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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Dandelion Discotheque (d'un lit)
- Author sunshine44
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Sometimes you can’t help but ponder how long things have been broken. This didn’t just come about. We live in such a topsy turvy world where we think we are progressive and quite forward…. Yet so many people don’t have money to eat or afford medical care or house… or even a blouse.
My father...
My bare feet pushed my travel wheelchair along the hallway. Then I turned right and was face to face with our screen door. And I pushed right up next to it. Holding my head up but my neuro/ vision are very iffy. One wrong move of the eyes or head and I can swiftly go into an episode or small...
“I thought perhaps she was crazy, but she was only highly intuitive.” ~ Carl Jung
Art: ‘I was raised by the forest’ kat Philbin
“Life isn’t always onward and upward.
Sometimes you evolve, sometimes you devolve. Sometimes you get the life sucked out of you, and other times you breathe life back in.
There are times of shutting down and…opening up.
There are times the walls go up … times they come right back down...
Mood:
Trigger warning*********
Again****** trigger warning
Reader discretion advised.
I feel like I’ve made so many tiny leaps and bounds forward past few years. Slowly. Nothing huge… but making my existence more comfortable after non stop torture for so long. And that’s not far from...
Well, it seems that perhaps voicing myself here at times....was more cathartic than i fully realized.
Its certainly healing to use your voice at times and especially when you live in a world where few want to be bothered with your voice.
Yes, people can be jerks.
On the internet is no...
I returned for solstice…
To share a healing dance
And rhythm
To thank the sun
… to live in the light
✨☀️✨
Thank you to each of you for shining your inner light with the world in your own ways 🦋 stay golden star shines 💛
Healing dance
Solar rhythm in my heart today 💛✨
"The edge of...
This blog has been a healing journey and pleasure at times of self reflection, cathartic healing and community healing as well…. But, I’ve said all I need to say for now. For the foreseeable future, I shall bid farewell. On to new journeys and new beginnings.
Much love and healing light to...
My boy graduated high school last week.
It’s an incredibly strange feeling.
My heart strings…. Are pulling.
I see his sweet face in my arms. It’s 10pm at night on a warm September evening in 2004. And all is so well. I’ve never felt that kind of love up until that point. That kind of...
It’s a liver kinda release week for me. Often in the form of emotions and physical pain. Today is a full moon. Nature often likes to sync up and provide windows of release so the new can come in. And many of us with chronic illness, have a tad of back up in us 😅
Lily Choi is an amazing angel...
….::Where once was light
Now darkness falls
Where once was love
Love is no more
Don't say goodbye
Don't say, I didn't try...
These tears we cry
Are falling rain
For all the lies
You told us
The hurt, the blame!
And we will weep
To be so alone
We are lost!
We can never go home
So in the end
I...
Somedays, the anger is so much.
That the knowledge of what has happened exists
yet mob mentality keeps us complacent.
And mob mentality, is a massively powerful thing.
That doctors are scared to treat me.
I’ve been told off record many times at this point.
Other doctors have lost their...
I’ve been watching these slowly over the past ‘blank’ years I’ve been bedridden. Don’t want to think about numbers.
Anywho, I enjoyed this show as a child and have been enjoying rewatching it. Sharing fir those that may be looking for something in good spirits to watch.
I had intentions of trying castor oil packs for years but it always seemed messy and not as powerful as other things I had on my to try list for supporting my liver and lymphatic system.
But as I realized how powerful transdermal methods of application can be in humans for a multitude of...
In the court of the crimson king kinda day 👑
“The rusted chains of prison moons
Are shattered by the sun
I walk a road, horizons change
The tournament's begun
The purple piper plays his tune
The choir softly sing
Three lullabies in an ancient tongue
For the court of the crimson king”
Today, I took my first bath in many, many years. In an inflatable tub in my bed. My Angel nurse friend helped me.
Tears streamed down my face as I realized what was getting ready to happen.
It was a bit difficult to have the pump next to me but once I felt the water, I turned into a 5 year...
I had a very difficult go with our psychiatric system and their medications (for severe panic disorder and episodes of depression) and ultimately I believe, for me, they massively contributed to me becoming unwell. My downfall began in this same window. And although I won’t get into it as I...
I was listening to half life by arcade fire lots this weekend and then this Khalil Gibran poem came to me Sunday.
One of my favorite poets.
Thought I would share. 💛
“Do not love half lovers
Do not entertain half friends
Do not live half a life
and do not die a half death
Join
If you choose...
Recently, i was left alone for 3 days BUT with my children this time. One is 18 and requires a different kind of attention to the newly turned 9 year old. This may be a normal week for most mothers....but not me. I am not most mothers because i am unable mostly to take care of myself. BUT i have...
I feel like one of the things I’ve been cultivating more and more, is learning to listen within. Initially it was partially by force (from bizarre after bizarre circumstances ) and then, more recently cultivating new ways, by choice. Using new tools. Learning to trust myself.
If there is...