Trusting the Numbers

Step 1: Getting out of PEM and moving toward stability Brain fog summary: I thought I was resting well enough, but I got into trouble anyway. So when I can, I rest without doing anything else. I don’t even listen to anything. I move around when I feel like it, at least every...
CoolBreezes
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Trusting the Numbers 5:  Why tracking my heart rate isn’t enough
Measuring my heart rate does at least two things for me. The moment-to-moment heart rate tells me how much I am stressing my body in the moment, so that I can pace myself better. The morning heart rate tells me how my body is recovering from its various stresses (emotional, physical...
CoolBreezes
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It took me a while to figure out what I needed for staying in bed (or in a recliner). My current setup would have made things easier from the beginning. On the bedside table: Lamp Rectangular basket in which I keep: medication cloth bag with my devices (thermometer, O2...
CoolBreezes
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280
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I began HRM pacing on March 24, 2022, when I was in PEM again and could hardly walk. Since I (fortunately) don’t have pain, I can (unfortunately) push myself even in deep PEM. My walking pace made a bride’s progression down the aisle look speedy, but I managed to drive to REI and buy myself a...
CoolBreezes
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When I started pacing, I was terrified of my rapid loss of function, so I took quite literally everything that I managed to find. In doing so, I made some mistakes. I hope that others can learn from my mistakes, even though every person’s experience of ME/CFS is different. I don’t have to be...
CoolBreezes
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When I was looking into starting pacing with a heart-rate monitor, I found too few specifics about exactly how to do it, so I’ll record what’s going on with me in case it helps others. I’ll assume, here, that you have an understanding of ME/CFS, and that you understand the basics of pacing with...
CoolBreezes
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188

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CoolBreezes
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