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Great Direct action /civil disobedience by ME/CFs patients at the NIH

BrightCandle

Senior Member
Messages
1,173
ME/CFS is of such concern to the NIH that having been shamed into a riduclously small budget for it in 2016 it hasn't increased it at all, making it the most underfunded disease based on the severity and number of sufferers by a huge margin while year on year having its budget inflated away, in real terms funding is going down. The NIH is not helping sufferers and their actions speak volumes.
 

Rufous McKinney

Senior Member
Messages
13,467
I suspect the road block is not Francis Collins.....and finding who is behind that road block is worth pursuing.
 

Rufous McKinney

Senior Member
Messages
13,467
I sent that link out again to social media so maybe it can get some more views.....

edit- Collins stepped down...so NEW ACTION is required to awaken whomever is doing the job now.
 
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frozenborderline

Senior Member
Messages
4,405
ME/CFS is of such concern to the NIH that having been shamed into a riduclously small budget for it in 2016 it hasn't increased it at all, making it the most underfunded disease based on the severity and number of sufferers by a huge margin while year on year having its budget inflated away, in real terms funding is going down. The NIH is not helping sufferers and their actions speak volumes.
I know
 

frozenborderline

Senior Member
Messages
4,405
I suspect the road block is not Francis Collins.....and finding who is behind that road block is worth pursuing.
The buck has to stop somewhere. Collins and koroshetz were the main people in charge. I have an idea for a website and protest aimed at koroshetz who is still in charge but I need help with it
 

Rufous McKinney

Senior Member
Messages
13,467
Collins WAS the NIH director at the time this protest transpired.

Now he isn't.

Somebody else is now acting. Then somebody else replaces that one later on.
 

frozenborderline

Senior Member
Messages
4,405
Collins WAS the NIH director at the time this protest transpired.

Now he isn't.

Somebody else is now acting. Then somebody else replaces that one later on.
There are also directors of specific areas , koroshetz still has same job at the NINDS . Regardless I think they should spread this protest video a lot further to show how our community can occasionally be strong and disrupt the proceedings of a bureaucracy that is totally ignoring us . the media strategy need to be better. This protest could be a big deal but it didnt make it into any newspapers or news on tv and barely got any views on YouTube. We should be urging healthy allies to do protests like this and widely publicizing it and raising money to pay their bail
 
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