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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Not Exactly an Emergency / The Beat Heat ManifestoThis! Glad you are OK (but watch that heat) and love the sunset....beautiful. -
Not Exactly an Emergency / The Beat Heat ManifestoNo need to apologise I love to hear your thoughts as well as your adventures -
Not Exactly an Emergency / The Beat Heat ManifestoYes it is and what I refer to as 'just the right temps' are making me reminiscent of growing up in California. And what is strange is the last... -
Not Exactly an Emergency / The Beat Heat ManifestoHoping the NWS Phoenix has this right - supposed to be cool into the weekend, which equates to more freedom and frolic out and about 🦼
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While I don't pretend to understand the current budget deal, I will hazard some observations about things noticed in the previous week. We had a House plan from Republicans, a Senate plan from Democrats, and a proposal from the Tea party for a balanced budget amendment, plus an analysis by the...
by Bethany Yagci
If I weren't ill...
I wouldn't have to rely
On my poor spirit weak as it is coming up
Surprisingly stronger than all else.
I would rely on my body, that washed up shell
That is supposedly me which was
Once my confidante now become my betrayer.
My mind
which...
I have previously suggested the problem with research on ME/CFS centers on a lack of funding for meaningful research with some chance of changing a dismal situation. I have also traced some current controversies to what I believe were scientific errors made decades ago, even before the label...
I am still encouraging anyone interested to send me a private message if you'd like to be invited to the group. And I would love to get a private message from anyone at all who has any questions or comments. I'd really like to know how much interest there is in this type of group.
I see...
My doc appointment this week basically went like this:
Me doctor, you dumb, confused patient. Me know what's best for dumb stupid patient.
Okay, I may not have a medical degree, and I may not know everything there is to know about the human body, however, I have had to spent about...
[For those who have trouble reading large blocks of text, I have, below the text in original formatting, broken up the long paragraph of the prose poem.]
Young Armless Man in the Barbecue Restaurant
by Phyllis Koestenbaum
The hostess seats a girl and a young man in a short-sleeve sport...
Had another busy couple of weeks with appointments.
I saw my allergist .. I went there with a list of 5 things hoping to sort out but in the 45min appointment we only got throu a couple of things so I need to go back in a couple of weeks.
One of my seizure incidents which manifested...
I wrote this article for www.empowher.com --
1. I can stay out of bed during the day.
Before Chronic Fatigue Syndrome led me to my naturopath Dr. Kelly Upcott, I was spending anywhere from 5 to 8 hours during the daytime in bed. I was also sleeping 8 to 10 hours at night.
The rest periods...
I wanted to see how much desire there is for such a group.
Here is the link to the group:
http://forums.phoenixrising.me/group.php?groupid=27
http://forums.phoenixrising.me/group.php?groupid=27
I am wriiting to announce the creation of a new group. Just to clarify, this is ideally a group for people who already know they are alchoholics/ addicts in recovery, just seeking to connect with each other here, as it may be difficult to...
Check out the new blog post on www.cfsnovel.com/blog
I am sorry to vent my frustrations but have thought a lot about this the last couple of days and am just disheartened by all of it. This has got to be the stupidest illness there is.....one characterized not by what it is but by what it is not. I was with Klimas last week and we went through...
An Apology
by F. J. Bergmann
Forgive me
for backing over
and smashing
your red wheelbarrow.
It was raining
and the rear wiper
does not work on
my new plum-colored SUV.
I am also sorry
about the white
chickens.
This poem was a finalist for the 2003 James...
One aspect of the Lipkin talk at WPI was surreal, his appeal for someone to write a check for one million dollars to research CFS, MS, Parkinson's or diabetes. This at an institute which has been effectively blacklisted ever since they had the temerity to claim a new retrovirus was loose in the...
The last landing of a Space Shuttle provided a poignant moment for those interested in space exploration. For the foreseeable future U.S. astronauts will be riding expendable Russian rockets into space at some $60,000,000 a pop. That this represents a considerable savings reveals quite a story...
(Pretend that this is an actual ad in a newspaper. Like the old dating ads, minus the dating and the online craziness. Wait, we are online...yeek. Hope this goes well.) :Sign eek:
Hello,
I am looking for a friend. I am not looking for a dating partner, I am looking for a friend. Not...
In 2009 there was a study using pyrosequencing to compare the viral communities in sputum from the lungs of people with cystic fibrosis (CF) to viral communities in sputum of healthy individuals. Pyrosequencing (and 454 sequencing) is one of several competing methods generally referred to as...
While researchers dealing with biochemistry of the central nervous system were plagued by doubts, uncertainty and confusion, medical practitioners exhibited far more confidence. The distance between "this just might make you feel better" and "this will fix what ails you" is short enough to fit...
In the beginning, there were no neurotransmitters, and the brain was without form, and void of activity. (Well, O.K., maybe it had the appearance and structure of a mushroom in the morel family, or some corals, and maybe it had some kind of activity as indicated by galvanic responses and...
from The Tipping Point: How Little Things Can Make a Big Difference
by Malcolm Gladwell
. . . To be someone's best friend requires a minimum investment in time. More than that, though, it takes emotional energy. Caring about someone deeply is exhausting. At a certain point, somewhere...