Connective Tissue Disorders: Collagen, EDS, CCI

This is the forum for connective tissue problems related to impaired collagen, such as abnormally droopy skin or hypermobile cartilage. This is also the place to discuss disorders like Ehlers-Danlos syndrome (EDS), vascular compression syndromes, and related conditions such as craniocervical instability (CCI).
sb4
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Signs of Intracranial Hypertension, Hypermobility, and Craniocervical Obstructions in Patients With ME/CFS
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10
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2,128
Bowser
SK2018
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Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS
115 116 117
Replies
2,330
Views
283,268
lenora
Hip
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CCI SURVEY – for all ME/CFS patients tested for CCI and related conditions (please answer whether tested positive or negative)
5 6 7
Replies
122
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20,045
Rufous McKinney
Pyrrhus
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ME/CFS Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing... (van Campen et al., 2021)
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12
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2,944
Insomniac
sb4
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Have you noticed symptoms of Connective Tissue degradation since onset of disease?
2 3
Replies
56
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11,742
Reading_Steiner
mattie
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Tracking CCI / AAI MRI & Treatment outcomes
23 24 25
Replies
482
Views
89,378
BaileyBeached
SWAlexander
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Exercise Intolerance in Hypermobility: Systemic Vascular Distensibility relates to exercise capacity in connective tissue disease (Singh et al 2021)
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4
Views
1,090
bread.
RobeAnJa
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What’s the theory behind the connection between Ehlers-Danlos Syndrome (EDS) and ME/CFS? (Other than CCI/AAI)
2
Replies
21
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2,770
ChookityPop
Pyrrhus
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Vascular Compression: Summary of Discussions
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11
Views
1,886
Rufous McKinney
pattismith
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weakness of the collagen surrounding peripheral nerves in Ehlers-Danlos Syndrome (EDS)
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3
Views
1,661
Pyrrhus
Hip
  • Poll
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POLL: Do You Have a Sacral Dimple on Your Lower Back? (Can be Medically Significant, and May be Linked to ME/CFS)
2
Replies
31
Views
8,082
bensmith
Jesse2233
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Recovery of 3 Severe ME/CFS Patients After Cervical Spinal Stenosis Surgery (2018 / Peter Rowe)
2
Replies
38
Views
7,504
Marky90
Hip
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Consensus Statement on Craniocervical Instability (CCI)
Replies
2
Views
4,424
pattismith
T
IM Vitamin C Injections for hEDS... anyone tried this???
Replies
18
Views
502
Judee
Hip
Doxycycline as a CCI treatment: low-dose doxycycline inhibits the MMP enzymes which break down collagen and elastin in ligaments
2 3 4
Replies
64
Views
10,731
hapl808
S
Diagnosed Cervical Instability
2
Replies
31
Views
1,931
kewia
H
Email to neurologist about MRI
2
Replies
23
Views
463
Husband of
Insomniac
Newbie- Does Hypermobility Spectrum or EDS rule out a diagnosis of CFS?
Replies
6
Views
276
heapsreal
B
Calcitriol - anyone know if I can buy it online?
Replies
0
Views
248
Bexy89
B
Are there any ideas for natural treatment of tethered cord and cci?
Replies
18
Views
544
YippeeKi YOW !!
crypt0cu1t
Could someone help me make sense of this?
Replies
5
Views
871
crypt0cu1t
H
Minimal Resources, Waning Cognition - Where do I Start My CCI or Cervical Spine Journey?
2
Replies
28
Views
864
lenora
B
  • Poll
CCI / AAI / chiari / instability /neck evaluation by Dr Gilete
2 3
Replies
54
Views
10,629
Husband of
W
Where to get CCI prolotherapy / prp: caring medical, centeno clinic or other?
Replies
3
Views
437
Rufous McKinney
B
Sleeping on the belly with head to the side - is it bad for neck issues?
Replies
8
Views
646
Rufous McKinney
Zebra
hEDS: the causal genetic mutation may have been identified!
Replies
0
Views
483
Zebra
MikeC
Question about EDS
2 3
Replies
52
Views
4,135
lint7
GlassCannonLife
Growing CCI issues from a few weeks bedbound?
Replies
5
Views
796
GlassCannonLife
purrsian
Looking for info on CCI/AAI diagnosis in Australia
Replies
11
Views
1,647
GlassCannonLife
Jwarrior77
Has anyone noticed significant changes in their collagen? ( Vascular, Skin, Joints )
2 3
Replies
41
Views
5,344
Ethereal55
Wayne
Alternative Non-Surgical Possibilities for Addressing CCI/AAI or Other Serious Neck Issues
7 8 9
Replies
168
Views
24,766
Violeta
Wayne
Washington Post Article: -- A doctor struggled with a rare, incurable syndrome [Ehlers-Danlos]. Now she helps others overcome it.
Replies
7
Views
1,704
lenora
ChookityPop
Are these symptoms sounding like connective tissue disease?
Replies
9
Views
1,274
Crux
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