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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Blog entries by taniaaust1

I cant wait till this week is over as Ive been busy with appointments and Im needing a good rest due to it (feeling wore out and headachey right now). Here's an update on what is going on for me. 1/ I went to the Orthopedic specialist and got told by him that the loss of full arm movement...
The ME/CFS got me into trouble again. I think my boyfriend has just had enough and of late has lost a lot of his patience with me and is being less and less understanding. The ME/CFS is destroying our relationship as I need a supportive lover.. not someone who is going to make me feel bad due...
My boyfriend has upset me a couple of times in the past week due to his lack of being able to understand. I wonder how anyone can have a good relationship with this illness. He's been giving me advice on my sleeping issues and when I told him I'd already tried what he suggested he said "no...
Im really struggling right now to get all my house stuff done as Ive had to cut my active activity level down for housework to only an hr per day (the hr is broken up into 20 mins sessions). My mother rang yesterday and said she wanted to come and visit and stay the night (along with her...
Sucks but I could of got CFS mentioned in the interview if the name was shorter and more decent. I tried to say my health issues to the reporter and called it "chronic fatigue immunity dysfunction syndrome" as I hate saying chronic fatigue syndrome... only to have the reporter say the name was...
taniaaust1
2 min read
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912
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7
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It sucks but my health insurance (MBF) is changing so it wont be really suitable for me anymore... its stupid. They've capped the ambulance useage to once per year.. Ive used that 6 times at least in past year... POTS collapse when another rang.. I had to be stretchered out of a place ...
Today the gardener I'd been trying to get to do my garden finally showed up (its been 3 weeks of messed up times, rain etc etc). Im paying him $50 per hr (a lot!!) as Im so desperate and getting into trouble with neighbours over the messy garden and cant find anyone else to do it. Thou...
taniaaust1
1 min read
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726
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6
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My boyfriend and I just had a fight over my doctor as I felt like my boyfriend wasnt listening to me. He was on my back to do a list to take the the doctor, the thing is my doctor HATES it when I take lists in and dont like me bringing many things up during an appointment, my doctor ends up...
My doctor who wont give me any melatonin, is on holidays.... so I thought I'd use that situation to my advantage and go and see the temporary doc. for while he's away and try the get fill in doc to give me prescription for some melatonin. So I took the empty box of my last lot of melatonin...
Last night the police were pounding at my door at 3.00am, apparently I was screaming so loudly in my sleep that my neighbours who dont even live close, all thought I was being attacked so rang them. I thou when I remember my dreams they are very bad (I keep dreaming about the bad things...
taniaaust1
2 min read
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483
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4
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Yesterday? I finally found a mold specialist in my state (a friend suggested some other search terms and he came up right away with them.. I had no luck at all with all the terms I tried). The guy was advertising free mold inspections. I emailed him not believing it would be free to get...
taniaaust1
2 min read
Views
228
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I ended up quite sick and in pain yesterday. I went a little to easy on the carbs ..and ate a dried biscuit and cheese with a glass of milk (21 gram carbs... a glass of milk actually has 13 gram carb, carbs are almost in everything so hard to keep right down). It sucks that I can eat...
taniaaust1
3 min read
Views
476
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3
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Ive got a brand new granddaughter Tasmin Eve my daughter has named her. She's got a lot of thick hair just like my daughter had when she was born. Im very happy about this new granddaughter as i really love children (I wish I had some more if i wasnt sick), and as other grandchild I dont...
Ive had a bit of an up and down week with the ME and a very tiring week with 4 appointments. Two of them i didnt even know I had till people showed up at my door.. -GP checkup as I just finished my antiboitics for the pneumonia, -the housing people (who i didnt know was coming as I'd been...
Ive been getting letters and cards flowing into my mail box and would I'd like to say thank you everyone who sent, for the cards and mail well wishes etc, which got posted to my home (and also to the local hospital thou I wasnt in that one but rather in one of my states main hospitals. Thou it...
Ive been scratching/cutting myself trying to relieve my stress level (endophins) as Im so so stressed out as I have to attend an appointment in the city today and arent up to it at all. Cutting to relieve stress levels (for endorphin rush) is something I hadnt done in a while. So its upsetting...
Its been over 3mths since i lost posted in my blog. The symptoms which were helped by having my Insulin problem diet with (very very strict hardly no carbs at all diet which I have to be on for life) were im able to now get up at a normal persons time in the mornings less sore...
After a typical night of insomina, managed to get to sleep just after 3.30am... I woke up at a decent time today, 9.00am Wow!! That certainly beats the waking up at 11.30am-12.00 which Ive been doing. The reason why I woke up earlier, I think is cause I avoided eatting any carbohydrates...
I went back to the Allergist specialist today (another two hr trip.. the third this week Ive had for appointments).. as my test results were in. To my surprise my blood test results came back saying I have Hyperinsulinemia. So this now also gives me the diagnoses of having Sydrome X. My...
I went to the doctors today as I'd decided I'd try insisting that he allow me to try something to help the POTS, its ridiculous that I so often collapse when I go out and that Im not being treated for it. Im also NEEDING something for the insomina so really wanted to get a script for...