me/cfs

Sorry, if this is already posted. Abstract Fatigue is a common reason that patients seek medical care. Only a fraction of these patients meet criteria for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). To determine if ME/CFS is just a more extreme form of fatigue, or a...

Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic, complex multi-organ illness characterized by unexplained debilitating fatigue and post-exertional malaise (PEM), which is defined as a worsening of symptoms following even minor physical or mental exertion. Our...

This is the first complete research that confirms my long-standing theory. This is a long paper, though reading is worth it. ME/CFS, FM, RA, SS, POTS, PVACS, Lyme: THERAPEUTIC TEST AND FIRST TREATMENT REGIME, WITH FIBRINOLYTICS AND FAMOTIDINE FOR PATIENTS WITH CHRONIC FATIGUE AND/OR PAIN TO...

It is a very extensive study. Abstract Long COVID is an often debilitating illness that occurs in at least 10% of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infections. More than 200 symptoms have been identified with impacts on multiple organ systems. At least 65 million...

Abstract The purpose of this article is to review the evidence of similar symptomatology of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and post-acute sequelae of SARS-CoV-2 infection (PASC). Reanalysis of data from a study by Jason comparing symptom reports from two groups of...

Abstract Following COVID-19 infection, a substantial proportion of patients suffer from persistent symptoms known as Long COVID. Among the main symptoms are fatigue, cognitive dysfunction, muscle weakness and orthostatic intolerance (OI). These symptoms also occur in myalgic...

Published: 14 December 2022 Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating chronic disease that lacks known pathogenesis, distinctive diagnostic criteria, and effective treatment options. Understanding the genetic (and other) risk factors...

Abstract Background Muscle fatigue and pain are key symptoms of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Although the pathophysiology is not yet fully understood, there is ample evidence for hypoperfusion which may result in electrolyte imbalance and sodium overload in...

I´m very glad that Cort Johnson published this very good article. At the same time it is very frustrating that doctors in Germany refuse (for whatever reason) to test VLCFA even though I delivered previous results (tested in USA 2018) for elevated phytanic acid. I mentioned " New article on...

The Patient-Led Research Collaborative’s Patient-Led Research Fund announced $4.8 million in biomedical research awards today, funding 9 research projects in Long COVID, ME/CFS, dysautonomia, and associated conditions. This fund and awarded projects are distinctly meaningful for four major...

https://drive.google.com/file/d/1BBLa4FTv3LgBoZJNOtU9RQeraZ__026G/view?usp=drivesdk Interesting. Could validate environmental/dual factor theory of @Hip or it could be their microbiome or some epigenetic factor.

https://www.independent.co.uk/news/uk/myalgic-encephalomyelitis-scottish-parliament-scotland-msps-holyrood-b2177301.html He's also an OMF ambassador. He's one of one of most prominent famous people with our illness. Albeit more mild than a lot of us bedridden folks. But apparently early on he...

This is a google auto translation: Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), is a common and severe multisystem disease. A defined cause could not be found so far. What is clear, however, is that dysregulation of the immune system, the hormone system, the...

Thank you for pointing it out. Finally!!! I have been saying for years PPS is (part of) ME/CFS. I was laughed at by every doctor telling me "you have no medical credentials." But, I have had all related symptoms since the age of 5 y old. The 1934 Los Angeles County General Hospital epidemic...

https://www.theatlantic.com/health/archive/2022/09/mecfs-chronic-fatigue-syndrome-doctors-long-covid/671518/ An article by Ed Yong, about how long covid is forcing people to address the situation with me/cfs. I'm not sure he's right about that but it's worth a read and he is getting our...

A study has analysed existing genetic data in a new way to link 14 genes to ME/CFS and identify many patient subgroups. If the new approach pans out, it could transform ME research and turbocharge the development of treatments. Paper: Genetic Risk Factors for ME/CFS Identified Using...

Article: Researchers say they have found a link in the pathology between long COVID and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Key points: Griffith University researchers say their findings could help to treat those suffering from long COVID A woman with chronic fatigue...

https://www.statnews.com/2022/03/29/nih-long-covid-sluggish-study/

looking for podcast participants Potentially upsetting Looking for people to be interviewed on a podcast: The most interesting things I'd like to talk about ir type of guests : 1. People who have had some kind of experience with environmental factors in their illness People who have done some...

Hey folks, As we know, there's a lot of chatter about links between ME/CFS and long COVID. However, today I was surprised to read that a research team in QLD are looking into whether their ME/CFS diagnostic test (yes, diagnostic test) and treatment (double yes) will also work for long COVID...

25 March 2022 Oculomotor testing in the lab. A Monash Central Clinical School scientist has been awarded $180,000 over three years to develop a way to help diagnose myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Associate Professor Joanne...

Excerpt: Most doctors and people with chronic fatigue syndrome don't know the name of this syndrome or anything else about it. The CDC estimates that 90% of people with ME/CFS aren't diagnosed by a health care professional. “Of all the people who completed the survey, only 46% had ever heard...

https://openletteropenmedicinefoundation.com/an-open-letter-to-the-open-medicine-foundation-by-kaylin-jones/ Another person asking the OMF to look into mold or environmental toxins in ME/CFS. So far they haven't responded. But lets keep trying. If anyone else has experienced environmental...

Clinically important drug interactions potentially involving mechanism-based inhibition of cytochrome P450 3A4 and the role of therapeutic drug monitoring Abstract Cytochrome P450 (CYP) 3A4 is the most abundant enzyme of CYPs in the liver and gut that...

What outlets besides our own blogs can we publish art specific for ME/CFS peolle or people with chronic illness? Omf rejected a poem I wrote for supposedly being too dark, it made me very sad and made me think I cant really connect with people in the me/cfs community. Bc this particular poem...

Expert Virtual Care for Long COVID One in three people who have been ill with COVID develop long term health effects including disabling fatigue, cognitive and mood disorders, and many other symptoms. We can help. RTHM brought on post-viral illness & ME/CFS expert Jennifer M. Curtin MD from...

On behalf of Open Medicine Foundation, I'm pleased to share that a new research publication, authored by myself and colleagues, has been published in Frontiers in Neurology: “Lessons From Heat Stroke for Understanding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.”...

Here's the tweet announcement. I expect lots of discussing about this , its very exciting news , but I am concerned they are not using upright mri if I read btwn the lines. (Upright mris in 7Tesla dont exist I think, not even in 3 tesla) Anyway I will post my thoughts about this in a...

The more I read about ME/CFS, the more I´m confused. The Charite in Germany is making this statement: How to Make a Diagnosis of CFS There is currently no specific test for CFS in clinical diagnostics, so the diagnosis is made on the basis of clinical symptoms. CFS is also a so-called...