me/cfs

This is a google auto translation: Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), is a common and severe multisystem disease. A defined cause could not be found so far. What is clear, however, is that dysregulation of the immune system, the hormone system, the...

Thank you for pointing it out. Finally!!! I have been saying for years PPS is (part of) ME/CFS. I was laughed at by every doctor telling me "you have no medical credentials." But, I have had all related symptoms since the age of 5 y old. The 1934 Los Angeles County General Hospital epidemic...

https://www.theatlantic.com/health/archive/2022/09/mecfs-chronic-fatigue-syndrome-doctors-long-covid/671518/ An article by Ed Yong, about how long covid is forcing people to address the situation with me/cfs. I'm not sure he's right about that but it's worth a read and he is getting our...

A study has analysed existing genetic data in a new way to link 14 genes to ME/CFS and identify many patient subgroups. If the new approach pans out, it could transform ME research and turbocharge the development of treatments. Paper: Genetic Risk Factors for ME/CFS Identified Using...

Article: Researchers say they have found a link in the pathology between long COVID and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Key points: Griffith University researchers say their findings could help to treat those suffering from long COVID A woman with chronic fatigue...

https://www.statnews.com/2022/03/29/nih-long-covid-sluggish-study/

looking for podcast participants Potentially upsetting Looking for people to be interviewed on a podcast: The most interesting things I'd like to talk about ir type of guests : 1. People who have had some kind of experience with environmental factors in their illness People who have done some...

Hey folks, As we know, there's a lot of chatter about links between ME/CFS and long COVID. However, today I was surprised to read that a research team in QLD are looking into whether their ME/CFS diagnostic test (yes, diagnostic test) and treatment (double yes) will also work for long COVID...

25 March 2022 Oculomotor testing in the lab. A Monash Central Clinical School scientist has been awarded $180,000 over three years to develop a way to help diagnose myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Associate Professor Joanne...

Excerpt: Most doctors and people with chronic fatigue syndrome don't know the name of this syndrome or anything else about it. The CDC estimates that 90% of people with ME/CFS aren't diagnosed by a health care professional. “Of all the people who completed the survey, only 46% had ever heard...

https://openletteropenmedicinefoundation.com/an-open-letter-to-the-open-medicine-foundation-by-kaylin-jones/ Another person asking the OMF to look into mold or environmental toxins in ME/CFS. So far they haven't responded. But lets keep trying. If anyone else has experienced environmental...

Clinically important drug interactions potentially involving mechanism-based inhibition of cytochrome P450 3A4 and the role of therapeutic drug monitoring Abstract Cytochrome P450 (CYP) 3A4 is the most abundant enzyme of CYPs in the liver and gut that...

What outlets besides our own blogs can we publish art specific for ME/CFS peolle or people with chronic illness? Omf rejected a poem I wrote for supposedly being too dark, it made me very sad and made me think I cant really connect with people in the me/cfs community. Bc this particular poem...

Expert Virtual Care for Long COVID One in three people who have been ill with COVID develop long term health effects including disabling fatigue, cognitive and mood disorders, and many other symptoms. We can help. RTHM brought on post-viral illness & ME/CFS expert Jennifer M. Curtin MD from...

On behalf of Open Medicine Foundation, I'm pleased to share that a new research publication, authored by myself and colleagues, has been published in Frontiers in Neurology: “Lessons From Heat Stroke for Understanding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.”...

Here's the tweet announcement. I expect lots of discussing about this , its very exciting news , but I am concerned they are not using upright mri if I read btwn the lines. (Upright mris in 7Tesla dont exist I think, not even in 3 tesla) Anyway I will post my thoughts about this in a...

The more I read about ME/CFS, the more I´m confused. The Charite in Germany is making this statement: How to Make a Diagnosis of CFS There is currently no specific test for CFS in clinical diagnostics, so the diagnosis is made on the basis of clinical symptoms. CFS is also a so-called...

Please watch if you can

https://openletteropenmedicinefoundation.com/some-assorted-pieces-of-art-that-will-help-make-sense-of-this/

Hi everyone. Sorry this is long. I’m hoping someone who’s tried high dose thiamine might chime in. For my backstory, I’m 69 and have been disabled with ME/CFS for 35 years. The first 3 yrs I was bed-bound most of the time and gradually improved to about 70% over the first 10 yrs. But then...

https://walkerstorz.com/me-cfs-etiology/ This isnt the final form of the theory. I have three substantial parts to add, and it will become even more big and unwieldy. :) But I think that its substantial enough that I may as well put it out there for now. @Hip I referenced your dual factor...

https://atomicchesterton.blogspot.com/2020/06/helpless.html

Here's a new one, particularly long, in which I interview a friend I knew from school who got sick with similar issues simultaneously to me and ended up pursuing mold avoidance in new Mexico. We talk about his whole journey but at the end we get into his visions for using permaculture to...

Hi - I am a single parent with three lively children and my own business. I have tried everything and have learnt to manage symptoms etc but have not made a breakthrough. It seems one of the main things needed for the body to recover from ME/CFS is to be in a 'healing state'. Even though most...

Listen to Origin Story Pt. 1 by Headless Youth Podcast on #SoundCloud https://soundcloud.app.goo.gl/heCz

The Apologizers of the ME/CFS World by Jody Smith I'm Canadian, so I hear a lot of good-natured jokes about how Canadians apologize all the time. It's funny in part because ... in part, it's true. But you know who else apologizes a lot? Chronically ill people. And that ain't so funny. Now...

Many of you will remember the landmark Japanese study from 2014 that used PET tracers to detect and image neuroinflammation in the brains of ME patients. Previously, no one had the technology to detect and image neuroinflammation in ME, as standard MRI's are totally unable to detect or image...

https://atomicchesterton.blogspot.com/2020/06/helpless.html?m=1

Over the years, we have seen multiple reports that strong anti-inflammatory treatment reduces ME symptoms in the short-term, but may worsen ME in the long-term. Most of this evidence has come from patient anecdotes regarding...