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CCI / AAI / chiari / instability /neck evaluation by Dr Gilete

For those sending imaging to Dr Gilete Barcelona, did you receive a structural/surgical diagnosis?

  • Diagnosed with structural problem on imaging (even if provisional/further tests needed).

    Votes: 14 93.3%
  • Told scans were all fine / no structural problem identified.

    Votes: 1 6.7%

  • Total voters
    15

winterschlaf

sleeping satellite
Messages
83
Likes
174
Location
rural scotland
Diagnosed with CCI and AAI by dr Gilete in person. He said I was a very clear case.

He mentioned that he sometimes got people with ME who he did not have anything structurally wrong that he could find, and while I have no reason to doubt him, it's not the same as hearing from someone who has been in and gotten told they don't have it. I also don't know why he chose to tell me this, but from context my guess is that it was to emphasise that structural issues is not a universal root cause for ME.
Presumably also to reassure you that your case was -- in his eyes -- unambiguous, and potentially treatable.

It's a comment which has also created mixed feelings for me (his).
 
Messages
56
Likes
128
Presumably also to reassure you that your case was -- in his eyes -- unambiguous, and potentially treatable.

It's a comment which has also created mixed feelings for me (his).
That makes sense, both your interpretation and the mixed feelings. I have some myself. On one hand, surely if he has been overdiagnosing he will have gotten some feedback on it, and that can be read as a somewhat context to the comment. On the other hand, if he has been, and is aware of it, this points to him honing his diagnostic skills. Mixed feelings indeed.
 

Marelica

Senior Member
Messages
140
Likes
476
Location
Croatia
I was expecting that kind of response because I have been hypermobile since childhood.
I probably have some variant of EDS, but in Croatia, we do not have a specialist for the EDS disease to examine me.
In a specific private situation, I have been a widow for two years, living alone.
If I find enough stable person to go to Barcelona with me I think I will opt for surgery.
Of course, first I have to check how much it all costs.
This whole situation makes me sad, but that's what it is.
I came up with a diagnosis that is impossible to come by in Croatia.
I hope to be able to organize to go one step further.
Dear @bombsh3ll, thanks for asking :)
Well some fresh news from Croatia.
I went to the genetic specialist and today she received me. She said that I have EDS all my life, but I didn't know (I am almost 50 now).
Neurosurgeon in Croatia wants to do CT of my cervical spine. I will do CT this friday. Dr Gilete is on hold for me right now.