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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Merry
2 min read
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667
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6
User Blogs
from "Autonomy of the Mind" by Tsering Wangmo Dhompa Mrs. Dhondyo says life is not a happy lollipop and she has said that before. Not in so many words but when her brother lost his house in a neighborhood fire, and she went out to save what she could; while he went to his buddies...
Nermalina
1 min read
Views
838
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6
User Blogs
This is a very boring blog, I'm afraid, but so important for me. I have finally found a doctor who is interesting in treating my CFS. BUT I think she's wrong. She wants me to do the Marshall Protocol...personally, I KNOW I have POTS that has been caused by herpes viruses (ie. Epstein Barr...
Carrigon
5 min read
Views
816
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7
User Blogs
This past month has been hell on earth for me with the Lyme arthritis and my doctor thinks some of it is Gout. She said my uric acid level is twice what it should be. I'm just dying. Hips, lower back, all the way down the legs, right knee, right ankle, right foot. And the usual pain all over...
alex3619
3 min read
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1K
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Many of the old pagan and shamanistic religions recognize the existence of spirits. Spirits can't be seen, but they can be sensed. Every tree and rock has a spirit. So do people. The mind is really spirit. So diseases of the mind are spirits. If CFS is a mental disease, it is a spiritual...
alex3619
6 min read
Views
643
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4
User Blogs
I was thinking about the mind-body problem, and then came across this piece on thinking yourself ill: http://thekafkapandemic.blogspot.com/2011/07/modest-and-possibly-lucrative-proposal.html Rather than follow along the same line of argument, I want to discuss something more esoteric...
This past Tuesday, I had on a nice pair of wedges. As I was walking through the mall, I slipped, jerked my body and for 3 days I couldn't stand up straight. Due to the pain, lack of sleep and being on VFEND (the yeast drug), I spent this past week in bed and this whole weekend unable to...
MishMash
6 min read
Views
581
Comments
4
User Blogs
WALL STREET JOURNAL HEALTH JUNE 28, 2011, 3:46 P.M. ET Parasitic Worms May Offer Hope on MS By STEN STOVALL For people suffering from debilitating autoimmune disorders such as multiple sclerosis, there is growing evidence that help may be at hand from an unusual source: parasitic...
Bob
Bob
29 min read
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1K
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13
User Blogs
Feedback, corrections, discussion and criticism are very welcome. I've also attached a PDF version for easy printing. Contents Preface Introduction Contamination theories The WPIs methodologies Lack of sequence variation John Coffins conclusions regarding the origins of XMRV (A...
Merry
1 min read
Views
993
Comments
10
User Blogs
Styrofoam Cup by Brenda Hillman thou still unravished thou thou, thou bride thou unstill, thou unravished unbride unthou unbride Brenda Hillman (1951, American) is called in her Poetry Foundation bio an "electic formalist." The entry goes on to say: "Brenda Hillman is known for...
JanisB
5 min read
Views
432
User Blogs
Four hours ago today I returned home from Chicago. I left home last Thursday night, went to the retreat with Guruji Mahendra Trivedi, stayed for 3 days with friends, and drove home today. This blog describes my excitement at how good I feel tonight! Every retreat I've attended (there have...
I found out about another with ME/CFS in my country town from my ME/CFS society, so today I was feeling up to giving her a call to let her know I was here too and chatting to her on the phone. It was very interesting hearing her talk exactly about the same issues I have around here eg no...
This post is different from previous ones I've made. I'm going to try to put current problems and controversies into a broader biological perspective. This will not appeal to everyone. The problem I'm grappling with is a fundamental one with implications far beyond the moment. Abstractions...
Gerwyn (he who must not be named) has turned up an early paper on virus which appeared when tissue samples were 'passaged' through nude mice. Type C virions include retroviruses; some sizes can hardly be anything else. I've selected some sentences from the abstract which practically jumped...
Can you tell I am from the East Coast? Yo, wazzzz up? Actually, that's not really how I talk. I like to make fun of the Philly slang. "yous, ya's, ain't, and the awful sound effects that come out of the true Philly native (especially South Philadelphia, are just too funny.) Although, 2...
Merry
5 min read
Views
555
Comments
4
User Blogs
from Mille et un sentiments by Denise Duhamel 401. I feel open to writing in general. 402. I feel open to free writing, sestinas, and haiku. 403. I feel open to sonnets and canzones, villanelles and pantoums. 404. I feel open to collages and centos. 405. I feel open to memory...
Caught the first episode of Art Deco Icons today and it was as cheery as a champagne cocktail. This half hour from BBC4 was all about the architecture of Claridges Hotel in London. Nothing about celebrities, thank God, in fact Claridges is so keen on discretion that most of the filming was done...
I cant wait till this week is over as Ive been busy with appointments and Im needing a good rest due to it (feeling wore out and headachey right now). Here's an update on what is going on for me. 1/ I went to the Orthopedic specialist and got told by him that the loss of full arm movement...
Contamination has as many heads as hydra. Unfortunately, all the recent publications on this subject w.r.t. XMRV haven't done much more than reiterate doubts expressed less clearly in earlier papers. Let me systematically consider each of the multiple meanings of contamination, so far as I have...
leaves
1 min read
Views
605
Comments
4
User Blogs
I am still suffering from my neuropathy. My b6 level was tested as 48 some months ago, it should be between 2-20. At the time I did not take any supplemental b6. A lot of people have a problem converging it to p5p. Then the b6 just builds up, becomes toxic and causes neuropathy. I hope I can...
leaves
1 min read
Views
508
Comments
3
User Blogs
Hmm So it seems that my energy benefits were mostly due to the pregnenelone. At least I stopped this, and my energy has suffered much from that. The reason I stopped is because of its androgenic effects plus it made me irritable. I really want to get this energy back but i guess i have to take...