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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Thank you for sharing. I’ve been so sad and upset about this situation, I can only imagine what all the stress from being at the hospital is doing to her. I pray they continue to see reason and treat her with the utmost care and caution,
Please, everyone who is able, send Millie a card. It will help her know that she is being supported.·
ME Action in the UK have asked for support for Millie:
First call to action of today please, to help Millie (who is in hospital in Lancaster with severe ME and suffering awful treatment from most of the medical professionals)
Please can those of you who feel able, send Millie a card, to say that you are thinking about her?
Details are:
Millie McAinsh
Lancaster Suite
Acute Ward
Royal Lancaster Infirmary
Ashton Road
Lancaster
LA1 4RP
We are waiting for her mum to say when it will go live. A lot is happening next Monday and Tuesday and it is possible the petition may wait until then in case there is a major change in the situation.@Countrygirl when will the petition go live?people i shared this with are confused.
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Why this petition matters
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Started by Abi Mills
I have set up this petition on behalf of Millie, who is 18 years old and has very Severe Myalgic Encephalomyelitis (ME/CFS). She is currently in The Royal Lancaster Infirmary part of the University Hospitals of Morecambe Bay NHS Foundation Trust. Some staff at the hospital have stated that they don’t believe or take seriously ME symptoms and are speculating that it is a mental illness/eating disorder, even though it is stated by WHO and NICE that ME is a physical and complex neurological illness.
Millie agreed to come into the Royal Lancaster Infirmary on 30th January 2023 after 4 paramedics carefully helped her down from her bedroom in a scoop to the ambulance. She and her family were hoping that the stay would be short and a feeding tube given as soon as possible and to get Millie back home where she is able to manage her sensory hypersensitivity well.
Since Mille has been in hospital, it has become very clear that that hospital environment is making Millie’s severe ME so much worse, due to the stimulating environment, all the tests and the complete lack of understanding of severe ME, and horrifically the hospital has made the unacceptable decision of sectioning Millie...........
Thank you for letting us know about this and providing the link. I hope this helps her. My prayers continue2,661 signatures so far.
We need as many as possible plus comments for Millie's tribunal on Tuesday. please keep sharing.
No, @Mary . You can sign from anywhere.@Countrygirl - do you need to be in the UK to sign the petition?
Could OMF put out a press release publicly decrying this injustice (and perhaps copy some UK officials)?
Good idea!Could OMF put out a press release publicly decrying this injustice (and perhaps copy some UK officials)?
It would be good but people are too ill to be able to do that.Maybe a protest can be held outside the hospital? Is that allowed? Maybe it will draw media attention?
Oh yes, sorry I meant for people who are able. Maybe a note can be added to the petition for others who may not be ill. Just a thought. This has been on my mind so much. I wanted to help in some small way from the US.It would be good but people are too ill to be able to do that.
Could OMF put out a press release publicly decrying this injustice (and perhaps copy some UK officials)?
Calling @Whit @Janet DafoeGood idea!
Can anyone organise that, please?