• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

leaves

leaves
1 min read
Views
565
Comments
4
User Blogs
I suppose most have us have been there; feeling very sick but having all the standard test results show up normal. The feeling, when the doctor gleefully informs you that you are completely healthy, when you feel so sick, is not one of excitement. For me tides seem to have changed now...
leaves
1 min read
Views
501
Comments
2
User Blogs
Ok just to checkj in to update. I am doing well. Throwing out the imunovir and more recently the methyl b12 was a good idea. I have more energy, feel healthier, can concentrate better, less compulsive, etc. Still by no means healthy, but doing much better than the last 2 years. I think NAC, zinc...
leaves
1 min read
Views
584
Comments
4
User Blogs
I am still suffering from my neuropathy. My b6 level was tested as 48 some months ago, it should be between 2-20. At the time I did not take any supplemental b6. A lot of people have a problem converging it to p5p. Then the b6 just builds up, becomes toxic and causes neuropathy. I hope I can...
leaves
1 min read
Views
503
Comments
3
User Blogs
Hmm So it seems that my energy benefits were mostly due to the pregnenelone. At least I stopped this, and my energy has suffered much from that. The reason I stopped is because of its androgenic effects plus it made me irritable. I really want to get this energy back but i guess i have to take...
leaves
2 min read
Views
763
Comments
7
User Blogs
It often happens .. when you start feeling better you visit the forum less. I do. Last September i was in a very bad place, but I have improved a lot (energy wise, cognitive is as bad as ever). I wanted to share because I know, from experience, we are all hanging on to these little bits of...
leaves
2 min read
Views
413
Comments
2
User Blogs
I am soon to meet with Dr Klimas and as a preparation am reviewing the progress I made. I decided to post it as it may be of help to you. - I suspect that LDN was the cause of my big crash in the summer. It could be that the dose was too high and that a smaller dose is beneficial, but at this...
leaves
2 min read
Views
964
Comments
9
User Blogs
Ok so I just got my test results and a teleconference with Dr Klimas. Sleep study: I have very short rem sleep and low quality sleep. She wants me to take a sleep medication, I forgot the name. Liquid something. (IT IS DOXEPIN, 10 mg, anyone experience with that? ). This is to improve deep...

Blog information

Author
leaves
Blog entries
7
Last update