Prof Simon Carding, Group Leader in gut microbes in health and disease, Quadram Institute Bioscience, said:
“Patients will welcome the acknowledgement from NICE that deleterious therapies that may harm patients, such as GET, are the wrong path to take and that high quality biomedical research is required to overcome the lack of treatments for this devastating disease. At Quadram Institute we are pursuing a strategy of gaining scientific evidence/data and trialling possible treatment for a subgroup of ME patients. Working with European UK and collaborators and patients we hope we can provide more evidence for the next NICE review.”
Here Prof Edwards and Dr Muirhead give expert testimony.
Did you have CBT and GET at the Leeds clinic? If you did then at least the new guidelines will put an end to that sort of nonsense.I live in West Yorkshire (pop approx 1.9 million) there is one NHS specialist centre to my knowledge based in Leeds. I've been to it twice and I got alot worse under its tender mercies.