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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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User Blogs
The Forums are a major part of Phoenix Rising. In recognition of this we have allotted a permanent space on the Phoenix Rising Board of Directors to be filled by a Forum member. Depending on how many nominations come in we will hold a vote; and the top three nominees will go to the Board...
Phoenix Rising is committed to being a leader not only within the ME/CFS field but in how web technologies can be innovatively used to support people with health problems (in our case ME/CFS). We see many ways health support sites could be improved and we plan to make a Phoenix Rising a...
Berkeley in the Time of Plague
by Jack Spicer
Plague took us and the land from under us,
Rose like a boil, enclosing us within.
We waited and the blue skies writhed awhile
Becoming black with death.
Plague took us and the chairs from under us,
Stepped cautiously while entering the...
I just saw this on MSNBC and thought it would be worth sharing. The ME problem is exacerbated - for me - by EMFs...very much like the people in this clip.
http://www.msnbc.msn.com/id/21134540/vp/43215154#43215154
also of (sad and disturbing) interest...
A Mown Lawn
by Lydia Davis
She hated mown lawn. Maybe that was because mow was the reverse of wom, the beginning of the name of what she was -- a woman. A mown lawn had a sad sound to it, like a long moan. From her, a mown lawn made a long moan. Lawn had some of the letters of man...
I laughed out loud today.
By myself.
I suppose it's considered an odd thing to do, seeing as laughter is generally shared with others. But sometimes joy gets the better of me and I don't particularly see a need to repress it, resulting in such an outpouring of mirth that it's no wonder...
Lets focus on letting Chase know how deserving WPI is of the $500K in discretionary spending yet to be awarded!
There is a silver lining in winning less than $100K in that we are eligible for the $200K discretionary spending prize. (There is also an additional $300K in discretionary spending...
The ME/CFS got me into trouble again. I think my boyfriend has just had enough and of late has lost a lot of his patience with me and is being less and less understanding. The ME/CFS is destroying our relationship as I need a supportive lover.. not someone who is going to make me feel bad due...
This is the last day of voting!
$100,000 is now at stake for WPI.
We are clinging to 10th place (final spot for $100,000) as of 11:00am. But 2 more Hebrew charities are about to overtake us. They are a force, and I don't understand how so many of them are doing this with only 5 charity...
from "Findings", Harper's Magazine, March 2011
Luc Montagnier, corecipient of the 2008 Nobel Prize in Medicine for discovering HIV, claimed to have teleported DNA. Montagnier described an experiment wherein DNA's faint electromagnetic signature made an "imprint" in the water of one test...
What a goldmine of votes for WPI! My wife and I have been racking our brains for 3 days about how to milk our Facebook friends for votes for the $500,000 Chase Giving prize and I think this one will be HUGE if all of us at Phoenix Rising use this Facebook Event strategy. I don't have a...
My boyfriend has upset me a couple of times in the past week due to his lack of being able to understand. I wonder how anyone can have a good relationship with this illness.
He's been giving me advice on my sleeping issues and when I told him I'd already tried what he suggested he said "no...
I love the rain.
I used to go out in the midst of a downpour and get absolutely soaked, dragging along siblings or friends or whoever else would join me to get as wet as possible - chilled to the bone and having a blast - then warming up afterwards with a hot shower, dry clothes, and a cup of...
Big news of FIU and NEI Center:
http://www.facebook.com/PANDORAORG
P.A.N.D.O.R.A., Inc. - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy, Inc.
PANDORA's vision is to interrupt the cycle of suffering experienced by an estimated 20 million...
Age
by Kay Ryan
As some people age
they kinden.
The apertures of their eyes widen.
I do not think they weaken;
I think something weak strengthens
until they are more and more it,
like letting in heaven.
But other people are
mussels or clams, frightened.
Steam or knife blades mean...
Simple things ...like listening to music......being able to speak......prepare a simple meal. This week I have been able to some of these things. Not whenever I need or want to.... but some of the time.
Having been unable to do these things a lot of the time has made them a great gift when I...
Im really struggling right now to get all my house stuff done as Ive had to cut my active activity level down for housework to only an hr per day (the hr is broken up into 20 mins sessions).
My mother rang yesterday and said she wanted to come and visit and stay the night (along with her...
(As originally posted at Sundog Tales)
Imagine living 20 minutes away from here:
<img alt="Ho'okipa Beach Park, Maui" src="http://img215.imageshack.us/img215/8498/bytaminatoratflickr.jpg" title="Ho'okipa Beach Park by taminator at flickr" width="500" height="328" />
Ho'okipa Beach Park...
I've been thinking of starting a blog here for a while now, but I wasn't sure what I wanted to focus on. I could just write about health, but that information seems best reserved for discussions where it is relevant, otherwise it can just be depressing at the end of a day. I could write my...
Music
by Robert Walser
Music is the sweetest thing in the world. I absolutely adore notes. I'll run a thousand paces just to hear one. Often when I'm walking through the hot streets in summer and hear the sounds of a piano from an unknown house I stop in my tracks, ready to die on the...