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News, Research, and Advocacy
Advocacy and Fundraising
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Action Alerts and Advocacy
THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.
Advocacy Projects
A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
Threads
213
Messages
3,649
Threads
213
Messages
3,649
Searching for Marketing experts for ME & LC NGO
Jun 18, 2022
Martin aka paused||M.E.
Millions Missing Campaign
A place to post any information related to the #MillionsMissing Campaign.
Threads
67
Messages
1,029
Threads
67
Messages
1,029
Millions Missing 2022
May 19, 2022
Pyrrhus
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ME Graphics and Advocacy Resources
Kati
Jun 14, 2017
2
Replies
30
Views
11,847
Jun 11, 2022
Pyrrhus
M
Sticky
New AMMES.org website - Erica Verillo
medfeb
Sep 22, 2017
Replies
4
Views
941
Jan 16, 2022
Violeta
Sticky
Cochrane's Review of Exercise Therapy for ME/CFS
Pyrrhus
Sep 1, 2021
Replies
10
Views
1,424
Jan 6, 2022
Shanti1
Sticky
Long Covid Alliance: Long Covid and ME Advocacy Groups Join Forces!
Pyrrhus
Dec 11, 2020
Replies
8
Views
1,804
Jan 3, 2022
Pyrrhus
Sticky
You + M.E. (International ME/CFS Registry) Website Live!
Emily Taylor
Dec 24, 2019
Replies
10
Views
5,664
Dec 8, 2021
Pyrrhus
Sticky
#MEAwarenessHour on twitter
ahimsa
Jun 11, 2015
Replies
7
Views
1,660
Jan 6, 2020
Jani
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Sticky
Contact List (elected officials, and the media)
Undisclosed
Jan 26, 2014
Replies
15
Views
12,221
Jan 30, 2019
frozenborderline
S
Sticky
Advocacy and campaigning: our "how-to" guides
Sasha
Feb 22, 2016
Replies
6
Views
8,897
Jun 6, 2017
Emily Taylor
Calling all Tweeters: Please circulate this message from DwME to enable the success of the Health Minister's ME Initiative
Countrygirl
Jun 23, 2022
Replies
5
Views
363
Jun 23, 2022
Countrygirl
#MEAction & 6 ME Orgs Call For CDC To Change How It Tracks ME/CFS
Pyrrhus
Aug 24, 2021
Replies
3
Views
805
Jun 14, 2022
wabi-sabi
Dr David Tuller has reached only 60% of his crowd fundraising goal with just a few days to go. Please give if you can.
Countrygirl
Apr 22, 2022
Replies
1
Views
344
Apr 29, 2022
Tom Kindlon
Please donate to Dr David Tuller's Fundraiser so he can continue his advocacy work for us
Countrygirl
Apr 4, 2022
Replies
8
Views
611
Apr 15, 2022
Countrygirl
"By J. Burmeister: Keep an Eye on Your Walitt: NIH Study Poses Dramatic Risk to Long-Term Disability
annunziata
Mar 21, 2016
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70
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7,168
Apr 14, 2022
Pyrrhus
Brian Walitt’s Radical Bias: Disorders of Subjective Perception, ME/CFS as Normal Life Experience?
Nielk
Feb 22, 2016
2
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27
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4,632
Apr 14, 2022
Pyrrhus
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World ME Day - a World ME Alliance Initiative
Gecko36
Feb 28, 2022
Replies
0
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300
Feb 28, 2022
Gecko36
Open letter to the OMF--help save us canaries
frozenborderline
Oct 30, 2019
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4
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64
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5,461
Feb 10, 2022
frozenborderline
The new NICE Proposals for the Guidelines are up and SMC gives voice to the Deluded
Countrygirl
Nov 9, 2020
2
Replies
29
Views
2,367
Feb 10, 2022
Pyrrhus
A
He Was Given 6 Months to Live. Then He Changed D.C. (Getting ALS research money)
Alvin2
Jan 18, 2022
Replies
0
Views
356
Jan 18, 2022
Alvin2
CDC's Evidence Review of ME/CFS Treatments
Pyrrhus
Aug 4, 2021
2
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25
Views
1,972
Dec 18, 2021
Pyrrhus
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Brazilian artistic performance about ME/CFS
BLZIN
Aug 9, 2021
Replies
3
Views
801
Dec 12, 2021
Avenger
Invisible Illness
Judee
Nov 7, 2021
Replies
1
Views
561
Nov 11, 2021
lenora
Dr David Tuller: Only nine days left to raise 40% of his goal for funding - UPDATE 10/26 - 5 days left to raise 10%
Countrygirl
Oct 22, 2021
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13
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1,145
Nov 1, 2021
Alvin2
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COVID-19 Long Haulers Act (& ME/CFS research $?) introduced
Roy S
May 29, 2021
2
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20
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1,679
Oct 31, 2021
Pyrrhus
Time to act: CONTACT SENATOR MARKEY
SWAlexander
Oct 28, 2021
Replies
3
Views
560
Oct 28, 2021
Rufous McKinney
CALL TO ARMS, FOLKS!.....well, cards, actually. One of our community is hospitalised and about to be subjected to harmful treatment against her will
Countrygirl
Jun 14, 2021
2
Replies
20
Views
1,982
Sep 28, 2021
Imse
Ron Davis statement about NICE’s pausing publication of new guidelines
Janet Dafoe
Sep 6, 2021
Replies
11
Views
1,290
Sep 9, 2021
andyguitar
A Fighting-Fund for Legal Action for ME Patients Harmed by the BPS Proponents and/or National Medical Organisations
Countrygirl
Sep 6, 2021
Replies
12
Views
1,103
Sep 7, 2021
Mary
Federal Election in Canada 2021
shannah
Aug 20, 2021
Replies
3
Views
762
Aug 26, 2021
shannah
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