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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Howard
4 min read
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416
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User Blogs
Right now I'm on the road, approximately two miles out (having escaped the home base pre-dawn). And the observable scene is peculiarly lit by nature's momentary incompleteness. The pre-sunrise lack of light being shed leaves my imagination to fill in the gaps. And within soft tones and a vaguely...
sunshine44
3 min read
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595
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23
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Mood: Trigger warning********* Again****** trigger warning Reader discretion advised. I feel like I’ve made so many tiny leaps and bounds forward past few years. Slowly. Nothing huge… but making my existence more comfortable after non stop torture for so long. And that’s not far from...
Howard
5 min read
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490
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5
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17
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The sprinklers have ceased scattering droplets of water across the grassy expanse. I am now amongst birds in the morning dampness - they, being the ones who dwell in and about the park. Whereas I am merely a frequent visitor - one who trespasses. And then suddenly, there he is. Orange Julius...
sunshine44
5 min read
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481
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13
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Well, it seems that perhaps voicing myself here at times....was more cathartic than i fully realized. Its certainly healing to use your voice at times and especially when you live in a world where few want to be bothered with your voice. Yes, people can be jerks. On the internet is no...
Howard
3 min read
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765
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9
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20
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Resistance is _________ I'm fully latching onto and into the Vitamin D Resistance realm. It just makes too much damn sense. Each of you already knows the details, as incessant exposure to direct sunlight improves my physical energy state (whereas a lack of sunlight severely detracts from my...
sunshine44
1 min read
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407
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4
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14
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I returned for solstice… To share a healing dance And rhythm To thank the sun … to live in the light ✨☀️✨ Thank you to each of you for shining your inner light with the world in your own ways 🦋 stay golden star shines 💛 Healing dance Solar rhythm in my heart today 💛✨ "The edge of...
Tom Kindlon
2 min read
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1K
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3PM - 4:30PM on Monday, June 19 The Bell Bar & Restaurant, Dublin 15, D15 EW77, Ireland https://www.thebell.ie/ I thought I would try this. If it goes well, we might do another one at another stage. Transport/travel: Venue is close to the M50 junction 6. There is a quite big car parking on...
sunshine44
1 min read
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361
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This blog has been a healing journey and pleasure at times of self reflection, cathartic healing and community healing as well…. But, I’ve said all I need to say for now. For the foreseeable future, I shall bid farewell. On to new journeys and new beginnings. Much love and healing light to...
sunshine44
2 min read
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411
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6
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My boy graduated high school last week. It’s an incredibly strange feeling. My heart strings…. Are pulling. I see his sweet face in my arms. It’s 10pm at night on a warm September evening in 2004. And all is so well. I’ve never felt that kind of love up until that point. That kind of...
sunshine44
6 min read
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325
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It’s a liver kinda release week for me. Often in the form of emotions and physical pain. Today is a full moon. Nature often likes to sync up and provide windows of release so the new can come in. And many of us with chronic illness, have a tad of back up in us 😅 Lily Choi is an amazing angel...
sunshine44
1 min read
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222
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….::Where once was light Now darkness falls Where once was love Love is no more Don't say goodbye Don't say, I didn't try... These tears we cry Are falling rain For all the lies You told us The hurt, the blame! And we will weep To be so alone We are lost! We can never go home So in the end I...
Howard
4 min read
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634
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8
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12
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The night sky is especially black right now, but I cannot say why. Blacker than a black ink pen? Perhaps it is. I shouldn't be awake right now. And really, nobody should. But I am contending with a particular kind of pain. An old familiar. The Bile Flesh Burn. It's a deep skin erosion trauma...
sunshine44
1 min read
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388
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6
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4
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Somedays, the anger is so much. That the knowledge of what has happened exists yet mob mentality keeps us complacent. And mob mentality, is a massively powerful thing. That doctors are scared to treat me. I’ve been told off record many times at this point. Other doctors have lost their...
sunshine44
1 min read
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468
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14
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I’ve been watching these slowly over the past ‘blank’ years I’ve been bedridden. Don’t want to think about numbers. Anywho, I enjoyed this show as a child and have been enjoying rewatching it. Sharing fir those that may be looking for something in good spirits to watch.
sunshine44
1 min read
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I had intentions of trying castor oil packs for years but it always seemed messy and not as powerful as other things I had on my to try list for supporting my liver and lymphatic system. But as I realized how powerful transdermal methods of application can be in humans for a multitude of...
vision blue
1 min read
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717
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ttps://www.labcorp.com/tests/165055/post-covid-cdc-profile Its just regular tests put together in a panel. Amusing to me because i had put together a set pf blood tests i am going to ask for next week. And i then saw it is very similar to the post covid panel! The only difference is I had...
Howard
5 min read
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626
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8
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15
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Differences Measured in Units It's been a month since I moved back into unit number two, so here is a brief synopsis / evaluation / review (interesting or not) Wait Times or The Fast and the Superfluous On average, it takes an hour for someone to respond after one of us has pushed the...
sunshine44
1 min read
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409
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In the court of the crimson king kinda day 👑 “The rusted chains of prison moons Are shattered by the sun I walk a road, horizons change The tournament's begun The purple piper plays his tune The choir softly sing Three lullabies in an ancient tongue For the court of the crimson king”
vision blue
1 min read
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329
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Apparently, one of measles tricks to avoid the immune system is to wipe out the host immune system’s memory! So not only do then become more susceptible to the measles but you also develop more severe infections to other illnesses because your body no longer recognizes them even if ykuve had...