-
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
User Blogs
I'd been outside waiting for my return ride back to the nursing home (for nearly two hours). That's right, they forgot about me. And hence, the possibility of being stuck in Gilbert, Arizona overnight on Christmas Eve was becoming a real possibility. Lucky for me, the temperature was agreeable...
It tis the new year, so happy New year to y'all.
Heres how i'm feeling today... captured quite well by Morrison's introduction..
"hi, how ya doing man?
yeah
looking good...
everything is f'ed up as usual"
hmmm, shall i discuss next how when you have been 99.7% bedridden for over 4 years...
Last night, I was thinking about ….. things ….. and one of them was wondering what makes the New Year so challenging, if you’re one of those people it’s challenging for, which I definitely am.
Is it that it almost forces you to take stock, whether you want to or not? To look at where you...
A few years ago, under strange circumstances, i met my current therapist, via my bedroom obviously. My husband was adamant as were other family members that i receive, yet more, therapy. Why? Because they want me fixed. And since they view this as largely a remainder of psychological issues...
My daughter and i were reading one of our favorite books today and i thought i would share it. You can read the entire book for free in link below passage.
:star:
sunshine
The Little Prince
Antoine de Saint-Exupéry
Chapter 21
It was then that the fox appeared.
"Good morning," said the fox...
"Hello, Joseph.
Trouble?
Looks like we'll have to
send someone down.
A lot of people asking for help
for a man named George Bailey.
George Bailey. Yes.
Tonight's his crucial night. You're right.
We'll have to send someone down
immediately. Whose turn is it?
That's why...
Today I used my heart rate to uncover something that was causing me trouble.
For the last few days, my heart rate has been unusually high, and my HRV (both moment-to-moment and my morning reading) has been lower than usual.
I felt normal, but whatever I did, my heart rate would trend steadily...
Tracking the heart rate has amazing power!
In the beginning, I knew that I should try to keep my heart rate below my anaerobic threshold. But beyond that, I didn’t know what my heart rate really could show me. I spent more time looking at HRV, which seemed more interesting and useful. And it...
And so its near and almost here. Some years, i find it incredibly difficult and much too painful...and some years, i feel the magic more than the suffering. This is one of those years for me after a few incredibly tough years on my mind and body with this illness. Christmas was hardly something...