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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
If you compare funding and disease burden data across all diseases at the NIH for which this data is available, one disease stands out. It's ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), a condition that afflicts 1–2.5 million Americans. Those numbers may rise drastically as a result of long COVID, which in many cases closely resembles ME/CFS.
For more resources, doctors and patients can refer to the U.S. ME/CFS Clinician Coalition: https://mecfscliniciancoalition.org
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Special thanks to Andrew Vickers, who composed the soundtrack for this video. Arthur Mirin, Mary Dimmock, and Leonard Jason conducted the research into ME/CFS funding vs. disease burden that is referred to throughout this video. Read their latest research update: https://pubmed.ncbi.nlm.nih.gov/32568148
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For more informative content, follow ME/CFS Quotes (@mecfsquotes) on Twitter, Instagram, and Facebook.