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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Not Exactly an Emergency / The Beat Heat ManifestoHoward, I agree with Hufsamor
And I'm really glad your neighbors (one in a pink bikini no less!) were kind and helpful, as well as the fire...
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Nobody's ComingI wonder if Dr Claire Taylor might be able to help. I have not had an appointment with her personally but I know people on this baord have talked... -
Nobody's ComingI"m so sorry that you have to deal with this. And you're doing a great job. I am in the US, but we have some similar version of the same... -
Nobody's ComingIt’s truly atrocious. I’ve written about it much on my blog. I remember in the beginning years, thinking, oh they are going to come running in... -
Not Exactly an Emergency / The Beat Heat ManifestoI would suggest trying one of the over the counter products by Nestlé first. More affordable. The Liquid Hope and the Kate Farms formula cost...
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Youthful Exuberance
A car load of manic girls courses through and around the city park at breakneck speed. As they do so, three female individuals climb partially outside the vehicle, eventually coming to a sidesaddle seated position (legs inside the vehicle / arms flailing away in the wind)...
Right now I'm on the road, approximately two miles out (having escaped the home base pre-dawn). And the observable scene is peculiarly lit by nature's momentary incompleteness. The pre-sunrise lack of light being shed leaves my imagination to fill in the gaps. And within soft tones and a vaguely...
Mood:
Trigger warning*********
Again****** trigger warning
Reader discretion advised.
I feel like I’ve made so many tiny leaps and bounds forward past few years. Slowly. Nothing huge… but making my existence more comfortable after non stop torture for so long. And that’s not far from...
The sprinklers have ceased scattering droplets of water across the grassy expanse. I am now amongst birds in the morning dampness - they, being the ones who dwell in and about the park. Whereas I am merely a frequent visitor - one who trespasses.
And then suddenly, there he is. Orange Julius...
Well, it seems that perhaps voicing myself here at times....was more cathartic than i fully realized.
Its certainly healing to use your voice at times and especially when you live in a world where few want to be bothered with your voice.
Yes, people can be jerks.
On the internet is no...
Resistance is _________
I'm fully latching onto and into the Vitamin D Resistance realm. It just makes too much damn sense. Each of you already knows the details, as incessant exposure to direct sunlight improves my physical energy state (whereas a lack of sunlight severely detracts from my...
I returned for solstice…
To share a healing dance
And rhythm
To thank the sun
… to live in the light
✨☀️✨
Thank you to each of you for shining your inner light with the world in your own ways 🦋 stay golden star shines 💛
Healing dance
Solar rhythm in my heart today 💛✨
"The edge of...
3PM - 4:30PM on Monday, June 19
The Bell Bar & Restaurant, Dublin 15, D15 EW77, Ireland https://www.thebell.ie/
I thought I would try this. If it goes well, we might do another one at another stage.
Transport/travel: Venue is close to the M50 junction 6. There is a quite big car parking on...
This blog has been a healing journey and pleasure at times of self reflection, cathartic healing and community healing as well…. But, I’ve said all I need to say for now. For the foreseeable future, I shall bid farewell. On to new journeys and new beginnings.
Much love and healing light to...
My boy graduated high school last week.
It’s an incredibly strange feeling.
My heart strings…. Are pulling.
I see his sweet face in my arms. It’s 10pm at night on a warm September evening in 2004. And all is so well. I’ve never felt that kind of love up until that point. That kind of...
It’s a liver kinda release week for me. Often in the form of emotions and physical pain. Today is a full moon. Nature often likes to sync up and provide windows of release so the new can come in. And many of us with chronic illness, have a tad of back up in us 😅
Lily Choi is an amazing angel...
….::Where once was light
Now darkness falls
Where once was love
Love is no more
Don't say goodbye
Don't say, I didn't try...
These tears we cry
Are falling rain
For all the lies
You told us
The hurt, the blame!
And we will weep
To be so alone
We are lost!
We can never go home
So in the end
I...
The night sky is especially black right now, but I cannot say why. Blacker than a black ink pen? Perhaps it is.
I shouldn't be awake right now. And really, nobody should. But I am contending with a particular kind of pain. An old familiar. The Bile Flesh Burn. It's a deep skin erosion trauma...
Somedays, the anger is so much.
That the knowledge of what has happened exists
yet mob mentality keeps us complacent.
And mob mentality, is a massively powerful thing.
That doctors are scared to treat me.
I’ve been told off record many times at this point.
Other doctors have lost their...
I’ve been watching these slowly over the past ‘blank’ years I’ve been bedridden. Don’t want to think about numbers.
Anywho, I enjoyed this show as a child and have been enjoying rewatching it. Sharing fir those that may be looking for something in good spirits to watch.
I had intentions of trying castor oil packs for years but it always seemed messy and not as powerful as other things I had on my to try list for supporting my liver and lymphatic system.
But as I realized how powerful transdermal methods of application can be in humans for a multitude of...
ttps://www.labcorp.com/tests/165055/post-covid-cdc-profile
Its just regular tests put together in a panel.
Amusing to me because i had put together a set pf blood tests i am going to ask for next week. And i then saw it is very similar to the post covid panel!
The only difference is I had...
Differences Measured in Units
It's been a month since I moved back into unit number two, so here is a brief synopsis / evaluation / review (interesting or not)
Wait Times
or
The Fast and the Superfluous
On average, it takes an hour for someone to respond after one of us has pushed the...
In the court of the crimson king kinda day 👑
“The rusted chains of prison moons
Are shattered by the sun
I walk a road, horizons change
The tournament's begun
The purple piper plays his tune
The choir softly sing
Three lullabies in an ancient tongue
For the court of the crimson king”