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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
User Blogs
In order to help patients get more vote, I have produced an utility sheet allowing printing instructions to prospective voters telling them how to do it from a piece of paper.
Download the attachement,
Printing instruction: To avoid clipping of text, ensure you click on "scale to fit...
For almost 2 weeks I have had bronchitis. This has not been your typical stint with bronchitis. I have been really sick, in bed and unable to do anything. I have had no appetite, and due to the initial sore throat, I took pain meds for the sore throat and for the chest pain. Fever and well...
"http://archive.constantcontact.com/fs048/1098473133029/archive/1105256900028.html"
Congratulations to Lynn Bousquet on winning the MCWPA public service announcement contest.
Months of hard work and valuable input from patients have produced a public service announcement that is...
PLEASE VOTE FOR WPI. SEE EASY DIRECTIONS BELOW:
http://chasecommunitygiving.contextoptional.com/charities/205904991-whittemore-peterson-institute-for-neuro-immune-disease
Takes you right to the Whittemore-Peterson Institute's Chase site for easy voting!!!
OR,
#1. Go here...
"The fineness of things gives the universe nobility"
by Jean Follain
The fineness of things gives the universe nobility. Behind each thing a password lies hidden. These fragile cups, these crystal glasses, how carefully they must be put into the cupboard! The maid gets up on a chair...
http://www.causes.com/causes/511536?m=f042604e
Public Service Announcement Winner in the MCWPA Contest
Posted by Tina Marie Miller Tidmore on Apr 18
See the winning video of the MCWPA Contest. Congratulations to Lynn. Please share this video to anyone and everyone. Let's go viral...
Today the gardener I'd been trying to get to do my garden finally showed up (its been 3 weeks of messed up times, rain etc etc). Im paying him $50 per hr (a lot!!) as Im so desperate and getting into trouble with neighbours over the messy garden and cant find anyone else to do it.
Thou...
Tonight, my neighbor who is attached to my bedroom wall decided to blast the stereo as loud as it would go. All through my apartment and the entire floor.
I had been working on a file update, coding. I had to stop in the middle of it, and the noise had such a bad effect on me that I was...
Posted by Karen Mascuch Ravitz on 16 April
The Chronic Fatigue Syndrome Advisory Committee will meet on May 10th and 11:
"http://frwebgate1.access.gpo.gov/cgi-bin/TEXTgate.cgi?WAISdocID=sxS1ji%2F1%2F1%2F0&WAISaction=retrieve"
The last day to submit your written testimony or request an...
from "Findings" in Harper's Magazine, April 2010
Bees can remember human faces, but only if they are tricked into thinking we are strange flowers.
The Bee Tapping Inside Your Car's Back Window
by David Shevin
He say we goin to the same place tonight?
He say I'm a worker just...
PLEASE HELP WPI HELP MILLIONS!
As you may know, Chase International recently created the Chase Community Giving program enabling participants to determine which small US non-profits will receive donations of more than $5 million from Chases philanthropy funds. The top 100 eligible...
LINKS ARE IN " " SO PLEASE COPY AND PASTE INTO YOUR BROWSER. WE HAVE BEEN HAVING PROBLEMS WITH FACEBOOK CAUSES CHOPPING OFF THE END OF THE LINKS. PLEASE CHECK OUT THE VIDEOS AND VOTE!!!!
Time to Vote For ME/CFS Worldwide Patient Alliance - Public Service Announcements...
Time to Vote for PSA - Time to Vote For ME/CFS Worldwide Patient Alliance (www.mcwpa.org)
http://www.causes.com/causes/511536?m=f042604e
Posted by Tina Marie Miller Tidmore on Apr 11
You get to have your say with MCWPA. We are now calling for ME/CFS patients and their families to vote...
Here is a link for the Deepak Chopra Center 21 Day Meditation Challenge.
It starts tomorrow April 11, 2011... it's free to sign up and I will be doing it
since I have started meditating again this will be great! :smiley-hug:
http://www.chopra.com/meditationchallenge
Namaste
Hope Love Light
I just watched the movie, "The Road." It pretty much is a movie reflecting how I feel. Everything is a funky brown color and people are scrounging for survival. I feel that way too. I am not seeing anything in color.
This is coming from a place deep within. I am writing like no one...
http://apps.facebook.com/causes/posts/716200
Have Your Say!
Posted by Andie Pring on 5 April 2011
Want a voice? Feel like no one is listening to you? Well, here's an action you can be involved in that will help educate the public on what it truly means to have this disease.
We have a...
from The Songs of Kabir
II. 22. man tu pr utar knh jaiho
To what shore would you cross, O my heart? there is no traveller before you, there is no road:
Where is the movement, where is the rest, on that shore?
There is no water; no boat, no boatman, is there;
There is not so much...
May: ME/CFS and other NEIDs Awareness Month
Posted by Karen Mascuch Ravitz on 3 April 2011
"http://www.causes.com/causes/511536?m=f042604e"
Awareness Month is Quickly Coming Up!
We as patients, advocates, friends and family can make a positive impact this year on ME/CFS awareness...
Many of you know Thomas Hennessy Jr. For those that don't know Thomas you should know that he has been fighting for us for a good three decades. HE was the person to come up with Awareness Day and created RESCIND, inc. Thomas is one of the very original ME/CFS (CFIDS) Advocates who has killed...
NEED FEEDBACK ON THE MCWPA.ORG PUBLIC SERVICE ANNOUNCEMENTS! SEE THE YOUTUBE LINKS TO VIEW!
Posted by Tina Marie Miller Tidmore on 2 April
MCWPA is about the patients' voice. In a contest, we asked patients to create videos to be used as public service announcements. We have six entries...