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Forums
Comorbid Conditions / Differential Diagnoses
Comorbid Conditions
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Connective Tissue Disorders: Collagen, EDS, CCI
This is the forum for connective tissue disorders like Ehlers-Danlos syndrome (EDS), and related conditions such as craniocervical instability (CCI).
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Sticky
Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS
SK2018
Jan 1, 2018
114
115
116
Replies
2,305
Views
249,522
Jun 28, 2022
Jaker
Sticky
CCI SURVEY – for all ME/CFS patients tested for CCI and related conditions (please answer whether tested positive or negative)
Hip
Aug 19, 2019
4
5
6
Replies
118
Views
17,371
Jun 7, 2022
Hip
Poll
Sticky
Have you noticed symptoms of Connective Tissue degradation since onset of disease?
sb4
Jun 2, 2019
2
3
Replies
56
Views
9,938
Apr 14, 2022
Reading_Steiner
Poll
Sticky
Tracking CCI / AAI MRI & Treatment outcomes
mattie
Jan 3, 2019
23
24
25
Replies
482
Views
79,765
Mar 10, 2022
BaileyBeached
Sticky
ME/CFS Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing... (van Campen et al., 2021)
Pyrrhus
Jul 1, 2021
Replies
11
Views
2,379
Dec 27, 2021
Pyrrhus
Sticky
Exercise Intolerance in Hypermobility: Systemic Vascular Distensibility relates to exercise capacity in connective tissue disease (Singh et al 2021)
SWAlexander
Dec 20, 2021
Replies
4
Views
749
Dec 22, 2021
bread.
Sticky
What’s the theory behind the connection between Ehlers-Danlos Syndrome (EDS) and ME/CFS? (Other than CCI/AAI)
RobeAnJa
Dec 6, 2020
2
Replies
21
Views
2,184
Dec 17, 2021
ChookityPop
Sticky
Vascular Compression: Summary of Discussions
Pyrrhus
Jul 21, 2021
Replies
11
Views
1,453
Nov 27, 2021
Rufous McKinney
Sticky
Signs of Intracranial Hypertension, Hypermobility, and Craniocervical Obstructions in Patients With ME/CFS
sb4
Sep 30, 2020
Replies
8
Views
1,466
Jul 13, 2021
kangaSue
Sticky
weakness of the collagen surrounding peripheral nerves in Ehlers-Danlos Syndrome (EDS)
pattismith
Sep 10, 2019
Replies
3
Views
1,292
Jul 13, 2021
Pyrrhus
Poll
Sticky
POLL: Do You Have a Sacral Dimple on Your Lower Back? (Can be Medically Significant, and May be Linked to ME/CFS)
Hip
Aug 26, 2020
2
Replies
31
Views
6,157
Jan 29, 2021
bensmith
Sticky
Recovery of 3 Severe ME/CFS Patients After Cervical Spinal Stenosis Surgery (2018 / Peter Rowe)
Jesse2233
Feb 4, 2018
2
Replies
38
Views
6,808
Nov 11, 2019
Marky90
Sticky
Consensus Statement on Craniocervical Instability (CCI)
Hip
Aug 13, 2019
Replies
2
Views
3,874
Sep 25, 2019
pattismith
Could someone help me make sense of this?
crypt0cu1t
Jul 9, 2022
Replies
4
Views
352
Aug 3, 2022
HurrySaveMe
B
Poll
CCI / AAI / chiari / instability /neck evaluation by Dr Gilete
bombsh3ll
Jun 9, 2019
2
3
Replies
47
Views
8,844
Aug 1, 2022
Pyrrhus
B
Sleeping on the belly with head to the side - is it bad for neck issues?
Bergkamp
Jul 10, 2022
Replies
8
Views
220
Jul 10, 2022
Rufous McKinney
S
Diagnosed Cervical Instability
Swim15
Feb 18, 2022
Replies
15
Views
788
Jul 5, 2022
Rufous McKinney
hEDS: the causal genetic mutation may have been identified!
Zebra
Jul 3, 2022
Replies
0
Views
202
Jul 3, 2022
Zebra
Question about EDS
MikeC
Nov 10, 2020
2
3
Replies
52
Views
3,125
Jun 29, 2022
lint7
Growing CCI issues from a few weeks bedbound?
GlassCannonLife
Mar 16, 2022
Replies
5
Views
501
Mar 17, 2022
GlassCannonLife
Looking for info on CCI/AAI diagnosis in Australia
purrsian
Dec 22, 2019
Replies
11
Views
1,334
Mar 16, 2022
GlassCannonLife
Doxycycline as a CCI treatment: low-dose doxycycline inhibits the MMP enzymes which break down collagen and elastin in ligaments
Hip
Sep 8, 2019
2
3
4
Replies
62
Views
8,786
Feb 18, 2022
Momentum
Has anyone noticed significant changes in their collagen? ( Vascular, Skin, Joints )
Jwarrior77
May 9, 2020
2
3
Replies
41
Views
4,239
Jan 28, 2022
Ethereal55
Alternative Non-Surgical Possibilities for Addressing CCI/AAI or Other Serious Neck Issues
Wayne
Jan 31, 2019
7
8
9
Replies
168
Views
21,396
Jan 11, 2022
Violeta
Washington Post Article: -- A doctor struggled with a rare, incurable syndrome [Ehlers-Danlos]. Now she helps others overcome it.
Wayne
Dec 27, 2021
Replies
7
Views
1,297
Dec 30, 2021
lenora
Are these symptoms sounding like connective tissue disease?
ChookityPop
Nov 27, 2021
Replies
9
Views
916
Dec 28, 2021
Crux
J
My ME is in remission
JenB
May 20, 2019
9
10
11
Replies
208
Views
32,533
Dec 27, 2021
valentinelynx
Jeff anyone who have consulted with Dr Bolonesse ... help confused!
humanrising
Feb 4, 2019
2
Replies
30
Views
5,455
Dec 22, 2021
kewia
W
Cervical C1 PRP treatments in Canada?
wegonebeaite
Dec 15, 2021
Replies
4
Views
800
Dec 19, 2021
Nord Wolf
Link between craniocervical instability (CCI) and Dr Markov's bacterial dysbiosis theory of ME/CFS?
Hip
Dec 13, 2021
Replies
7
Views
1,085
Dec 14, 2021
godlovesatrier
Anyone identified connective tissue disease through whole genome sequencing?
ChookityPop
Nov 27, 2021
Replies
2
Views
850
Dec 3, 2021
lenora
many patients with HSD/hEDS meet Fukada criteria for diagnosis of CFS 2021 UK
pattismith
Nov 8, 2021
Replies
0
Views
718
Nov 8, 2021
pattismith
Cusack protocol for EDS—reports from anyone trying it
Sushi
Jun 5, 2021
Replies
13
Views
2,163
Oct 18, 2021
xebex
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Comorbid Conditions / Differential Diagnoses
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