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News, Research, and Advocacy
Advocacy
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Action Alerts and Advocacy
THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.
Advocacy Projects
A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
Threads
213
Messages
3,658
Threads
213
Messages
3,658
ME/CFS is a living death--why mortality isnt what matters in illness advocacy
Sep 9, 2022
lenora
Millions Missing Campaign
A place to post any information related to the #MillionsMissing Campaign.
Threads
68
Messages
1,038
Threads
68
Messages
1,038
MEAction protest at whitehouse
Sep 25, 2022
frozenborderline
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Cochrane's Review of Exercise Therapy for ME/CFS
Pyrrhus
Sep 1, 2021
Replies
11
Views
1,904
Aug 20, 2022
Pyrrhus
Sticky
ME Graphics and Advocacy Resources
Kati
Jun 14, 2017
2
Replies
30
Views
12,862
Jun 11, 2022
Pyrrhus
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Sticky
New AMMES.org website - Erica Verillo
medfeb
Sep 22, 2017
Replies
4
Views
1,218
Jan 16, 2022
Violeta
Sticky
Long Covid Alliance: Long Covid and ME Advocacy Groups Join Forces!
Pyrrhus
Dec 11, 2020
Replies
8
Views
2,158
Jan 3, 2022
Pyrrhus
Sticky
You + M.E. (International ME/CFS Registry) Website Live!
Emily Taylor
Dec 24, 2019
Replies
10
Views
5,973
Dec 8, 2021
Pyrrhus
Sticky
#MEAwarenessHour on twitter
ahimsa
Jun 11, 2015
Replies
7
Views
1,929
Jan 6, 2020
Jani
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Sticky
Contact List (elected officials, and the media)
Undisclosed
Jan 26, 2014
Replies
15
Views
12,784
Jan 30, 2019
frozenborderline
S
Sticky
Advocacy and campaigning: our "how-to" guides
Sasha
Feb 22, 2016
Replies
6
Views
9,235
Jun 6, 2017
Emily Taylor
Meet Grace the ME advocacy chatbot
Jenny TipsforME
Mar 20, 2023
Replies
3
Views
216
Mar 21, 2023
Jenny TipsforME
Please sign this Petition: Save Alice Barrett's Life
Countrygirl
Feb 23, 2023
Replies
4
Views
462
Mar 4, 2023
Countrygirl
Please donate to Dr David Tuller's October Fundraising Campaign for reporting on ME/CFS
Countrygirl
Oct 10, 2022
Replies
19
Views
694
Oct 31, 2022
Alvin2
Calling all Tweeters: Please circulate this message from DwME to enable the success of the Health Minister's ME Initiative
Countrygirl
Jun 23, 2022
Replies
5
Views
653
Jun 23, 2022
Countrygirl
#MEAction & 6 ME Orgs Call For CDC To Change How It Tracks ME/CFS
Pyrrhus
Aug 24, 2021
Replies
3
Views
1,093
Jun 14, 2022
wabi-sabi
Dr David Tuller has reached only 60% of his crowd fundraising goal with just a few days to go. Please give if you can.
Countrygirl
Apr 22, 2022
Replies
1
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570
Apr 29, 2022
Tom Kindlon
Please donate to Dr David Tuller's Fundraiser so he can continue his advocacy work for us
Countrygirl
Apr 4, 2022
Replies
8
Views
871
Apr 15, 2022
Countrygirl
"By J. Burmeister: Keep an Eye on Your Walitt: NIH Study Poses Dramatic Risk to Long-Term Disability
annunziata
Mar 21, 2016
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70
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8,269
Apr 14, 2022
Pyrrhus
Brian Walitt’s Radical Bias: Disorders of Subjective Perception, ME/CFS as Normal Life Experience?
Nielk
Feb 22, 2016
2
Replies
27
Views
5,058
Apr 14, 2022
Pyrrhus
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World ME Day - a World ME Alliance Initiative
Gecko36
Feb 28, 2022
Replies
0
Views
508
Feb 28, 2022
Gecko36
Open letter to the OMF--help save us canaries
frozenborderline
Oct 30, 2019
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64
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6,905
Feb 10, 2022
frozenborderline
The new NICE Proposals for the Guidelines are up and SMC gives voice to the Deluded
Countrygirl
Nov 9, 2020
2
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29
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2,920
Feb 10, 2022
Pyrrhus
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He Was Given 6 Months to Live. Then He Changed D.C. (Getting ALS research money)
Alvin2
Jan 18, 2022
Replies
0
Views
563
Jan 18, 2022
Alvin2
CDC's Evidence Review of ME/CFS Treatments
Pyrrhus
Aug 4, 2021
2
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25
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2,545
Dec 18, 2021
Pyrrhus
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Brazilian artistic performance about ME/CFS
BLZIN
Aug 9, 2021
Replies
3
Views
1,027
Dec 12, 2021
Avenger
Invisible Illness
Judee
Nov 7, 2021
Replies
1
Views
763
Nov 11, 2021
lenora
Dr David Tuller: Only nine days left to raise 40% of his goal for funding - UPDATE 10/26 - 5 days left to raise 10%
Countrygirl
Oct 22, 2021
Replies
13
Views
1,549
Nov 1, 2021
Alvin2
R
COVID-19 Long Haulers Act (& ME/CFS research $?) introduced
Roy S
May 29, 2021
2
Replies
20
Views
2,317
Oct 31, 2021
Pyrrhus
Time to act: CONTACT SENATOR MARKEY
SWAlexander
Oct 28, 2021
Replies
3
Views
785
Oct 28, 2021
Rufous McKinney
CALL TO ARMS, FOLKS!.....well, cards, actually. One of our community is hospitalised and about to be subjected to harmful treatment against her will
Countrygirl
Jun 14, 2021
2
Replies
20
Views
2,579
Sep 28, 2021
Imse
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