Action Alerts and Advocacy

THE MOST IMPORTANT THING WE CAN DO IS SPEAK WITH ONE VOICE as we fight for real research. We will never see an end to this unless everyone helps.

Advocacy Projects

A place to post ideas for ME/CFS projects, dig into them, figure out how to accomplish them, gather support for them and get them going.
Threads
213
Messages
3,649
Threads
213
Messages
3,649
Searching for Marketing experts for ME & LC NGO

Millions Missing Campaign

A place to post any information related to the #MillionsMissing Campaign.
Threads
67
Messages
1,029
Threads
67
Messages
1,029
Millions Missing 2022
Kati
  • Sticky
ME Graphics and Advocacy Resources
2
Replies
30
Views
11,847
Pyrrhus
M
  • Sticky
New AMMES.org website - Erica Verillo
Replies
4
Views
941
Violeta
Pyrrhus
  • Sticky
Cochrane's Review of Exercise Therapy for ME/CFS
Replies
10
Views
1,424
Shanti1
Pyrrhus
  • Sticky
Long Covid Alliance: Long Covid and ME Advocacy Groups Join Forces!
Replies
8
Views
1,804
Pyrrhus
Emily Taylor
  • Sticky
You + M.E. (International ME/CFS Registry) Website Live!
Replies
10
Views
5,664
Pyrrhus
ahimsa
  • Sticky
#MEAwarenessHour on twitter
Replies
7
Views
1,660
Jani
U
  • Sticky
Contact List (elected officials, and the media)
Replies
15
Views
12,221
frozenborderline
S
  • Sticky
Advocacy and campaigning: our "how-to" guides
Replies
6
Views
8,897
Emily Taylor
Countrygirl
Calling all Tweeters: Please circulate this message from DwME to enable the success of the Health Minister's ME Initiative
Replies
5
Views
363
Countrygirl
Pyrrhus
#MEAction & 6 ME Orgs Call For CDC To Change How It Tracks ME/CFS
Replies
3
Views
805
wabi-sabi
Countrygirl
Dr David Tuller has reached only 60% of his crowd fundraising goal with just a few days to go. Please give if you can.
Replies
1
Views
344
Tom Kindlon
Countrygirl
Please donate to Dr David Tuller's Fundraiser so he can continue his advocacy work for us
Replies
8
Views
611
Countrygirl
annunziata
"By J. Burmeister: Keep an Eye on Your Walitt: NIH Study Poses Dramatic Risk to Long-Term Disability
2 3 4
Replies
70
Views
7,168
Pyrrhus
Nielk
Brian Walitt’s Radical Bias: Disorders of Subjective Perception, ME/CFS as Normal Life Experience?
2
Replies
27
Views
4,632
Pyrrhus
G
World ME Day - a World ME Alliance Initiative
Replies
0
Views
300
Gecko36
frozenborderline
Open letter to the OMF--help save us canaries
2 3 4
Replies
64
Views
5,461
frozenborderline
Countrygirl
The new NICE Proposals for the Guidelines are up and SMC gives voice to the Deluded
2
Replies
29
Views
2,367
Pyrrhus
A
He Was Given 6 Months to Live. Then He Changed D.C. (Getting ALS research money)
Replies
0
Views
356
Alvin2
Pyrrhus
CDC's Evidence Review of ME/CFS Treatments
2
Replies
25
Views
1,972
Pyrrhus
B
Brazilian artistic performance about ME/CFS
Replies
3
Views
801
Avenger
Judee
Invisible Illness
Replies
1
Views
561
lenora
Countrygirl
Dr David Tuller: Only nine days left to raise 40% of his goal for funding - UPDATE 10/26 - 5 days left to raise 10%
Replies
13
Views
1,145
Alvin2
R
COVID-19 Long Haulers Act (& ME/CFS research $?) introduced
2
Replies
20
Views
1,679
Pyrrhus
SWAlexander
Time to act: CONTACT SENATOR MARKEY
Replies
3
Views
560
Rufous McKinney
Countrygirl
CALL TO ARMS, FOLKS!.....well, cards, actually. One of our community is hospitalised and about to be subjected to harmful treatment against her will
2
Replies
20
Views
1,982
Imse
Janet Dafoe
Ron Davis statement about NICE’s pausing publication of new guidelines
Replies
11
Views
1,290
andyguitar
Countrygirl
A Fighting-Fund for Legal Action for ME Patients Harmed by the BPS Proponents and/or National Medical Organisations
Replies
12
Views
1,103
Mary
shannah
Federal Election in Canada 2021
Replies
3
Views
762
shannah
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