-
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Blogs
Categories
-
User Blogs 3K
Latest Comments
-
Beat the Heat / Beef Stew / Toppings on the StreetWhat type of tree is that in the park @Howard? I looked up Palo Verde tree but not sure it is the same as the one in your photo. Amazing sky in... -
I Miss Movement as an OutletI should try the mental movement thing more, for some reason I'm resistant to doing it. Maybe the energetic cost of concentrating, dunno... -
I Miss Movement as an OutletI love Tai chi! It was taught free at a park across the street when I was newly ill. Went to one class and that was all I could do. Amazing you...
-
Medical updateOh Emma Just the reading and registering this. Made me cry. So much love to you you sweet soul 💗💛💗 Love and appreciate you so much! and...
Blogs statistics
- Categories
- 1
- Blogs
- 410
- Blog entries
- 3,182
- Views
- 2,378,533
- Comments
- 15,102
Dateline: Sunday Evening (I forgot to post in a timely fashion)
For nearly three hours today I was de-bloated. Flat stomach. Flat abdomen. Flat everything. And the strangest thing happening involved movement and noises, unfamiliar sounds pinging back and forth within my abdominal cavity. Gross...
Way way way more mental fatigue than i ever get today. Small Mental task wore me out snd beed long long break
Sinuses smoulder. Symptoms fluctuate. Sometimes i win sometimes it wins. In retrospect maybe infection superimposed day 5
Smelled Brussel sprouts cooking for first time this morning...
The more things change, the more
they stay the same — French proverb
I know, I know …. I already posted about this, and you’d think I'd posted
pretty much all there was to say on the subject, but...
Sinus getting worse so suspect bacterial superinfection. Stuffed nose Keeps me up at night and not pleasant during day
Heart rate, rythm, and body temp very slowly headed towards pre-covid. Im ok if stays this way since they were too low before
Had amusing smell story. Keep in mind i stell...
because they tried to help and made it involuntarely repeatedly worse.
my worsening asthma is a real problem the recent years. especially washing detergents for cloths makes me bad. breathing, coughing. higher sensitivity to other allergens.
so the nursing home switched the detergent, now i...
I guess I'm not sleeping. Literally. My friend and neighbor Dora keeps waking me up by shouting out loud into the night. Okay then, it's not night time anymore, but the sun has not yet risen, however - I do see a pale blue hue beyond my window pane.
Speaking of pain, I'll choose not to go on...
Maybe i should have known these but some helpful things he said are that none of my symptoms now surprise him tho unsure if sinus is a bacterial infection
Said 20-30 percent get the persistent symptoms I’m reporting including heart rate increase, rhythm changes, body temp not falling to normal...
I dont like when i get brand new symptoms. Having a burning sensation throughour lower half of body.
Minor: Stabbing eye pain which may be return of my recurrent virus but the burning is brand new. Concerned. New neuropathy from covid?
Maybe i shoukd stop blogging since i dont think will end...
Well that was a mistake. I went into an old navy. First store since before covid. Wore usual mask. I dont know what inwas thinking. It was sunday. It was crowded i was immediately aware how bright it was. I did not get not far to sww what i was looking for and felt really dizzy. I knew i had to...
Can’t seem to cat h a break and trying not to get discouraged. After slow but steady improvement in the thick secretions, got lots of bridge of nose pain and sinus pressure, some tingling, burning in nose, sounds of gurgling, and nose starting to fill up with gunk again also post nasal drip and...
Head hurts. Sinus feels very congested - this is building juat as the covid congestion is finally closer to resolving. I do t even know how to think about this. I suppose could even be my recurrent virus returning. Better not be covid returning! . Sinus infection. All i know is feel...
I knew that covid would be too hard on my body and i was right. I noticed from pulse ox meter my heart rate was fluctuating more than usual at rest. This is in addition to it remaining alot more elevated than pre covid). Tooj Kardia and sent it to a doc
He says theres a small anount of atrial...
According to doc based on description of symptoms, he thinks i cracked a rib from coughing.
Middle of night had sudden oain and soreness on a rib after several days of back pain
Sharing my meditation today for anyone that may want to bathe in the light :star:
thank you Mei-lan :heart:
..::calling in, divine presence
source love
source light
and let there be light,
let there be light::..
"no matter what is going on around...
Last night i was it hing and scratching and realized was the first time since covid! So for 12 days i was not itching at all!
Was it that my immune system was too busy? Was it that without eating or going put for a week there was no allergens??
One oher thing returned- first time in 12 days my...
The night before last , so day 11, i realized i didnt smell the burning toast. I tried to just ignore it but by yesterday couldn't escape tgat i wasnt smelling anything- not the trash, or myself or any food. Its possible its been true or building for days when i look back.
Hard to just take it...
My daughter and i found this book today.
I had gotten it years ago at a thrift store.
Each page is a puzzle on the right side.
The faerie poems are so lovely and each page, so beautiful.
It made me smile a tad today when i saw this one.
Maybe it will make you smile, too.
:star:
Hmm. Have a zillion reasons i dont eat roast beef except i suddenly craved it after at least 5 years without and it tasted great! OTOH I suddenly cant stomach eggs, a staple in diet. Inakso want bread which i never eat and shudder at pasta, my usual food. And bring on the salt salt salt im...
I saw this today and i feel i am beginning to surface after being in deep waters all week.
I thought i would share since we are all human...and all go through these things.
Birth, life and death.
"Tending to grief is the essence of the alchemical wounded healer. Proving a sanctuary and safe...
This is what happened. On valentines day, I was shot with covids arrow rather than cupids.
At breakfast and lunch were fine with zero indication of illness . About 4 pm i started getting a headache. I blamed it or at least its worsening on trying to read small subtitles on a movie i was...