• Phoenix Rising needs funds to operate: please consider donating to support PR

me/cfs

  1. Pyrrhus

    Second study confirms neuroinflammation in ME subcortical brain

    Many of you will remember the landmark Japanese study from 2014 that used PET tracers to detect and image neuroinflammation in the brains of ME patients. Previously, no one had the technology to detect and image neuroinflammation in ME, as standard MRI's are totally unable to detect or image...
  2. debored13

    Helpless (Essay i wrote from current place of pain and uncertainty)

    https://atomicchesterton.blogspot.com/2020/06/helpless.html?m=1
  3. Pyrrhus

    Anti-inflammatories may reduce symptoms in the short-term, but may not in the long-term

    Over the years, we have seen multiple reports that strong anti-inflammatory treatment reduces ME symptoms in the short-term, but may worsen ME in the long-term. Most of this evidence has come from patient anecdotes regarding...
  4. Pyrrhus

    B12: a simple 5-second poll for everyone

    This is a simple 5-second poll for anyone who has ever tried a B12 supplement in any form. Many thanks to everyone who responds! Please feel free to share your experience in more detail in a post.
  5. Jody

    May 12, 2020: It's Our International ME/CFS and FM Awareness Day!

    May 12, 2020: It's Our International ME/CFS and FM Awareness Day by Jody Smith On May 12, our International ME/CFS and FM Awareness Day, I tend to look back over the years since I was first flattened by ME/CFS. Things changed for the better for me when I found my community. I'd already lived...
  6. Jody

    A Look at COVID-19 Through the Eyes of ME/CFS

    A Look at COVID-19 Through the Eyes of ME/CFS by Jody Smith I have been self-isolating for over two weeks now. Not because of COVID-19. At least, not at first. Like many of you, I spend a great deal of time in my house because of ME/CFS. I was housebound due to a resurgence of ME/CFS symptoms...
  7. Pyrrhus

    Quotes from the unusual life of Dr. Byron Hyde

    I thought I would start a thread to collect quotes from the life of Dr. Byron Hyde, who has had a front-row seat to some of the most important events that have occurred in the field of ME/CFS: On the Akureyri outbreak: On the Royal Free outbreak: On McEvedy and Beard's paper calling the...
  8. Jody

    Looking Ahead to a New Year With ME/CFS

    Looking Ahead to a New Year With ME/CFS by Jody Smith Hey, it's the beginning of a new year. And 2020 has a nice fresh ring to it. This time of year are you thinking about the future? I'm not talking about New Year Resolutions. I ditched those years ago. Me, I have a hard time looking to...
  9. Jody

    Living With ME/CFS in the Holiday Season :Year After Year

    Living With ME/CFS in the Holiday Season: Year After Year by Jody Smith This year marks my twenty-eighth holiday season fractured by ME/CFS. Some years have been better, some worse. All of them have been thrown off kilter in one form or another for me and my family. My first Christmas...
  10. Jody

    On the Absence of Light and ME/CFS

    On the Absence of Light and ME/CFS by Jody Smith On my side of the world, change is brewing. Here in North America, the cold and dark brooding of winter looms and glowers. In some areas it has already hit, hard. Temperatures dropping, days shortening ... for someone like me who lives with...
  11. Jody

    Invisible Disabilities Week Is Oct. 13 - 19, 2019

    Invisible Disabilities Week Is Oct. 13 - 19, 2019 by Jody Smith The ME/CFS community is all too familiar with the realities of invisible disabilities. As a matter of fact we are rife with them. For this reason, we're happy to make some noise for Invisible Disabilities Week. If you have an...
  12. Jody

    Never Enough Hours in a Day With ME/CFS

    Never Enough Hours in a Day With ME/CFS by Jody Smith There just aren't enough hours in the day for the person with ME/CFS. At least, it's been like this for me. It's not that I'm so terribly busy. Indeed, I am not. Not like I used to be busy, before illness. The complicating factor and...
  13. Jody

    Do You Have to Travel Far for ME/CFS Medical Visits?

    Do You Have to Travel Far for ME/CFS Medical Visits? by Jody Smith One of the things that can strike fear into the heart of a person with ME/CFS is the prospect of going to the doctor. Worse yet is the ordeal of having to travel a long distance for such an appointment. An hour or two traveling...
  14. Jody

    The Crash that Follows the Push of ME/CFS and FM Awareness Day

    The Crash that Follows the Push of ME/CFS and FM Awareness Day by Jody Smith It's been about a month since the ME/CFS community pulled out all the stops for our May 12 International ME/CFS and FM Awareness Day. I think we have a great deal to be proud of, and encouraged by. With each passing...
  15. Jody

    May 12, 2019 Is International ME/CFS and FM Awareness Day

    May 12, 2019 Is International ME/CFS and FM Awareness Day by Jody Smith International ME/CFS and FM Awareness Day 2019 has grown from an idea conceived by Thomas Hennessy, Jr. back in 1992. He chose the date of May 12 because it was the birthday of army nurse and Red Cross founder Florence...
  16. Pyrrhus

    NYT Article on Empress Masako

    For anyone interested in the new Empress Masako of Japan, who reportedly suffers from ME, there was a New York Times article that entirely neglected her health problems: https://www.nytimes.com/2019/04/29/world/asia/japan-emperor-women.html?action=click&module=News&pgtype=Homepage All it says...
  17. Pyrrhus

    CDC: Enterovirus D68 causes paralysis

    After spending decades carefully avoiding the use of the word “cause” in relation to enteroviruses, the CDC has now conceded for the first time that Enterovirus D68 causes paralysis. https://www.cdc.gov/mmwr/volumes/68/wr/mm6815a4.htm?s_cid=mm6815a4_w
  18. Pyrrhus

    Viral Exosomes known as ‘Stealth Spheres’

    Given the recent interest in exosomes, I thought I might share some research on extracellular vesicles that the media have, somewhat sensationally, dubbed “Stealth Spheres”: References: (Chen et al., 2015)...
  19. Jody

    Why Is it so Hard to Learn New Things With ME/CFS?

    Why Is it so Hard to Learn New Things With ME/CFS? by Jody Smith On good days, I mostly operate on cruise control, with the occasional moment of brilliance and quite a bit of vegetative regeneration. I can handle most things especially if they are routine and familiar. Bring in something new...
  20. Jody

    Why Is Music So Hard for People With ME/CFS?

    Why Is Music So Hard for People With ME/CFS? by Jody Smith Oh, how I love music! This magic can lift our spirits and calm our weary minds. Maybe it can even help us heal. Goodness knows, we who live with ME/CFS need these things. We're probably not getting much of this elsewhere. So if music...