL: Do You Have a Sacral Dimple on Your Lower Back? (Can be Medically Significant, and May be Linked to ME/CFS)
Hip
Aug 26, 2020
2
Replies
31
Views
5,445
Jan 29, 2021
bensmith
Sticky
Recovery of 3 Severe ME/CFS Patients After Cervical Spinal Stenosis Surgery (2018 / Peter Rowe)
Jesse2233
Feb 4, 2018
2
Replies
38
Views
6,475
Nov 11, 2019
Marky90
Sticky
Consensus Statement on Craniocervical Instability (CCI)
Hip
Aug 13, 2019
Replies
2
Views
3,532
Sep 25, 2019
pattismith
Question about EDS
MikeC
Nov 10, 2020
2
3
Replies
51
Views
2,721
May 8, 2022
vision blue
Growing CCI issues from a few weeks bedbound?
GlassCannonLife
Mar 16, 2022
Replies
5
Views
292
Mar 17, 2022
GlassCannonLife
Looking for info on CCI/AAI diagnosis in Australia
purrsian
Dec 22, 2019
Replies
11
Views
1,136
Mar 16, 2022
GlassCannonLife
S
Diagnosed Cervical Instability
Swim15
Feb 18, 2022
Replies
10
Views
451
Mar 11, 2022
Carl
Doxycycline as a CCI treatment: low-dose doxycycline inhibits the MMP enzymes which break down collagen and elastin in ligaments
Hip
Sep 8, 2019
2
3
4
Replies
62
Views
8,171
Feb 18, 2022
Momentum
Has anyone noticed significant changes in their collagen? ( Vascular, Skin, Joints )
Jwarrior77
May 9, 2020
2
3
Replies
41
Views
3,813
Jan 28, 2022
Ethereal55
Alternative Non-Surgical Possibilities for Addressing CCI/AAI or Other Serious Neck Issues
Wayne
Jan 31, 2019
7
8
9
Replies
168
Views
20,207
Jan 11, 2022
Violeta
Washington Post Article: -- A doctor struggled with a rare, incurable syndrome [Ehlers-Danlos]. Now she helps others overcome it.
Wayne
Dec 27, 2021
Replies
7
Views
1,014
Dec 30, 2021
lenora
Are these symptoms sounding like connective tissue disease?
ChookityPop
Nov 27, 2021
Replies
9
Views
702
Dec 28, 2021
Crux
J
My ME is in remission
JenB
May 20, 2019
9
10
11
Replies
208
Views
31,178
Dec 27, 2021
valentinelynx
Jeff anyone who have consulted with Dr Bolonesse ... help confused!
humanrising
Feb 4, 2019
2
Replies
30
Views
5,153
Dec 22, 2021
kewia
W
Cervical C1 PRP treatments in Canada?
wegonebeaite
Dec 15, 2021
Replies
4
Views
554
Dec 19, 2021
Nord Wolf
Link between craniocervical instability (CCI) and Dr Markov's bacterial dysbiosis theory of ME/CFS?
Hip
Dec 13, 2021
Replies
7
Views
826
Dec 14, 2021
godlovesatrier
Anyone identified connective tissue disease through whole genome sequencing?
ChookityPop
Nov 27, 2021
Replies
2
Views
658
Dec 3, 2021
lenora
many patients with HSD/hEDS meet Fukada criteria for diagnosis of CFS 2021 UK
pattismith
Nov 8, 2021
Replies
0
Views
470
Nov 8, 2021
pattismith
Cusack protocol for EDS—reports from anyone trying it
Sushi
Jun 5, 2021
Replies
13
Views
1,677
Oct 18, 2021
xebex
Cervical spine stenosis?
GlassCannonLife
Oct 2, 2021
Replies
3
Views
644
Oct 6, 2021
lenora
Self measurement of CCI on MRI?
judyinthesky
Sep 14, 2021
Replies
2
Views
601
Sep 17, 2021
judyinthesky
In the hospital in nyc having bad flair post surgery. Need help , including in person help
frozenborderline
Aug 23, 2021
Replies
16
Views
802
Aug 24, 2021
Jyoti
G
Spinal MRI test results. I’m looking for advice.
Goldfinch
Aug 6, 2021
Replies
2
Views
671
Aug 9, 2021
Goldfinch
1
2
3
…
Go to page
Go
9
Next
1 of 9
Go to page
Go
Next
Last
You must log in or register to post here.
Forums
Comorbid Conditions / Differential Diagnoses
Comorbid Conditions