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Advocacy Projects
A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
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ME/CFS is a living death--why mortality isnt what matters in illness advocacy
frozenborderline
Aug 2, 2021
2
Replies
31
Views
4K
Sep 9, 2022
lenora
L
Concrete demands for the Open Medicine Foundation
frozenborderline
May 28, 2021
2
3
4
Replies
75
Views
6K
Sep 7, 2022
frozenborderline
An Open Letter to the Open Medicine Foundation, by Kaylin Jones
frozenborderline
Feb 22, 2022
Replies
8
Views
1K
Sep 7, 2022
frozenborderline
Searching for Marketing experts for ME & LC NGO
Martin aka paused||M.E.
Jun 17, 2022
Replies
3
Views
602
Jun 18, 2022
Martin aka paused||M.E.
Maybe we should all tweet at Elon?
GlassCannonLife
Apr 21, 2022
Replies
16
Views
1K
Apr 24, 2022
Alvin2
A
Podcast Special: OMF.
Martin aka paused||M.E.
Mar 11, 2022
Replies
6
Views
1K
Apr 20, 2022
maple
M
Updates on Long covid NIH funding and concerns from advocates
frozenborderline
Apr 7, 2022
Replies
14
Views
1K
Apr 7, 2022
Learner1
Millions with ME/CFS
Martin aka paused||M.E.
Feb 24, 2022
Replies
9
Views
1K
Mar 29, 2022
Martin aka paused||M.E.
Looking for possible panel participants on a podcast
frozenborderline
Mar 19, 2022
Replies
4
Views
1K
Mar 19, 2022
frozenborderline
Next Podcast: Amy Proal, Anna Brooks, Fereshteh Jahaniani
Martin aka paused||M.E.
Mar 3, 2022
2
Replies
26
Views
2K
Mar 8, 2022
SlamDancin
Great Direct action /civil disobedience by ME/CFs patients at the NIH
frozenborderline
Mar 2, 2022
Replies
7
Views
1K
Mar 2, 2022
frozenborderline
Open letter to the Open Medicine foundation
frozenborderline
May 26, 2021
Replies
9
Views
2K
Feb 7, 2022
frozenborderline
A show that the 4radical theatre company bread and puppet did, based on my suffering with ME/CFS
frozenborderline
Aug 22, 2021
Replies
7
Views
1K
Jan 26, 2022
frozenborderline
New Video - Severe and Very Severe ME/CFS
Spindrome
Aug 10, 2021
Replies
2
Views
1K
Aug 11, 2021
Spindrome
Post-Pandemic Considerations for Forward-Thinking Congregations: Zooming for Jewish Disability Inclusion Sunday, June 27, 10 am ET
Sushi
Jun 23, 2021
Replies
0
Views
1K
Jun 23, 2021
Sushi
Website about koroshetz, need help
frozenborderline
May 25, 2021
Replies
10
Views
2K
May 26, 2021
Alvin2
A
European ME Coalition (EMEC)
Michiel Tack
Apr 19, 2020
Replies
2
Views
2K
Dec 8, 2020
Haru
H
How can we help accelerate Dr Naviaux's ME/CFS Suramin trial?
Jesse2233
Aug 12, 2017
7
8
9
Replies
168
Views
42K
Nov 16, 2020
dreamydays
ME/CFS Awareness in Romania.
bananabas
Sep 12, 2015
Replies
2
Views
2K
Oct 25, 2020
CristianSerious
OMF- #MayMomentum campaign is here!
Ben H
May 1, 2020
Replies
19
Views
3K
May 28, 2020
Ben H
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