#MEAction & 6 ME Orgs Call For CDC To Change How It Tracks ME/CFS

Pyrrhus

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#MEAction & 6 ME Orgs Call For CDC To Change How It Tracks ME/CFS
https://www.meaction.net/2021/08/23/meaction-6-me-orgs-call-for-cdc-to-change-how-it-tracks-me-cfs/

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).

Today, ME/CFS does not exist in the US ICD-10-CM. Instead, most US doctors assign the code for chronic fatigue syndrome which has the same code as the symptom of chronic fatigue. As a result, it is impossible to accurately track the mortality and morbidity of ME/CFS or its relationship to Long COVID. This affects not only the more than 1.5 million Americans with ME/CFS, but also the tsunami of Long COVID patients who could develop ME/CFS.

This proposal will be discussed at the upcoming meeting of the NCHS ICD-10-CM Maintenance Committee on September 14-15, 2021. Details on registration for this proposal will be shared when NCHS announces it. After the meeting, there will be an opportunity for public comment prior to a final decision by NCHS. If the proposal is accepted, the change would be implemented in October 2022.

Our partners in this proposal include the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, Open Medicine Foundation, Solve M.E., Massachusetts ME/CFS & FM Association, the Minnesota ME/CFS Alliance, and Pandora Org.

Solve ME will be holding a webinar and listening session on September 2 at 1 PM EST to discuss the proposal and hear any concerns and answer questions.
 

Pyrrhus

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https://us02web.zoom.us/meeting/reg...Fl2mCNvvcUbLW?mc_cid=eb09a38ae2&mc_eid=UNIQID
Listening Session on Proposal for ME/CFS in the ICD-10-CM

Description
Seven organizations have submitted a proposal to the National Center for Health Statistics (NCHS) to add ME/CFS to the neurological chapter of the ICD-10-CM where myalgic encephalomyelitis and postviral fatigue syndrome are located.

The organizations submitting this proposal include: #MEAction, Open Medicine Foundation, Solve M.E., International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, Massachusetts ME/CFS & FM Association, PandoraOrg, and the Minnesota ME/CFS Alliance.

This listening session is open to all and will be attended by organization representatives to facilitate open dialogue and build consensus for this new proposal.

Note: This session will focus only on the proposal submitted to the National Center for Health Statistics to revise the coding of ME/CFS in the ICD-10-CM. The ICD-10-CM is the system used to code diseases in medical records and is used to track mortality and morbidity. The session will describe how ME/CFS is currently coded, the impact of that situation, and the change requested by the seven organizations in their proposal. It will not discuss medical education, strategies to address the stigma, treatment options, research priorities, or what the research tells us about the pathology of the disease.

For more information about the proposal, visit our FAQ page: https://rb.gy/jm1n1k
Time
Sep 2, 2021 10:00 AM in Pacific Time (US and Canada)