Action Alerts and Advocacy

THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.

Advocacy Projects

A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
Threads
213
Messages
3.7K
Threads
213
Messages
3.7K
L
ME/CFS is a living death--why mortality isnt what matters in illness advocacy

Millions Missing Campaign

A place to post any information related to the #MillionsMissing Campaign.
Threads
68
Messages
1K
Threads
68
Messages
1K
frozenborderline
MEAction protest at whitehouse
Pyrrhus
  • Sticky
Cochrane's Review of Exercise Therapy for ME/CFS
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11
Views
2K
Pyrrhus
Pyrrhus
Kati
  • Sticky
ME Graphics and Advocacy Resources
2
Replies
30
Views
13K
Pyrrhus
Pyrrhus
M
  • Sticky
New AMMES.org website - Erica Verillo
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4
Views
1K
Violeta
V
Pyrrhus
  • Sticky
Long Covid Alliance: Long Covid and ME Advocacy Groups Join Forces!
Replies
8
Views
2K
Pyrrhus
Pyrrhus
Emily Taylor
  • Sticky
You + M.E. (International ME/CFS Registry) Website Live!
Replies
10
Views
6K
Pyrrhus
Pyrrhus
ahimsa
  • Sticky
#MEAwarenessHour on twitter
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7
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2K
Jani
J
U
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Contact List (elected officials, and the media)
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15
Views
13K
frozenborderline
frozenborderline
S
  • Sticky
Advocacy and campaigning: our "how-to" guides
Replies
6
Views
9K
Emily Taylor
Emily Taylor
Countrygirl
An Open Response to the British Psychological Society Regarding the DHSC's Plan for ME by Dr Jo Greer and Jennifer Wilson
Replies
7
Views
236
Avenger
A
Countrygirl
The new NICE Proposals for the Guidelines are up and SMC gives voice to the Deluded
2
Replies
30
Views
3K
Rufous McKinney
Rufous McKinney
Jenny TipsforME
Meet Grace the ME advocacy chatbot
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3
Views
479
Jenny TipsforME
Jenny TipsforME
Countrygirl
Please sign this Petition: Save Alice Barrett's Life
Replies
4
Views
709
Countrygirl
Countrygirl
Countrygirl
Please donate to Dr David Tuller's October Fundraising Campaign for reporting on ME/CFS
Replies
19
Views
885
Alvin2
A
Countrygirl
Calling all Tweeters: Please circulate this message from DwME to enable the success of the Health Minister's ME Initiative
Replies
5
Views
797
Countrygirl
Countrygirl
Pyrrhus
#MEAction & 6 ME Orgs Call For CDC To Change How It Tracks ME/CFS
Replies
3
Views
1K
wabi-sabi
wabi-sabi
Countrygirl
Dr David Tuller has reached only 60% of his crowd fundraising goal with just a few days to go. Please give if you can.
Replies
1
Views
690
Tom Kindlon
T
Countrygirl
Please donate to Dr David Tuller's Fundraiser so he can continue his advocacy work for us
Replies
8
Views
1K
Countrygirl
Countrygirl
annunziata
"By J. Burmeister: Keep an Eye on Your Walitt: NIH Study Poses Dramatic Risk to Long-Term Disability
2 3 4
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70
Views
9K
Pyrrhus
Pyrrhus
Nielk
Brian Walitt’s Radical Bias: Disorders of Subjective Perception, ME/CFS as Normal Life Experience?
2
Replies
27
Views
5K
Pyrrhus
Pyrrhus
G
World ME Day - a World ME Alliance Initiative
Replies
0
Views
628
Gecko36
G
frozenborderline
Open letter to the OMF--help save us canaries
2 3 4
Replies
64
Views
8K
frozenborderline
frozenborderline
A
He Was Given 6 Months to Live. Then He Changed D.C. (Getting ALS research money)
Replies
0
Views
665
Alvin2
A
Pyrrhus
CDC's Evidence Review of ME/CFS Treatments
2
Replies
25
Views
3K
Pyrrhus
Pyrrhus
B
Brazilian artistic performance about ME/CFS
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3
Views
1K
Avenger
A
Judee
Invisible Illness
Replies
1
Views
876
lenora
L
Countrygirl
Dr David Tuller: Only nine days left to raise 40% of his goal for funding - UPDATE 10/26 - 5 days left to raise 10%
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13
Views
2K
Alvin2
A
R
COVID-19 Long Haulers Act (& ME/CFS research $?) introduced
2
Replies
20
Views
3K
Pyrrhus
Pyrrhus
SWAlexander
Time to act: CONTACT SENATOR MARKEY
Replies
3
Views
907
Rufous McKinney
Rufous McKinney
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