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News, Research, and Advocacy
Advocacy
Action Alerts and Advocacy
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Advocacy Projects
A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
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ME/CFS is a living death--why mortality isnt what matters in illness advocacy
frozenborderline
Aug 2, 2021
2
Replies
31
Views
2,980
Sep 9, 2022
lenora
Concrete demands for the Open Medicine Foundation
frozenborderline
May 28, 2021
2
3
4
Replies
75
Views
4,974
Sep 7, 2022
frozenborderline
An Open Letter to the Open Medicine Foundation, by Kaylin Jones
frozenborderline
Feb 22, 2022
Replies
8
Views
1,073
Sep 7, 2022
frozenborderline
Searching for Marketing experts for ME & LC NGO
Martin aka paused||M.E.
Jun 17, 2022
Replies
3
Views
480
Jun 18, 2022
Martin aka paused||M.E.
Maybe we should all tweet at Elon?
GlassCannonLife
Apr 21, 2022
Replies
16
Views
1,134
Apr 24, 2022
Alvin2
Podcast Special: OMF.
Martin aka paused||M.E.
Mar 11, 2022
Replies
6
Views
909
Apr 20, 2022
maple
Updates on Long covid NIH funding and concerns from advocates
frozenborderline
Apr 7, 2022
Replies
14
Views
870
Apr 7, 2022
Learner1
Millions with ME/CFS
Martin aka paused||M.E.
Feb 24, 2022
Replies
9
Views
1,257
Mar 29, 2022
Martin aka paused||M.E.
Looking for possible panel participants on a podcast
frozenborderline
Mar 19, 2022
Replies
4
Views
891
Mar 19, 2022
frozenborderline
Next Podcast: Amy Proal, Anna Brooks, Fereshteh Jahaniani
Martin aka paused||M.E.
Mar 3, 2022
2
Replies
26
Views
1,938
Mar 8, 2022
SlamDancin
Great Direct action /civil disobedience by ME/CFs patients at the NIH
frozenborderline
Mar 2, 2022
Replies
7
Views
987
Mar 2, 2022
frozenborderline
Open letter to the Open Medicine foundation
frozenborderline
May 26, 2021
Replies
9
Views
1,617
Feb 7, 2022
frozenborderline
A show that the 4radical theatre company bread and puppet did, based on my suffering with ME/CFS
frozenborderline
Aug 22, 2021
Replies
7
Views
1,182
Jan 26, 2022
frozenborderline
New Video - Severe and Very Severe ME/CFS
Spindrome
Aug 10, 2021
Replies
2
Views
1,073
Aug 11, 2021
Spindrome
Post-Pandemic Considerations for Forward-Thinking Congregations: Zooming for Jewish Disability Inclusion Sunday, June 27, 10 am ET
Sushi
Jun 23, 2021
Replies
0
Views
937
Jun 23, 2021
Sushi
Website about koroshetz, need help
frozenborderline
May 25, 2021
Replies
10
Views
1,875
May 26, 2021
Alvin2
European ME Coalition (EMEC)
Michiel Tack
Apr 19, 2020
Replies
2
Views
1,376
Dec 8, 2020
Haru
How can we help accelerate Dr Naviaux's ME/CFS Suramin trial?
Jesse2233
Aug 12, 2017
7
8
9
Replies
168
Views
39,383
Nov 16, 2020
dreamydays
ME/CFS Awareness in Romania.
bananabas
Sep 12, 2015
Replies
2
Views
2,179
Oct 25, 2020
CristianSerious
OMF- #MayMomentum campaign is here!
Ben H
May 1, 2020
Replies
19
Views
2,596
May 28, 2020
Ben H
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