• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

JanisB

JanisB
2 min read
Views
531
Reaction score
1
Comments
1
User Blogs
You probably dont have enough VIP. 98% of people with CFS dont. The MCS crowd hasnt yet been testing, but when you learn what this neuropeptide does, youll probably surmise that low levels play a big role in that syndrome as well. Ive been thinking of going to Dr. Rea for allergy testing...
JanisB
5 min read
Views
426
User Blogs
Four hours ago today I returned home from Chicago. I left home last Thursday night, went to the retreat with Guruji Mahendra Trivedi, stayed for 3 days with friends, and drove home today. This blog describes my excitement at how good I feel tonight! Every retreat I've attended (there have...
JanisB
7 min read
Views
559
Comments
2
User Blogs
Have you ever wished for a book you could give to something so theyd REALLY understand what you are going through? Nasim Jafry's The State of Me does just that in the form of an entertaining novel. The author did an amazing job of turning the horrible experience of living with chronic...
JanisB
7 min read
Views
994
Reaction score
1
Comments
7
User Blogs
We have yet another acronym for the disease which David S. Bell called The Disease of A Thousand Names (1991) in one of the first books published on this illness. Bell is a well known medical doctor in Lyndonville NY, the site of one of the first CFS epidemics in the 1980's. Since Bell's...
JanisB
3 min read
Views
499
Comments
1
User Blogs
Last Friday, I started a regimen of colonics and immediately started feeling better. I have since done one almost every day, skipping only those days that I've travelled to the doctor in Columbus. I decided to do this to reduce the stress on my liver, since the unfriendly microorganisms living...
JanisB
4 min read
Views
401
User Blogs
Yesterday the roads were white with black patches, and today it is still snowing. Twenty minutes away from home, I turned around -- missing my doctors appointment and my NT treatment, but getting instead a much-needed 2 hour nap under a cozy down sleeping bag. The results of my blood tests...
JanisB
3 min read
Views
517
Comments
2
User Blogs
The Roman God Janus, for whom January is named, is shown with two faces. One looks back, the other forward. I dont know if my name Janis has an etymological connection to this God, but I find myself similarly looking back at where Ive come and thinking how the lessons of 2009 might direct me...
JanisB
3 min read
Views
349
User Blogs
I participated in a study run by the lab, Cooperative Diagnostics, located in Greenwood SC. They received blood samples from about 50 individuals with severe to moderate CFS/ME. The criteria for inclusion were PEM (post exertional malaise) and being at 50% or less capacity on the Bell scale of...

Blog information

Author
JanisB
Blog entries
8
Last update