-
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
User Blogs
Last night i was it hing and scratching and realized was the first time since covid! So for 12 days i was not itching at all!
Was it that my immune system was too busy? Was it that without eating or going put for a week there was no allergens??
One oher thing returned- first time in 12 days my...
The night before last , so day 11, i realized i didnt smell the burning toast. I tried to just ignore it but by yesterday couldn't escape tgat i wasnt smelling anything- not the trash, or myself or any food. Its possible its been true or building for days when i look back.
Hard to just take it...
My daughter and i found this book today.
I had gotten it years ago at a thrift store.
Each page is a puzzle on the right side.
The faerie poems are so lovely and each page, so beautiful.
It made me smile a tad today when i saw this one.
Maybe it will make you smile, too.
:star:
Hmm. Have a zillion reasons i dont eat roast beef except i suddenly craved it after at least 5 years without and it tasted great! OTOH I suddenly cant stomach eggs, a staple in diet. Inakso want bread which i never eat and shudder at pasta, my usual food. And bring on the salt salt salt im...
I saw this today and i feel i am beginning to surface after being in deep waters all week.
I thought i would share since we are all human...and all go through these things.
Birth, life and death.
"Tending to grief is the essence of the alchemical wounded healer. Proving a sanctuary and safe...
This is what happened. On valentines day, I was shot with covids arrow rather than cupids.
At breakfast and lunch were fine with zero indication of illness . About 4 pm i started getting a headache. I blamed it or at least its worsening on trying to read small subtitles on a movie i was...
Today is Day 11. I think I’m supposed to be better. But the congestion in nose and extending to throat remains unrelenting. Thick secretions I cannot clear that has produced many moments of near panic. Also makes me dizzy.
Doctors are unsure if this reflects continued covid or a secondary...
First posted in summer 2021
Updated spring 2023
I recently put data about treatments I've tried into Stuff That Works to help build their database. They're hoping to identify treatments that work for subgroups. I thought it might be helpful to share my big old list here.
I've split it up into...
My ex boyfriend i was with for 5 years before my husband, passed away Thursday.....and i feel sad.
He battled big monsters for a great many years. I spent many years saving him.
Its really strange because we haven't been in contact in 15? years.
This is kind of strange territory to navigate...
The strongest of all warriors are these two—
time and patience —Leo Tolstoy
I’m old enough to remember the sneering jokes on late nite TV after
Jimmy Carter’s interview with Playboy and his admission that, in his heart, he’d lusted . Quite
an admission from a devout, practicing, Sunday...
Dr Weir's 5 free Irish ME/CFS talks in Cork/Dublin/Galway/Limerick/Sligo, May 2023
The Irish ME/CFS Association is pleased to announce that it has arranged for Dr William Weir, a leading international ME/CFS expert from the UK, to give 5 ME/Chronic Fatigue Syndrome talks in Ireland in and...
One never knows, do one ? — Unknown
I’ve suspected for a long time that what they’re calling Long COVID, or
Long Haul COVID, or LongHaulers, is way too close to ME/CFS in its symptoms and effects
for this not to have been noted by the highly trained minds in the medical profession...
"Growing in numbers
Growing in speed
I can't fight the future
Can't fight what I see
'Cause people, they come together
People, they fall apart
And no one can stop us now
'Cause we are all made of stars
Efforts of lovers
Left in my mind
I sing in the reaches
We'll see what we find
People, they...
“Better a mouse in a cat’s mouth than a man
in the hands of doctors” — Spanish proverb, 17th C.
When I saw a recent blog here about The Healy Device, and then after another PR member called my attention to it as something that sounded compellingly interesting, I was, like most of us...
This is for those that have been feeling the energy tsunami from the sun this week. EIGHT M and X class solar flares plus many C level ones. Now thats a real cellular tango! I have written previous blogs about how i feel the sun....and you may too :) You also may not. Either is just right.
I...