• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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denlander
1 min read
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535
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User Blogs
We have read the PACE trial report in the Lancet. The PACE study, GET / CBT idea ,is a repeat of the old theory that the ME/CFS patient is imagining that they are sick. Exercise and psychological consultation will make them better. The PACE study is flawed. The only waty to combat PACE is to...
Merry
1 min read
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1K
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12
User Blogs
Teaching About Diseases by Miroslav Holub Puppet diseases are tiny and thread-like, with funereal fur coats and huge ears. And little clawed feet. There is no fever, just sawdust sifting from the sleeves. Diarrhea is like intellectual melancholy. Irregular heartbeats is like...
Kati
1 min read
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349
User Blogs
In order to help patients get more vote, I have produced an utility sheet allowing printing instructions to prospective voters telling them how to do it from a piece of paper. Download the attachement, Printing instruction: To avoid clipping of text, ensure you click on "scale to fit...
For almost 2 weeks I have had bronchitis. This has not been your typical stint with bronchitis. I have been really sick, in bed and unable to do anything. I have had no appetite, and due to the initial sore throat, I took pain meds for the sore throat and for the chest pain. Fever and well...
muffin
2 min read
Views
414
User Blogs
"http://archive.constantcontact.com/fs048/1098473133029/archive/1105256900028.html" Congratulations to Lynn Bousquet on winning the MCWPA public service announcement contest. Months of hard work and valuable input from patients have produced a public service announcement that is...
muffin
1 min read
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739
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4
User Blogs
PLEASE VOTE FOR WPI. SEE EASY DIRECTIONS BELOW: http://chasecommunitygiving.contextoptional.com/charities/205904991-whittemore-peterson-institute-for-neuro-immune-disease Takes you right to the Whittemore-Peterson Institute's Chase site for easy voting!!! OR, #1. Go here...
Merry
2 min read
Views
940
Comments
12
User Blogs
"The fineness of things gives the universe nobility" by Jean Follain The fineness of things gives the universe nobility. Behind each thing a password lies hidden. These fragile cups, these crystal glasses, how carefully they must be put into the cupboard! The maid gets up on a chair...
muffin
1 min read
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572
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2
User Blogs
http://www.causes.com/causes/511536?m=f042604e Public Service Announcement Winner in the MCWPA Contest Posted by Tina Marie Miller Tidmore on Apr 18 See the winning video of the MCWPA Contest. Congratulations to Lynn. Please share this video to anyone and everyone. Let's go viral...
Today the gardener I'd been trying to get to do my garden finally showed up (its been 3 weeks of messed up times, rain etc etc). Im paying him $50 per hr (a lot!!) as Im so desperate and getting into trouble with neighbours over the messy garden and cant find anyone else to do it. Thou...
Carrigon
3 min read
Views
753
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9
User Blogs
Tonight, my neighbor who is attached to my bedroom wall decided to blast the stereo as loud as it would go. All through my apartment and the entire floor. I had been working on a file update, coding. I had to stop in the middle of it, and the noise had such a bad effect on me that I was...
muffin
1 min read
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309
User Blogs
Posted by Karen Mascuch Ravitz on 16 April The Chronic Fatigue Syndrome Advisory Committee will meet on May 10th and 11: "http://frwebgate1.access.gpo.gov/cgi-bin/TEXTgate.cgi?WAISdocID=sxS1ji%2F1%2F1%2F0&WAISaction=retrieve" The last day to submit your written testimony or request an...
Merry
2 min read
Views
625
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7
User Blogs
from "Findings" in Harper's Magazine, April 2010 Bees can remember human faces, but only if they are tricked into thinking we are strange flowers. The Bee Tapping Inside Your Car's Back Window by David Shevin He say we goin to the same place tonight? He say I'm a worker just...
PLEASE HELP WPI HELP MILLIONS! As you may know, Chase International recently created the Chase Community Giving program enabling participants to determine which small US non-profits will receive donations of more than $5 million from Chases philanthropy funds. The top 100 eligible...
muffin
2 min read
Views
378
User Blogs
LINKS ARE IN " " SO PLEASE COPY AND PASTE INTO YOUR BROWSER. WE HAVE BEEN HAVING PROBLEMS WITH FACEBOOK CAUSES CHOPPING OFF THE END OF THE LINKS. PLEASE CHECK OUT THE VIDEOS AND VOTE!!!! Time to Vote For ME/CFS Worldwide Patient Alliance - Public Service Announcements...
muffin
2 min read
Views
349
User Blogs
Time to Vote for PSA - Time to Vote For ME/CFS Worldwide Patient Alliance (www.mcwpa.org) http://www.causes.com/causes/511536?m=f042604e Posted by Tina Marie Miller Tidmore on Apr 11 You get to have your say with MCWPA. We are now calling for ME/CFS patients and their families to vote...
Here is a link for the Deepak Chopra Center 21 Day Meditation Challenge. It starts tomorrow April 11, 2011... it's free to sign up and I will be doing it since I have started meditating again this will be great! :smiley-hug: http://www.chopra.com/meditationchallenge Namaste Hope Love Light
I just watched the movie, "The Road." It pretty much is a movie reflecting how I feel. Everything is a funky brown color and people are scrounging for survival. I feel that way too. I am not seeing anything in color. This is coming from a place deep within. I am writing like no one...
muffin
1 min read
Views
289
User Blogs
http://apps.facebook.com/causes/posts/716200 Have Your Say! Posted by Andie Pring on 5 April 2011 Want a voice? Feel like no one is listening to you? Well, here's an action you can be involved in that will help educate the public on what it truly means to have this disease. We have a...
Merry
1 min read
Views
1K
Comments
19
User Blogs
from The Songs of Kabir II. 22. man tu pr utar knh jaiho To what shore would you cross, O my heart? there is no traveller before you, there is no road: Where is the movement, where is the rest, on that shore? There is no water; no boat, no boatman, is there; There is not so much...