Action Alerts and Advocacy

THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.

Advocacy Projects

A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
Threads
213
Messages
3,658
Threads
213
Messages
3,658
ME/CFS is a living death--why mortality isnt what matters in illness advocacy

Millions Missing Campaign

A place to post any information related to the #MillionsMissing Campaign.
Threads
68
Messages
1,038
Threads
68
Messages
1,038
MEAction protest at whitehouse
Pyrrhus
  • Sticky
Cochrane's Review of Exercise Therapy for ME/CFS
Replies
11
Views
1,904
Pyrrhus
Kati
  • Sticky
ME Graphics and Advocacy Resources
2
Replies
30
Views
12,862
Pyrrhus
M
  • Sticky
New AMMES.org website - Erica Verillo
Replies
4
Views
1,218
Violeta
Pyrrhus
  • Sticky
Long Covid Alliance: Long Covid and ME Advocacy Groups Join Forces!
Replies
8
Views
2,158
Pyrrhus
Emily Taylor
  • Sticky
You + M.E. (International ME/CFS Registry) Website Live!
Replies
10
Views
5,973
Pyrrhus
ahimsa
  • Sticky
#MEAwarenessHour on twitter
Replies
7
Views
1,929
Jani
U
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Contact List (elected officials, and the media)
Replies
15
Views
12,784
frozenborderline
S
  • Sticky
Advocacy and campaigning: our "how-to" guides
Replies
6
Views
9,235
Emily Taylor
Jenny TipsforME
Meet Grace the ME advocacy chatbot
Replies
3
Views
216
Jenny TipsforME
Countrygirl
Please sign this Petition: Save Alice Barrett's Life
Replies
4
Views
462
Countrygirl
Countrygirl
Please donate to Dr David Tuller's October Fundraising Campaign for reporting on ME/CFS
Replies
19
Views
694
Alvin2
Countrygirl
Calling all Tweeters: Please circulate this message from DwME to enable the success of the Health Minister's ME Initiative
Replies
5
Views
653
Countrygirl
Pyrrhus
#MEAction & 6 ME Orgs Call For CDC To Change How It Tracks ME/CFS
Replies
3
Views
1,093
wabi-sabi
Countrygirl
Dr David Tuller has reached only 60% of his crowd fundraising goal with just a few days to go. Please give if you can.
Replies
1
Views
570
Tom Kindlon
Countrygirl
Please donate to Dr David Tuller's Fundraiser so he can continue his advocacy work for us
Replies
8
Views
871
Countrygirl
annunziata
"By J. Burmeister: Keep an Eye on Your Walitt: NIH Study Poses Dramatic Risk to Long-Term Disability
2 3 4
Replies
70
Views
8,269
Pyrrhus
Nielk
Brian Walitt’s Radical Bias: Disorders of Subjective Perception, ME/CFS as Normal Life Experience?
2
Replies
27
Views
5,058
Pyrrhus
G
World ME Day - a World ME Alliance Initiative
Replies
0
Views
508
Gecko36
frozenborderline
Open letter to the OMF--help save us canaries
2 3 4
Replies
64
Views
6,905
frozenborderline
Countrygirl
The new NICE Proposals for the Guidelines are up and SMC gives voice to the Deluded
2
Replies
29
Views
2,920
Pyrrhus
A
He Was Given 6 Months to Live. Then He Changed D.C. (Getting ALS research money)
Replies
0
Views
563
Alvin2
Pyrrhus
CDC's Evidence Review of ME/CFS Treatments
2
Replies
25
Views
2,545
Pyrrhus
B
Brazilian artistic performance about ME/CFS
Replies
3
Views
1,027
Avenger
Judee
Invisible Illness
Replies
1
Views
763
lenora
Countrygirl
Dr David Tuller: Only nine days left to raise 40% of his goal for funding - UPDATE 10/26 - 5 days left to raise 10%
Replies
13
Views
1,549
Alvin2
R
COVID-19 Long Haulers Act (& ME/CFS research $?) introduced
2
Replies
20
Views
2,317
Pyrrhus
SWAlexander
Time to act: CONTACT SENATOR MARKEY
Replies
3
Views
785
Rufous McKinney
Countrygirl
CALL TO ARMS, FOLKS!.....well, cards, actually. One of our community is hospitalised and about to be subjected to harmful treatment against her will
2
Replies
20
Views
2,579
Imse
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