[Indie Band] Belle and Sebastian Frontman: "Living with ME makes me feel like a non person "

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https://www.independent.co.uk/news/...rliament-scotland-msps-holyrood-b2177301.html

He's also an OMF ambassador. He's one of one of most prominent famous people with our illness. Albeit more mild than a lot of us bedridden folks. But apparently early on he went thru periods like that and it influenced a lot of his music about frailty and sickliness .

Not as explicitly about ME although things like the early "get me away from here I'm dying" really sound like a wispy frail chronic illness patient. Actually a lot of the early stuff sounds like that but that song in particular has lyrics that fit that idea. But later in nobody's empire , he sort of "came out" and made a song so explicitly about this marginalized chronic illness and his history with it. It's very beautiful indie pop and I recommend people check it out.

He could be a good spokesperson for this disease. Probably a lot of Belle and sebastian fans don't know this about him.
 

Zebra

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@frozenborderline

I've been a Belle & Sebastian fan since their first few albums, and I had no idea that one of the band members had ME/CFS!!! Thank you for sharing this article.

It's difficult to imagine someone with ME/CFS being able to go on world-wide tours to promote each album, but I don't know anything about the origin of his illness, what treatments he's had, etc. Maybe in the near future I'll poke around the Internet looking for more info.

I do appreciate that he is not "hiding" his ME/CFS from the public and is actively advocating for the ME/CFS community. Good on him!
 

hapl808

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It's difficult to imagine someone with ME/CFS being able to go on world-wide tours to promote each album, but I don't know anything about the origin of his illness, what treatments he's had, etc. Maybe in the near future I'll poke around the Internet looking for more info.
I could have (and did) do a lot when I was more 'mild', even though we know that mild can still be somewhat debilitating. I felt sick all the time, but traveled constantly for work nonetheless. Just every day felt like a PEM episode (which just felt like constant exhaustion back then, as I never gave myself enough time to truly recover).
 

Zebra

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