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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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User Blogs
One never knows, do one ? — Unknown
I’ve suspected for a long time that what they’re calling Long COVID, or
Long Haul COVID, or LongHaulers, is way too close to ME/CFS in its symptoms and effects
for this not to have been noted by the highly trained minds in the medical profession...
"Growing in numbers
Growing in speed
I can't fight the future
Can't fight what I see
'Cause people, they come together
People, they fall apart
And no one can stop us now
'Cause we are all made of stars
Efforts of lovers
Left in my mind
I sing in the reaches
We'll see what we find
People, they...
“Better a mouse in a cat’s mouth than a man
in the hands of doctors” — Spanish proverb, 17th C.
When I saw a recent blog here about The Healy Device, and then after another PR member called my attention to it as something that sounded compellingly interesting, I was, like most of us...
This is for those that have been feeling the energy tsunami from the sun this week. EIGHT M and X class solar flares plus many C level ones. Now thats a real cellular tango! I have written previous blogs about how i feel the sun....and you may too :) You also may not. Either is just right.
I...
Please keep in mind that I missed the brunt of everything - but this is exactly what was happening at 3:03 p.m. (Mountain Standard Arizona Pacific Daylight Savings Time) during the brief 22 minutes that I spent in-house.
My neighbor and friend (Dora) was borderline hysterical, calling out my...
" love never hurt us, it was the absence of love" -mei lan
a prayer
for humanity's
collective heart
which is
a part
of all of our healings
as we are
all pieces
of one
cell
the
illusion
of separation
is thick
:heart:
Something i really haven't talked much about, is that i own a Healy device. Since November 2021. I acquired it after i did some fundraising. It is a FDA clearance approved device that i have found very few people know about yet in the United States. Approximately three years ago a friend from...
a balloon in the sky
change is nigh
lift the veils
as we may
we are all
just actors
buying time
yawning people
off to relay
just a girl in bed
left for dead
patiently awaiting..
the rising dawn.
This song has been playing in my head this week....upon hearing the balloon news
"And the...
Robert is gone. He was my roommate for nine days. An eventful nine days. You see, he's suffering from dementia. And for the first 48 hours as my roommate, he was quite agitated. He neither slept, nor stayed in bed. Nor did he wear clothes, all that often - careening down the hallway with his...
Today Rain came over. I love my visits with Rain. I'm soooooo cleeaaaaaannnnnnn. AND clean sheets!! my bed feels like heaven right now.:star::heart::balanced:
My gratitude for her entering my life is immense and nothing less than timely (her and i met in person a few weeks before my good...
Sometimes, i close my eyes....and i'm there.
Hes 11, shes 2. I'm 36....
I see the parking lot of the church where his boyscouts was,
i see my daughter i'm holding on my hip. I see the parents i am mingling with as we say goodbye. I see the golden moon glowing on a dark blue winters night...
“And what would humans be without love?" ….
"RARE, said Death” ― Terry Pratchett
I’m guessing that not too many of us have stopped to consider the absolutely infinitesimal, miniscule, teensy-weensy, tiny little odds of just being the ‘us’ that we’re so used to being that we’ve almost...
A prayer song...for each of us.
My days haven't been easy lately,
in a multitude of ways,
i hope some of you are faring better....
gaining ground..
i can escape in rhythm at times, and so i share...
"Creating concrete visions of a macroscopic prism
With a brilliant optimism and...
Dateline: two days ago -
A frigid desert night is in the making. Freezing. Below freezing. Our version of an Arctic blast. This winter has been cold. Colder than normal. Or at least, far colder than it's been (on average) in the past decade or so. But that's okay, as the chill is much more...
The stars are not wanted now, put out every one
Pack up the moon and dismantle the sun,
Pour away the ocean and sweep up the wood
For nothing now can come to any good — W. H. Auden
I was led back … well, more like dragged, silently kicking and screaming …. by one of our most-well-liked...
Would you like to hear a sprite of good news?
I think this dreary world would mostly say, yes. and please.
We had a wedding here, yesterday.
It came on very unexpectedly and quickly.
My husbands little brother and his girlfriend decided to get married
after many years of a colored journey...
Sometimes i zoom out, to the macrocosmic view. To remember the larger picture. To see outside of my mysterious illness. Sometimes, that macrocosmic view does not land on the spiritual end but more on the physical world level. :rolleyes::eek::jaw-drop: That has a few pros and MANY cons. Yet, is...