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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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ttps://www.labcorp.com/tests/165055/post-covid-cdc-profile
Its just regular tests put together in a panel.
Amusing to me because i had put together a set pf blood tests i am going to ask for next week. And i then saw it is very similar to the post covid panel!
The only difference is I had...
Apparently, one of measles tricks to avoid the immune system is to wipe out the host immune system’s memory! So not only do then become more susceptible to the measles but you also develop more severe infections to other illnesses because your body no longer recognizes them even if ykuve had...
Fell free to add your own biochem mystery in comments or of course suggestions or expertise welcome
I tried to start a new blog since this is not related to Covid but I don’t know how to do that if anyone does please let me know
Happy to discuss the biochem
Pathway in nitty gritty detail...
Told the doc i STILL have sinus infection. He asked if I have spring allergies. No ,i said, and the allergies I get dont give me thick green secretions every day. He nodded his head yes in agreement- but offered no suggestion or advice
I show him scalp and showed him
How just touching my hair...
Things are different since covid. I will add to this list as I remember. I do not though consider any of this to be long covid. Note on the last entry on hair loss there are some great comments there i still have not had the mental effort to respond to
Massive hair loss
white hairs for firdt...
So when I run my fingers through my hair I realized I was pulling out fistfuls I mean not tugging on them they just come out there everywhere by the handful by the fist full started a couple of days ago.
Looked it up Happens in 10% of Covid patients. It’s the general phenomenon where sudden...
Was six weeks yesterday “celebratibg” covid start
my connective tissues hurting everywhere, started ankles and wrists abd quickly became neck shoukders elbows hips , thighs and of coylyrse knees calves now too
too many possibilities to list. And im too tired to So i guess im tired too
worst...
Sorry- I’m not usually crude but forgot about this website
https://www.enttoday.org/article/restoring-microbial-balance-key-to-keeping-sinuses-healthy/?singlepage=1
Like the guy ho cured his ear infection with healthy ear wax, perhaps i need to recolonize my nose with pre covid/bacterial...
Normally, i can’t even skip one meal Without getting sick. During covid, I ate almost nothing for a week. I had not really appreciated that perhaps the long fast allowed some of my gut to heal but now near five weeks later I experience for the first time a return of an old gut and brain...
Way way way more mental fatigue than i ever get today. Small Mental task wore me out snd beed long long break
Sinuses smoulder. Symptoms fluctuate. Sometimes i win sometimes it wins. In retrospect maybe infection superimposed day 5
Smelled Brussel sprouts cooking for first time this morning...
Sinus getting worse so suspect bacterial superinfection. Stuffed nose Keeps me up at night and not pleasant during day
Heart rate, rythm, and body temp very slowly headed towards pre-covid. Im ok if stays this way since they were too low before
Had amusing smell story. Keep in mind i stell...
Maybe i should have known these but some helpful things he said are that none of my symptoms now surprise him tho unsure if sinus is a bacterial infection
Said 20-30 percent get the persistent symptoms I’m reporting including heart rate increase, rhythm changes, body temp not falling to normal...
I dont like when i get brand new symptoms. Having a burning sensation throughour lower half of body.
Minor: Stabbing eye pain which may be return of my recurrent virus but the burning is brand new. Concerned. New neuropathy from covid?
Maybe i shoukd stop blogging since i dont think will end...
Well that was a mistake. I went into an old navy. First store since before covid. Wore usual mask. I dont know what inwas thinking. It was sunday. It was crowded i was immediately aware how bright it was. I did not get not far to sww what i was looking for and felt really dizzy. I knew i had to...
Can’t seem to cat h a break and trying not to get discouraged. After slow but steady improvement in the thick secretions, got lots of bridge of nose pain and sinus pressure, some tingling, burning in nose, sounds of gurgling, and nose starting to fill up with gunk again also post nasal drip and...
Head hurts. Sinus feels very congested - this is building juat as the covid congestion is finally closer to resolving. I do t even know how to think about this. I suppose could even be my recurrent virus returning. Better not be covid returning! . Sinus infection. All i know is feel...
I knew that covid would be too hard on my body and i was right. I noticed from pulse ox meter my heart rate was fluctuating more than usual at rest. This is in addition to it remaining alot more elevated than pre covid). Tooj Kardia and sent it to a doc
He says theres a small anount of atrial...
According to doc based on description of symptoms, he thinks i cracked a rib from coughing.
Middle of night had sudden oain and soreness on a rib after several days of back pain
Last night i was it hing and scratching and realized was the first time since covid! So for 12 days i was not itching at all!
Was it that my immune system was too busy? Was it that without eating or going put for a week there was no allergens??
One oher thing returned- first time in 12 days my...
The night before last , so day 11, i realized i didnt smell the burning toast. I tried to just ignore it but by yesterday couldn't escape tgat i wasnt smelling anything- not the trash, or myself or any food. Its possible its been true or building for days when i look back.
Hard to just take it...