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How can we help accelerate Dr Naviaux's ME/CFS Suramin trial?

ScottTriGuy

Stop the harm. Start the research and treatment.
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Drugs don't cure AIDS, they can keep you chronicany ill, very ill actually with a life expentancy 30 years younger than people who are cured (aka healthy).
Wrong.

Any one diagnosed with HIV in the last few years that has access to HIV medications has virtually the same life expectancy as a non-HIV individual.

HIV meds do not keep people chronically ill. They keep people from dying and allowing them to live normal productive lives.

As someone living with HIV since 1998, I can attest that it does not impact my life even 1% of how ME does. And 99% of people with HIV (and meds) are healthier than 99% of people with ME.
 

Diwi9

Administrator
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Wrong.

Any one diagnosed with HIV in the last few years that has access to HIV medications has virtually the same life expectancy as a non-HIV individual.

HIV meds do not keep people chronically ill. They keep people from dying and allowing them to live normal productive lives.

As someone living with HIV since 1998, I can attest that it does not impact my life even 1% of how ME does. And 99% of people with HIV (and meds) are healthier than 99% of people with ME.
A testament to what funding biomedical research can accomplish. I'm just sorry that while you are able to manage HIV, you still have the ME to contend with.
 

suevu

Senior Member
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Wrong.

Any one diagnosed with HIV in the last few years that has access to HIV medications has virtually the same life expectancy as a non-HIV individual.

HIV meds do not keep people chronically ill. They keep people from dying and allowing them to live normal productive lives.

As someone living with HIV since 1998, I can attest that it does not impact my life even 1% of how ME does. And 99% of people with HIV (and meds) are healthier than 99% of people with ME.
Well in my country the most known icone of HIV patient has died recently from another inmunological disease related to it:

https://es.wikipedia.org/wiki/David_Delfín

If any patient with any disease call it ME or HIV needs to live on a medication, can't be considered cured.

Do you think HIV has nothing to do with you getting into ME?
 

ScottTriGuy

Stop the harm. Start the research and treatment.
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Do you think HIV has nothing to do with you getting into ME?
I have yet to meet another person living with HIV (and I've worked in the HIV industry since the early 2000s) that has ME.

I wonder if the HIV meds are keeping me less sick with ME, especially due to the anecdotal reports of improved quality of life of some ME folks who take Tenofovir.
 

suevu

Senior Member
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I have yet to meet another person living with HIV (and I've worked in the HIV industry since the early 2000s) that has ME.

I wonder if the HIV meds are keeping me less sick with ME, especially due to the anecdotal reports of improved quality of life of some ME folks who take Tenofovir.
Id rather have HIV than ME if I had to chose, there are drugs that keep it at bay nowadays but no means they cure it like someone said in a previous post.

I have little trust in drugs as the take very long to be on the market, many cause more harm than good, and here we are, in 2019 and nothing to turn to in the whole science scene. All medicine has done to us is harm.