Advocacy Projects

A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
frozenborderline
ME/CFS is a living death--why mortality isnt what matters in illness advocacy
2
Replies
31
Views
4K
lenora
L
frozenborderline
Concrete demands for the Open Medicine Foundation
2 3 4
Replies
75
Views
6K
frozenborderline
frozenborderline
frozenborderline
An Open Letter to the Open Medicine Foundation, by Kaylin Jones
Replies
8
Views
1K
frozenborderline
frozenborderline
Martin aka paused||M.E.
Searching for Marketing experts for ME & LC NGO
Replies
3
Views
602
Martin aka paused||M.E.
Martin aka paused||M.E.
GlassCannonLife
Maybe we should all tweet at Elon?
Replies
16
Views
1K
Alvin2
A
Martin aka paused||M.E.
Podcast Special: OMF.
Replies
6
Views
1K
maple
M
frozenborderline
Updates on Long covid NIH funding and concerns from advocates
Replies
14
Views
1K
Learner1
Learner1
Martin aka paused||M.E.
Millions with ME/CFS
Replies
9
Views
1K
Martin aka paused||M.E.
Martin aka paused||M.E.
frozenborderline
Looking for possible panel participants on a podcast
Replies
4
Views
1K
frozenborderline
frozenborderline
Martin aka paused||M.E.
Next Podcast: Amy Proal, Anna Brooks, Fereshteh Jahaniani
2
Replies
26
Views
2K
SlamDancin
SlamDancin
frozenborderline
Great Direct action /civil disobedience by ME/CFs patients at the NIH
Replies
7
Views
1K
frozenborderline
frozenborderline
frozenborderline
Open letter to the Open Medicine foundation
Replies
9
Views
2K
frozenborderline
frozenborderline
frozenborderline
A show that the 4radical theatre company bread and puppet did, based on my suffering with ME/CFS
Replies
7
Views
1K
frozenborderline
frozenborderline
Spindrome
New Video - Severe and Very Severe ME/CFS
Replies
2
Views
1K
Spindrome
Spindrome
Sushi
Post-Pandemic Considerations for Forward-Thinking Congregations: Zooming for Jewish Disability Inclusion Sunday, June 27, 10 am ET
Replies
0
Views
1K
Sushi
Sushi
frozenborderline
Website about koroshetz, need help
Replies
10
Views
2K
Alvin2
A
Michiel Tack
European ME Coalition (EMEC)
Replies
2
Views
2K
Haru
H
Jesse2233
How can we help accelerate Dr Naviaux's ME/CFS Suramin trial?
7 8 9
Replies
168
Views
42K
dreamydays
dreamydays
bananabas
ME/CFS Awareness in Romania.
Replies
2
Views
2K
CristianSerious
CristianSerious
Ben H
OMF- #MayMomentum campaign is here!
Replies
19
Views
3K
Ben H
Ben H
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