Long covid has forced a reckoning for one of medicines most neglected diseases

Messages
4,409
Likes
5,011
Location
Vermont, school in Western MA
Now, what kind of disturbs me is this article talks about the few me/cfs docs that are left kicking out me/cfs patients to take long covid patients. And if you look at long covid forums a lot of them are contemptuous toward the idea that they have me/cfs or that patients with me/cfs have anything to teach them or help them with.

And yet they are taking up extremely limited slots with our doctors and most of the research funding
 
Messages
4,409
Likes
5,011
Location
Vermont, school in Western MA
"ME/CFS specialists, already overwhelmed with demand for their services, now have to decide how to best use and spread their knowledge, at a time when more patients and doctors than ever could benefit from it. Kaufman recently discharged many of the more stable ME/CFS patients in his care—Stoops among them—so that he could start seeing COVID long-haulers who “were just making the circuit of doctors and getting nowhere,” he told me. “I can’t clone myself, and this was the only other way to” make room for new patients...


These agonizing decisions mean that many existing ME/CFS patients are losing access to the best care they had found so far—what for Stoops meant “the difference between being stuck at home, miserable and in pain, and actually going out once or twice a day, seeing other humans, and breathing fresh air,” she told me. But painful trade-offs might be necessary to finally drag American medicine to a place where it can treat these kinds of complex, oft-neglected conditions. Kaufman is 75 and Bateman is 64. Although both of them told me they’re not retiring anytime soon, they also won’t be practicing forever. To make full use of their expertise and create more doctors like them, the medical profession must face up to decades spent dismissing illnesses such as ME/CFS—an overdue reckoning incited by long COVID. “It’s a disaster possibly wrapped up in a blessing,” Stoops told me. “The system is cracking and needs to crack.”